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The Biopolitics of Dementia
This book explores how dementia studies relates to dementia’s growing public profile and corresponding research economy. The book argues that a neuropsychiatric biopolitics of dementia positions dementia as a syndrome of cognitive decline, caused by discrete brain diseases, distinct from ageing, widely misunderstood by the public, that will one day be overcome through technoscience. This biopolitics generates dementia’s public profile and is implicated in several problems, including the failure of drug discovery, the spread of stigma, the perpetuation of social inequalities and the lack of support that is available to people affected by dementia. Through a failure to critically engage wi...
Excellence in Dementia Care: Research into Practice
This scholarly yet accessible textbook is the most comprehensive single text in the field of dementia care. Drawn from research evidence, international expertise and good practice guidelines, the book has been crafted alongside people with dementia and their families. Case studies and quotes enrich every chapter, illustrating the realities of living with dementia and bringing theory to life. Fully updated with 10 brand new chapters, this landmark textbook has enormous breadth and gives an authoritative overview of dementia care. The 2nd edition now includes chapters on the following topics: • Dementia friendly communities • Representations of dementia in the media • Younger people with...
The Poetics and Politics of Alzheimer’s Disease Life-Writing
This book is open access under a CC BY 4.0 license. This is the first book-length exploration of the thoughts and experiences expressed by dementia patients in published narratives over the last thirty years. It contrasts third-person caregiver and first-person patient accounts from different languages and a range of media, focusing on the poetical and political questions these narratives raise: what images do narrators appropriate; what narrative plot do they adapt; and how do they draw on established strategies of life-writing. It also analyses how these accounts engage with the culturally dominant Alzheimer’s narrative that centres on dependence and vulnerability, and addresses how they relate to discourses of gender and aging. Linking literary scholarship to the medico-scientific understanding of dementia as a neurodegenerative condition, this book argues that, first, patients’ articulations must be made central to dementia discourse; and second, committed alleviation of caregiver burden through social support systems and altered healthcare policies requires significantly altered views about aging, dementia, and Alzheimer’s patients.
Handbook of Participatory Video
Participatory video is a growing area of research and an increasingly popular tool among practitioners, researchers, and NGOs working with communities around the world. The Handbook of Participatory Video advances the field, engaging critically with it as a research methodology and method and interrogating assumptions about its emancipatory nature and potential for social change. In twenty-eight chapters, contributors examine historical, ethical, methodological, and technical aspects of participatory video and discuss power, ownership, and knowledge production. The Handbook is organized into six parts: Locating Participatory Video, Participatory Video as a Critical Research Methodology, Working with Visual Data, Power and Ethics in Participatory Video, Dissemination and Reaching New Audiences, and Communities and Technologies. This benchmark work takes an interdisciplinary and global approach and will be invaluable to researchers, practitioners, and students.
The Person in Dementia
"Students of many ilks will benefit from re-imagining Alzheimer's from the perspective of affected elders and their caregivers." - Peter Whitehouse, Case Western Reserve University
Critical Dementia Studies
This book puts the critical into dementia studies. It makes a timely and novel contribution to the field, offering a thought-provoking critique of current thinking and debate on dementia. Collectively the contributions gathered together in this text make a powerful case for a more politically engaged and critical treatment of dementia and the systems and structures that currently govern and frame it. The book is inter-disciplinary and draws together leading dementia scholars alongside dementia activists from around the world. It frames dementia as first and foremost a political category. The book advances both theoretical and methodological thinking in the field as well as sharing learning f...
Dementia Reconsidered Revisited: The Person Still Comes First
The original Dementia Reconsidered: The Person Comes First by Tom Kitwood was published by Open University Press in 1997. It was a seminal text in the field of dementia studies and is still cited and referenced as core reading on person-centred dementia care. Tom died unexpectedly, just 12 months after the book was published. This book continues to inspire many people to challenge simplistic paradigms about dementia. Since the original book was written, however, there have been many changes in our understanding of dementia. The editor of this new edition, Dawn Brooker was mentored by Tom Kitwood. She has drawn together a remarkable group of writers to provide a commentary on Kitwood’s work...
Dementia
Winner of the Michael Ramsay Prize 2016 Dementia is one of the most feared diseases in Western society today. Some have even gone so far as to suggest euthanasia as a solution to the perceived indignity of memory loss and the disorientation that accompanies it. Here, John Swinton develops a practical theology of dementia for caregivers, people with dementia, ministers, hospital chaplains, and medical practitioners as he explores two primary questions: • Who am I when I’ve forgotten who I am? • What does it mean to love God and be loved by God when I have forgotten who God is? Offering compassionate and carefully considered theological and pastoral responses to dementia and forgetfulness, Swinton’s Dementia redefines dementia in light of the transformative counter story that is the gospel.
A Handbook Of Dementia Care
Recently, professional understanding of dementia has broadened and has opened up new thinking about how we can provide more imaginative, responsive and 'person-centred' services for people with dementia. Against this background A Handbook of Dementia Care provides a wide-ranging, up-to-date overview of the current state of knowledge in the field. It is comprehensive, authoritative, accessible and thought-provoking. It asks: * How do different theoretical perspectives help us to understand dementia? * What do we know about what constitutes good practice in dementia care? * How can we improve practice and service delivery in dementia care? * How do policy, organizational issues and research im...
Performance and Dementia
This book explores how theatre and performance can change the way we think about dementia and some of the environments in which dementia care takes place. Drawing on the author’s creative practice and other performance projects in the UK, it explores some of the challenges and opportunities of making performance in care homes. Rather than focusing on the transformative potential of the arts, it asks how artists can engage with the different types of relationships that exist in a care community. These include the relationships that residents and staff have with each other as well as relationships with care spaces. Exploring the intersection between participatory performance and the everyday creativity of a care home, it argues that the arts have a cultural role to play in supporting dementia care as a relational practice. Moreover, it celebrates the intrinsic creativity of caregiving and how principles and practices of care work can inform theatre and performance in diverse ways.
