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The Deepening Shade
The Deepening Shade is an elegant synthesis of the psychology of life-threatening illness. The book's evocative power derives from the interweaving of clinical conceptualization with the words of patients and family members. Rather than focusing on death, Sourkes explores living with a life-threatening illness.
Textbook of Interdisciplinary Pediatric Palliative Care
The Textbook of Interdisciplinary Pediatric Palliative Care, by Drs. Joanne Wolfe, Pamela Hinds, and Barbara Sourkes, aims to inform interdisciplinary teams about palliative care of children with life-threatening illness. It addresses critical domains such as language and communication, symptoms and quality of life, and the spectrum of life-threatening illnesses in great depth. This comprehensive product takes a first-of-its-kind team approach to the unique needs of critically ill children. It shows how a collaborative, interdisciplinary care strategy benefits patients and their families. If you deal with the complex care of critically ill children, this reference provides a uniquely integra...
Interdisciplinary Pediatric Palliative Care
Interdisciplinary Pediatric Palliative Care provides a uniquely integrated, comprehensive resource about palliative care for seriously ill children and their families. The field of palliative care is based on the fundamental principle that an interdisciplinary team is optimal in caring for patients and their families throughout the illness trajectory. The text integrates themes including goals of care, discipline-specific roles, cultural and spiritual considerations, evidence-based outcomes, and far more. It emphasizes the value of words and high-quality communication in palliative care. Importantly, content acknowledges challenging periods between team members, and how those can ultimately ...
Interdisciplinary Pediatric Palliative Care
"We hope that the lives of all children will be filled with possibility, with open horizons and rainbows into the future. Children with serious illnesses, their families, and those who care for them, confront the realization that "not everything is possible," that despite dramatic scientific and medical advances, the lifespan of some children will be shortened. This threat of premature loss heightens the sense of time for children and families alike, and challenges clinicians to create new pathways of hope for them"--
Armfuls of Time
'I just wish I had armfuls of time.' These are the poignant words of a four year old facing a life-threatening illness. Armfuls of Time eloquently portrays the psychological experience of such children, who are irreversibly changed from the moment of diagnosis. Barbara M. Sourkes, Ph.D. describes how she works with these children, using drawings, soft toys and dolls, stories and real medical objects, to allow them to communicate their feelings about the treatment they undergo, their relationship with their families, their experience of the illness and living with the threat of loss. Making extensive use of the words of children, offering astute interpretations and sound practical advice, this is a book that will be welcomed by all those concerned with the care of children with life-threatening illnesses.
Interdisciplinary Pediatric Palliative Care
"We hope that the lives of all children will be filled with possibility, with open horizons and rainbows into the future. Children with serious illnesses, their families, and those who care for them, confront the realization that "not everything is possible," that despite dramatic scientific and medical advances, the lifespan of some children will be shortened. This threat of premature loss heightens the sense of time for children and families alike, and challenges clinicians to create new pathways of hope for them"--
Textbook of Interdisciplinary Pediatric Palliative Care E-Book
The Textbook of Interdisciplinary Pediatric Palliative Care, by Drs. Joanne Wolfe, Pamela Hinds, and Barbara Sourkes, aims to inform interdisciplinary teams about palliative care of children with life-threatening illness. It addresses critical domains such as language and communication, symptoms and quality of life, and the spectrum of life-threatening illnesses in great depth. This comprehensive product takes a first-of-its-kind team approach to the unique needs of critically ill children. It shows how a collaborative, interdisciplinary care strategy benefits patients and their families. If you deal with the complex care of critically ill children, this reference provides a uniquely integra...
Social Perspectives on Death and Dying
Death is inevitable, but our perspectives about death and dying are socially constructed. This updated third edition takes us through the maze of issues, both social and personal, which surround death and dying in Canada. Topics include euthanasia and medically assisted death, palliative care and hospices, the high incidence of opioid deaths, the impact of cyber bullying in suicide deaths, the sociology of hiv/aids, funeral and burial practices, the high rates of suicide in Canada and dealing with grief and bereavement, among others. Additionally, Auger explores alternative methods for helping dying persons and their loved ones deal with death in a holistic, patient-centred way. Each chapter includes suggested readings, discussion questions and in-class assignments.
Helping Children and Adolescents with Chronic and Serious Medical Conditions
Praise for Helping Children and Adolescents with Chronic and Serious Medical Conditions A Strengths-Based Approach "Helping Children and Adolescents with Chronic and Serious Medical Conditionsprovides a wellspring of knowledge, from the theoretical to the clinical. The many vignettes and transcriptions immeasurably enrich the reader's understanding of the interventions and their broader applicability."—Barbara M. Sourkes, PhDJohn A. Kriewall and Elizabeth A. Haehl Director of Pediatric Palliative CareLucile Packard Children's Hospital at Stanford An important and practical guide to providing compassionate care and support to medically compromised children and their families Helping Childre...
When Children Die
The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide...
