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An Orphaned Anemia: The Creation and Process of a Documentary
This book chronicles the process of creating a documentary that shares the story of Derek Free and other patients with Diamond Blackfan Anemia. DBA is considered an "orphan disease," one that affects so few people that it is not profitable to pharmaceutical companies, and therefore does not justify research. Until recently, not enough people had the disease to justify governmental aid. A transformation towards hope reveals a disease that is defying odds and treading new ground for the possibility of a cure. The small documentary interviews Pulitzer-prize winning journalist Beth Whitehouse (author of The Match: "Savior Siblings" and One Families Battle to Heal Their Daughter, the story of the Trebing family), Congresswoman Carolyn McCarthy, Dr. David Bodine from the National Institutes of Health, Drs. Jeffrey Lipton and Adrianna Vlachos from Cohen Children's Hospital, the Diamond Blackfan Anemia Foundation's founder, Dawn Baumgardner, and Marie Arturi, founder of the Daniella Maria Arturi Foundation.
Who Goes There?
Who Goes There?: Authentication Through the Lens of Privacy explores authentication technologies (passwords, PKI, biometrics, etc.) and their implications for the privacy of the individuals being authenticated. As authentication becomes ever more ubiquitous, understanding its interplay with privacy is vital. The report examines numerous concepts, including authentication, authorization, identification, privacy, and security. It provides a framework to guide thinking about these issues when deciding whether and how to use authentication in a particular context. The book explains how privacy is affected by system design decisions. It also describes government's unique role in authentication and what this means for how government can use authentication with minimal invasions of privacy. In addition, Who Goes There? outlines usability and security considerations and provides a primer on privacy law and policy.
Peace Corps Times
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Peace Corps Times
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The Match
Using one family's dramatic and emotional story as an entry point, award-winning journalist Whitehouse delves into the complex bioethics of preimplantation genetic diagnosis (PGD), exploring whether it is defensible to create a "savior sibling" by scientific manipulation.
The Queen
The captivating biography of Her Late Majesty Queen Elizabeth II, written by the world's best-known royal biographer, Andrew Morton.
The New England Historical and Genealogical Register
Beginning in 1924, Proceedings are incorporated into the Apr. number.
Feminist Phenomenology Futures
Distinguished feminist philosophers consider the future of their field and chart its political and ethical course in this forward-looking volume. Engaging with themes such as the historical trajectory of feminist phenomenology, ways of perceiving and making sense of the contemporary world, and the feminist body in health and ethics, these essays affirm the base of the discipline as well as open new theoretical spaces for work that bridges bioethics, social identity, physical ability, and the very nature and boundaries of the female body. Entanglements with thinkers such as Heidegger, Merleau-Ponty, Beauvoir, and Arendt are evident and reveal new directions for productive philosophical work. Grounded in the richness of the feminist philosophical tradition, this work represents a significant opening to the possible futures of feminist phenomenological research.
Confidence Man
From the Pulitzer Prize–winning New York Times reporter who has defined Donald J. Trump’s presidency like no other journalist: a magnificent and disturbing reckoning that chronicles his life and its impact, from his rise in New York City to his tortured postpresidency. All of Trump’s behavior as president had echoes in what came before. In this revelatory and news-making book, Haberman brings together the events of his life into a single mesmerizing work. It is the definitive account of one of the most norms-shattering and consequential eras in American political history.
