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Fasten Your Seatbelt
Even the closest brothers and sisters don't always get along or understand each other. Add a disability like Down syndrome to the mix, and that sibling relationship gets even more complicated, especially for teenagers. Fasten Your Seatbelt is the first book written exclusively for teens with a brother or sister with Down syndrome. In an easy-to-read, question & answer format, it tackles a broad range of their most common issues and concerns. Nearly 100 questions--all posed by teen siblings--are grouped into the following categories: Facts and stats about Down syndrome How people with Down syndrome learn Handling parent and family conflicts Dealing with your sibling's frustrating behaviors Ma...
Disability, Health, Law, and Bioethics
Examines how the framing of disability has serious implications for legal, medical, and policy treatments of disability.
Towards an Ethic of Autism
Kristien Hens succeeds in weaving together experiential expertise of both people with autism and their parents, scientific insights and ethics, and does so with great passion and affection for people with autism (with or without mental or other disabilities). In this book she not only asks pertinent questions, but also critically examines established claims that fail to take into account the criticism and experiences of people with autism. Sam Peeters, author of Autistic Gelukkig (Garant, 2018) and Gedurfde vragen (Garant, 2020); blog @ Tistje.com What does it mean to say that someone is autistic? Towards an Ethics of Autism is an exploration of this question and many more. In this thoughtfu...
Communication and Bioethics at the End of Life
This casebook provides a set of cases that reveal the current complexity of medical decision-making, ethical reasoning, and communication at the end of life for hospitalized patients and those who care for and about them. End-of-life issues are a controversial part of medical practice and of everyday life. Working through these cases illuminates both the practical and philosophical challenges presented by the moral problems that surface in contemporary end-of-life care. Each case involved real people, with varying goals and constraints,who tried to make the best decisions possible under demanding conditions. Though there were no easy solutions, nor ones that satisfied all stakeholders, there are important lessons to be learned about the ways end-of-life care can continue to improve. This advanced casebook is a must-read for medical and nursing students, students in the allied health professions, health communication scholars, bioethicists, those studying hospital and public administration, as well as for practicing physicians and educators.
A Special Mother Is Born
Stories written for people who are faced with a prenatal diagnosis or are raising a child with special needs. Thirty three parents who have walked in your shoes share how they encountered Christ alongside them in the darkness.
Far From The Tree
**WINNER OF THE WELLCOME BOOK PRIZE 2014** A NEW YORK TIMES BESTSELLER Sometimes your child - the most familiar person of all - is radically different from you. The saying goes that the apple doesn't fall far from the tree. But what happens when it does? Drawing on interviews with over three hundred families, covering subjects including deafness, dwarfs, Down's Syndrome, Autism, Schizophrenia, disability, prodigies, children born of rape, children convicted of crime and transgender people, Andrew Solomon documents ordinary people making courageous choices. Difference is potentially isolating, but Far from the Tree celebrates repeated triumphs of human love and compassion to show that the shared experience of difference is what unites us. Winner of the National Book Critics Circle Award for General Non-fiction and eleven other national awards. Winner of the Green Carnation Prize.
The Politics of Down Syndrome
Are we a more accepting society than ever before? Is there no longer a them and us division between the disabled and everybody else? The Politics of Down Syndrome looks at how we got to where we are today, from the racist roots of its identification to the rising number of abortions today. Down syndrome is the most common syndrome in the world, shared by all classes and races, yet it's one we rarely address our feelings about, head on. This book, although direct and questioning, takes a positive view about where we go from here and the opportunity for society to fully enjoy the benefits of being inclusive.
Modifying Our Genes
If our bodies could do more things, would our lives be better? Genome editing is a rapidly developing technology that can modify human genes. It can cure heritable diseases, but we could even make certain genetic “improvements” to healthy people. Should we change human embryos genetically to achieve such goals? Bringing together a leading molecular biologist and a Christian ethicist this book responds to the need for solid information and helpful orientation for a pressing moral issue. They explain relevant technical issues without the jargon, clarify the most important philosophical and religious arguments and bring empirical insights to the question of what helps us lead meaningful lives.
Down Syndrome
First identified in the nineteenth century, Down syndrome is one of the most recognizable genetic disorders, marked by characteristic facial features and mild to moderate intellectual disability. Since scientists discovered in the 1950s that people with Down syndrome have an extra copy of chromosome 21, there has been much more research into the disorder, how to screen for it, and how to treat individuals who have it. This informative book covers all aspects of Down syndrome and includes accounts from people who have it.
