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Risk Assessment and Management for Living Well with Dementia
Risk is central to professional practice, assessment and decision-making in dementia care. Yet theories of risk are often complex and difficult to translate into everyday practice. This book outlines some of the key issues in risk perception, assessment and management in dementia care in a way that is both practical and accessible to a wide range of practitioners. It develops an approach to risk that promotes choice for people with dementia whilst also acknowledging the complex challenges care providers face. The authors provide an overview of the legislative framework currently in place, and of the ethical dilemmas which may emerge in practice. Frameworks for informed and balanced decision-making are offered, and the importance of including the person with dementia, their family, and care providers in decision-making is emphasised. Throughout the book, case studies are used to illustrate effective negotiation and practical solutions to risk dilemmas in practice. This book highlights principles of good practice for managing risk in dementia care, and presents a rounded approach that will help practitioners negotiate some of the complex issues this entails.
The Poetics and Politics of Alzheimer’s Disease Life-Writing
This book is open access under a CC BY 4.0 license. This is the first book-length exploration of the thoughts and experiences expressed by dementia patients in published narratives over the last thirty years. It contrasts third-person caregiver and first-person patient accounts from different languages and a range of media, focusing on the poetical and political questions these narratives raise: what images do narrators appropriate; what narrative plot do they adapt; and how do they draw on established strategies of life-writing. It also analyses how these accounts engage with the culturally dominant Alzheimer’s narrative that centres on dependence and vulnerability, and addresses how they relate to discourses of gender and aging. Linking literary scholarship to the medico-scientific understanding of dementia as a neurodegenerative condition, this book argues that, first, patients’ articulations must be made central to dementia discourse; and second, committed alleviation of caregiver burden through social support systems and altered healthcare policies requires significantly altered views about aging, dementia, and Alzheimer’s patients.
The Pool Activity Level (PAL) Instrument for Occupational Profiling
This fourth edition contains all the latest research on the use of the PAL Instrument, new information on using the PAL Checklist to carry out sensory interventions and information about how a new online PAL tool supports the book. It features photocopiable activity checklists and plans that help to match users' abilities with activities.
The Perspectives of People with Dementia
People with dementia have often played a passive role in the investigation of their condition. The contributors to this book look at ways of redressing the balance and involving them in the research process. They describe the skills that researchers and care staff need, and the methods they can use, when seeking to draw out and validate the views of people with dementia successfully, and discuss the ways in which such views can be included in debates about dementia methodology and policy. The book focuses on a number of projects which have taken different approaches to working with people with dementia in research, including a chapter examining the difficult process of interviewing people with dementia whose first language is not English and a chapter describing a project which encourages people with dementia to participate in the analysis of the research findings. This varied and innovative book will help those in the fields of health and social policy, dementia research and dementia care to hear the voices of people with dementia more clearly, and to include their opinions more effectively in the provision of services.
Leadership for Person-Centred Dementia Care
Person-centred dementia care relies on leadership that supports the ongoing process of learning about and valuing individuals, their feelings, strengths and needs, and using this knowledge to enhance wellbeing and create a positive care environment. With a strong practical focus and many helpful case examples, this book will equip readers with the practical skills, knowledge and confidence necessary to lead person-centred dementia care. The areas explored are relevant across a wide range of care settings, and to all those in, or starting, either a managerial or non-managerial leadership role within a dementia care service. Topics covered include the key goals for person-centred dementia care...
Playfulness and Dementia
Playfulness has an important role in ensuring that life continues to be enjoyable and meaningful after a person is diagnosed with dementia. This positive and uplifting book sets out to establish playfulness as an essential component of dementia care, and will be a key text in changing attitudes and offering practical suggestions for new and valuable ways of interacting and being with people with the condition. The author explains what is meant by playfulness within this context, and why it is so important for people with dementia, including as a way of maintaining meaningful relationships and a sense of personhood, as a way of retaining control and as a way into lateral thinking. He provides...
Creating Culturally Appropriate Outside Spaces and Experiences for People with Dementia
Demonstrating that it is essential to be sensitive to the cultural backgrounds of people with dementia in order to provide truly person-centred care, this book shows that it is possible to create culturally appropriate outdoor spaces and experiences that resonate with people with dementia on a fundamental level and are a source of comfort and wellbeing. Contributors drawn from a variety of backgrounds describe the significance of nature in the lives of people with dementia from diverse cultures, faiths, traditions and geographical locations, providing helpful insights into how access to the natural world may be achieved within different care settings. There are contributions from the UK (Sco...
Remembering Yesterday, Caring Today
Reminiscence is a vital way to stimulate communication and promote confidence and self-worth in people with dementia. This practical guide is designed to give those who care for people with dementia a clear sense of how reminiscence can be used to greatly improve their quality of life. The book explores how reminiscence can contribute to person-centred dementia care and contains detailed descriptions of activities that can be used in a group setting, for one-to-one reminiscence at home or in a variety of care settings. Based on ideas developed and tested internationally over a period of ten years, the book offers imaginative approaches to reminiscence and a wealth of resources for use in a wide range of situations. The book includes advice on organising a reminiscence project and provides a useful planning tool for group sessions. Remembering Yesterday, Caring Today highlights the value of reminiscence for those with dementia and is an essential guide to good practice for family and professional carers.
Evaluation in Dementia Care
This volume sets out the critical role and application of evaluation in identifying and developing good practice in a range of dementia care settings. It discusses the evaluation of care at different levels, covering evaluation methods, ethics, use of technology and the user's role in the evaluation process itself.
Intellectual Disability and Dementia
Presenting the most up-to-date information available about dementia and intellectual disabilities, this book brings together the latest international research and evidence-based practice, and describes clearly the relevance and implications for support and services Internationally renowned experts from the UK, Ireland, the USA, Canada, Australia and the Netherlands discuss good practice and the way forward in relation to assessment, diagnosis, interventions, staff knowledge and training, care pathways, service design, measuring outcomes and the experiences of individuals, families and carers. The wealth of information offered will inform support and services throughout the whole course of de...
