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Ethics and Law of Intellectual Property
Divided into three parts, this edited volume gives an overview of current topics in law and ethics in relation to intellectual property. It addresses practical issues encountered in everyday situations in politics, research and innovation, as well as some of the underlying theoretical concepts. In addition, it provides an insight into the process of international policy-making, showing the current problems in the area of intellectual property in science and research. It also highlights changes in the fundamental understanding of common and private property and the possible implications and challenges for society and politics.
Health and Quality of Life
How could one define health and disease? On what presuppositions, and ought we look for such definitions? Does quality of life inherit a subjective or objective evaluation? Are health and quality of life culture dependent concepts? Under the conditions of technologically advanced medicine and the common tendency towards a hedonistic lifestyle such questions come into focus. Hence, one question is of special relevance: which role does health play in our quality of life? The contributions of this interdisciplinary volume aim at the clarification of the various concepts in use. International scholars and scientists outline the framework for a more comprehensive and demanding concept of health and quality of life including philosophical and cultural aspects as well as medical and psychological dimensions.
Evidence-based Practice in Medicine and Health Care
Evidence-based Medicine (EBM) is feared to become a kind of cook-book medicine that has nothing to do with the traditional skills and ethics. This volume shows the contribution EBM makes and might make to medical practice and health policy. It describes as many viewpoints as possible with a focus on the ethical issues that are at stake in this process. It shows how EBM has developed from an internal medical issue to an instrument for health policy. It is the outcome of the European Project "Ethical Issues of Evidence Based Practice in Medicine and Health Care" and gives insight into the ethical background of the debate on the role of EBM in various areas of medicine, including clinical practice, medical education, medical research, health policy and medical sociology.
Human Tissue Research
The use of human tissue for medical research and scientific progress raises many ethical and legal challenges. This multi-authored interdisciplinary text provides a fascinating insight into interlinking research perspectives and serves as a comprehensive reference to the state of play ethically and legally in Europe.
The Ethical and Legal Regulation of Human Tissue and Biobank Research in Europe
"Human tissue and biobank research is of increasing importance for understanding the causes of widespread diseases and developing effective therapies. However, while the success of biobank research depends on the availability of a large number of samples and the consolidation of collections across country borders is very desirable from the perspective of researchers, the legal and ethical requirements for the procurement, storage and use of human tissue samples are rather heterogeneous across different countries. Moreover, the lack of comprehensive supranational regulation on human tissue and biobanking can be seen as posing a serious threat to transnational biomedical research. Against this...
The Global Governance of Genetic Resources
How is access to genetic resources and the equitable sharing of the benefits arising out of their use to be guaranteed? Exploring the subject comparatively, with regard to intellectual property rights, food and agriculture, health, and access to oceans, this book creates a new theory of change in multilevel global governance.
Argula von Grumbach (1492-1554/7)
At a time when women were expected to stick to their household duties, according to Peter Matheson, Argula von Grumbach burst through every barrier. Matheson offers here a biography of the Reformation's first woman writer. Argula von Grumbach's first pamphlet in 1523 was reprinted all over Germany. Thousands of copies of her eight pamphlets appeared. Through her writing, von Grumbach defied her Bavarian princes (and her husband), denounced censorship, argued for an educated church and society, and developed her own understanding of faith and Scripture. She even intervened in the Imperial Diets at Nuremberg and Augsburg. Drawing for the first time on her correspondence, the author shows how von Grumbach paid dearly for her outspokenness but remained undaunted. Though some saw her as a she-devil and others as a harbinger of a new age, Matheson shows von Grumbach as a woman engaged in the life of the villages where she lived, as one motivated by the dreams she had for her children. In a time of sweeping change and risking everything for the light and truth she was given, Argula von Grumbach showed what the vision and determination of one person could achieve.
The Ethics of Sports Medicine
The book aims to establish a critical dialogue between sports ethicists and bioethicists across the range of sporting disciplines at elite level. It will address questions such as: are the increasingly intrusive testing methods of elite sports compatible with the right to autonomy and privacy granted to patients in general medicine? could there be a moral obligation to correct injustices produced by the genetic lottery? how should the goals of sports medicine be viewed from the perspective of rationing scarce health care resources? This book was published as a special issue in Sport, Ethics and Philosophy.
Women, Biomedical Research and Art
Die Studie widmet sich intersektionalen Verletztbarkeiten, sozio-geografischen und rassistischen Ungerechtigkeiten sowie dem Traumapotenzial von Reproduktionsmedizin, Menschenhandel und Schwarzmarkt-Organhandel. Mittels eines empirischen, kritisch-diskursanalytischen, künstlerischen und philosophisch-theoretischen Zugangs entwickelt die interdisziplinäre Studie praktische kreative Werkzeuge für eine Pädagogik, die Würde und Integrität betont und die Menschenrechte im Alltag der betroffenen Bevölkerung unterstützt.
Biobanks and Tissue Research
The research field of biobanks and tissue research is highly promising. Many projects around the globe are involved in the collection of human tissue and health data for research purposes. These initiatives are driven by the perspective of decisive breakthroughs in the knowledge of the genetic pathways involved in widespread diseases. However, there are considerable ethical and legal challenges to be considered as well. These challenges encompass the use of body material for research purposes, the misuse of genetic and other health data by third parties, trust in science and medicine, concerns regarding privacy, use of genetic data for forensic applications by the state and the police, and regulatory issues. This volume is divided into three parts: the inclusion of the public, the rights of donors and patients, examples and recommendations for the future of tissue research. It presents a comprehensive overview of the most important topics in the field by renowned scholars in medical ethics and biolaw.
