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When Children Die
The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide...
When Children Die
This document is a brief summary of the Institute of Medicine report entitled When Children Die: Improving Palliative and End-of-Life Care for Children. Better care is possible now, but current methods of organizing and financing palliative, end-of-life, and bereavement care complicate the provision and coordination of services to help children and families and sometimes require families to choose between curative or life-prolonging care and palliative services, in particular, hospice care. Inadequate data and scientific knowledge impede efforts to deliver effective care, educate professionals to provide such care, and design supportive public policies. Integrating effective palliative care from the time a child's life-threatening medical problem is diagnosed will improve care for children who survive as well as children who die-and will help the families of all these children. The report recognizes that while much can be done now to support children and families, much more needs to be learned. The analysis and recommendations reflect current knowledge and judgments, but new research and insights will undoubtedly suggest modifications and shifts in emphasis in future years.
Pediatric Palliative Care
Pediatric palliative care is a field of significant growth as health care systems recognize the benefits of palliative care in areas such as neonatal intensive care, pediatric ICU, and chronic pediatric illnesses. Pediatric Palliative Care, the fourth volume in the HPNA Palliative Nursing Manuals series, highlights key issues related to the field. Chapters address pediatric hospice, symptom management, pediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in pediatric palliative care. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice. Plentiful tables and patient teaching points make these volumes useful resources for nurses.
A Guide to the Development of Children's Palliative Care Services
'A Guide to the Development of Children's Palliative Care Services' is a key resource for all organisations and professionals who have an interest in developing or supporting services for life-limited or life-threatening children and their families.
Oxford Textbook of Palliative Care for Children
This book is the first authoritative, systematic and comprehensive text to define the increasingly important and evolving specialty of paediatric palliative care. It explores both the clinical aspects and the multidimensional and holistic nature of care for the dying child, based on theknowledge that all human experience has a physical, emotional, psychological and spiritual impact. The book covers ways of providing support in all of these areas both for the child, families, and carers, recognising the importance of teamwork and taking an evidence-based approach. The Oxford Textbook of Palliative Care for Children is about the care of children for whom cure of their underlying disease is not...
Children’s Palliative Care: An International Case-Based Manual
This manual enables individuals working in children’s palliative care (CPC) globally to learn through engaging real-world cases. The aim is to provide a clinical case-based resource that is globally relevant and accessible to those working in CPC. Drawing on case histories from around the world that reflect key issues and elements of CPC, it provides a practical approach grounded in experience. It addresses multidisciplinary care in the management of children and their families; discusses cases from an international perspective, and shares examples from a variety of countries, utilising cases across a range of ages and conditions, demonstrating holistic care. It represents the first case-b...
Palliative and End-of-Life Care
Palliative and End-of-Life Care, 2nd Edition provides clinicians with the guidelines and tools necessary to provide quality, evidenced-based care to patients with life-limiting illness. This text describes the care and management of patients with advanced disease throughout the disease trajectory, extending from diagnosis of advanced disease until death. Four units provide the general principles of palliative and end-of-life care, important concepts, advanced disease management, and clinical practice guidelines. Clinical practice guidelines offer in-depth discussions of the pathophysiology of 19 different symptoms, interventions for specific symptom management (including in-depth rationales)...
When Children Die
The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide...
Supportive Care of Children with Cancer
Three of every four children and adolescents with cancer can now be cured. However, physicians are using increasingly intensive treatment regimens. These treatments can expose patients to toxic chemotherapeutic agents, invasive surgical procedures, and radiation oncology interventions that risk disfigurement, neuropsychiatric damage, and life-threatening organ toxicity. These potentially dire consequences have mandated that advances in cancer treatment go hand in hand with supportive care measures that sustain patients through their therapeutic ordeal and allow each patient to achieve maximum quality of life. In this book, now in its third edition, the discipline of supportive care in pediat...
Paediatric Palliative Medicine
A concise and practical guide to caring for children with life-limiting conditions, 'Paediatric Palliative Medicine' covers the common symptoms and challenging issues healthcare professionals are likely to encounter, and includes a detailed drug formulary for quick reference.
