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Unfitting Stories
Unfitting Stories: Narrative Approaches to Disease, Disability, and Trauma illustrates how stories about ill health and suffering have been produced and received from a variety of perspectives. Bringing together the work of Canadian researchers, health professionals, and people with lived experiences of disease, disability, or trauma, it addresses central issues about authority in medical and personal narratives and the value of cross- or interdisciplinary research in understanding such experiences. The book considers the aesthetic dimensions of health-related stories with literary readings that look at how personal accounts of disease, disability, and trauma are crafted by writers and filmm...
Sex and Disability
This collection brings together scholars and artists in disability studies, sexuality, queer theory, and feminism, to show how much sexuality studies and disability studies have to learn from each other.
Lost Kids
Children and youth occupy important social and political roles, even as they sleep in cribs or hang out on street corners. Conceptualized as either harbingers or saboteurs of a bright, secure tomorrow, they have motivated many adult-driven schemes to effect a positive future. But have all children benefited from these programs and initiatives? Lost Kids examines adults' misgivings about, and the inadequate care of, vulnerable children. From explorations of interracial adoption and the treatment of children with disabilities to discussions of the cultural construction of the hopeless child, this multifaceted collection rejects the essentialism of the "priceless child" or "lost youth" � simplistic categories that continue to shape the treatment of those who deviate from the so-called norm.
Living with Alzheimer's
News of Alzheimer’s disease is constantly in the headlines. Every day we hear heart-wrenching stories of people caring for a loved one who has become a shell of their former self, of projections about rising incidence rates, and of cures that are just around the corner. However, we don't see or hear from the people who actually have the disease. In Living with Alzheimer’s, Renée L. Beard argues that the exclusively negative portrayals of Alzheimer’s are grossly inaccurate. To understand what life with memory loss is really like, Beard draws on intensive observations of nearly 100 seniors undergoing cognitive evaluation, as well as post-diagnosis interviews with individuals experiencin...
Reconsidering Intellectual Disability
Drawing on the controversial case of “Ashley X,” a girl with severe developmental disabilities who received interventionist medical treatment to limit her growth and keep her body forever small—a procedure now known as the “Ashley Treatment”—Reconsidering Intellectual Disability explores important questions at the intersection of disability theory, Christian moral theology, and bioethics. What are the biomedical boundaries of acceptable treatment for those not able to give informed consent? Who gets to decide when a patient cannot communicate their desires and needs? Should we accept the dominance of a form of medicine that identifies those with intellectual impairments as pathol...
The Evolution of Young People’s Spatial Knowledge
Young people imagine, perceive, experience, talk about, use, and produce space in a wide variety of ways. In doing so, they acquire and produce stocks of spatial knowledge. A quite dynamic and ever-changing process by nature, young people’s production and acquisition of spatial knowledge are susceptible to many kinds of conditions—from those that shape their everyday routines to those that constitute historical turning points. Against this backdrop and drawing on a qualitative metaanalysis, the authors set out to discover what changes the spatial knowledge of young people has undergone during the past five decades. To that end, sixty published studies were sampled, analyzed, and synthesi...
Hurt and Pain
Hurt and Pain: Literature and the Suffering Body examines the strategies authors have used to portray bodies in pain, drawing on a diverse range of literary texts from the seventeenth century to the present day. Susannah B. Mintz provides readings of canonical writers including John Donne, Emily Dickinson, and Samuel Beckett, alongside contemporary writers such as Ana Castillo and Margaret Edson, focusing on how pain is shaped according to the conventions-and also experiments-of genre: poetry, memoir, drama, and fiction. With insights from disability theory and recent studies of the language of pain, Mintz delivers an important corrective to our most basic fears of physical suffering, revealing through literature that pain can be a source of connection, compassion, artistry, and knowledge. Not only an important investigation of authors' formal and rhetorical choices, Hurt and Pain reveals how capturing pain in literature can become a fundamental component of crafting human experience.
Protean Selves
What does it mean to write “I” in postmodern society, in a world in which technological advances and increased globalization have complicated notions of authenticity, origins, and selfhood? Under what circumstances and to what extent do authors lend their scriptural authority to fictional counterparts? What role does naming, or, conversely, anonymity play vis-à-vis the writing and written “I”? What aspects of identity are subject to (auto)fictional manipulations? And how do these complicated and multilayered narrating selves problematize the reader’s engagement with the text? Seeking answers to these questions, Protean Selves brings together essays which explore the intricate rela...
Voices of Mental Health
This dynamic and richly layered account of mental health in the late twentieth century interweaves three important stories: the rising political prominence of mental health in the United States since 1970; the shifting medical diagnostics of mental health at a time when health activists, advocacy groups, and public figures were all speaking out about the needs and rights of patients; and the concept of voice in literature, film, memoir, journalism, and medical case study that connects the health experiences of individuals to shared stories. Together, these three dimensions bring into conversation a diverse cast of late-century writers, filmmakers, actors, physicians, politicians, policy-makers, and social critics. In doing so, Martin Halliwell’s Voices of Mental Health breaks new ground in deepening our understanding of the place, politics, and trajectory of mental health from the moon landing to the millennium.
Making Sense Of: Health, Illness and Disease
Health, illness and disease are topics well-suited to interdisciplinary inquiry. This book brings together scholars from around the world who share an interest in and a commitment to bridging the traditional boundaries of inquiry. We hope that this book begins new conversations that will situate health in broader socio-cultural contexts and establish connections between health, illness and disease and other socio-political issues. This book is the outcome of the first global conference on “Making Sense of: Health, Illness and Disease,” held at St Catherine's College, Oxford, in June 2002. The selected papers pursue a range of topics from the cultural significance of narratives of health,...
