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Populations and Genetics
Thirty-five papers from the third International DNA Sampling Conference, held in Montreal in September 2002, provide a critical discussion of the socio-ethical and legal issues surrounding DNA sampling in communities and populations around the globe. Contributors address topics related to biobanks and databases; community engagement; confidentialit.
Self-Spreading Biotechnology and International Law
Wer haftet, wenn sich selbst ausbreitende Gentechnik grenzüberschreitende Schäden verursacht? Mit Gene Drives und ähnlichen Verfahren wird es bald möglich sein, das Erbgut wild lebender Arten, Keime und Nutzpflanzen direkt in der Umwelt zu verändern. Dies könnte helfen, drängende Probleme in der öffentlichen Gesundheit, im Naturschutz und in der Ernährungssicherheit zu lösen. Allerdings bergen diese Verfahren auch das Risiko einer unkontrollierten Ausbreitung über Staatsgrenzen hinweg. Anhand einer grundlegenden Untersuchung der einschlägigen Verträge und des Völkergewohnheitsrechts zu Prävention und Haftung für grenzüberschreitende Schäden wird aufgezeigt, dass das derzeit geltende Völkerrecht dieser Herausforderung noch nicht gewachsen ist.
The Genealogical Science
The Genealogical Science analyzes the scientific work and social implications of the flourishing field of genetic history. A biological discipline that relies on genetic data in order to reconstruct the geographic origins of contemporary populations—their histories of migration and genealogical connections to other present-day groups—this historical science is garnering ever more credibility and social reach, in large part due to a growing industry in ancestry testing. In this book, Nadia Abu El-Haj examines genetic history’s working assumptions about culture and nature, identity and biology, and the individual and the collective. Through the example of the study of Jewish origins, she...
Mind Shift
Does any other animal experience the richness of our inner lives-our ability to imagine, to hope, to dream, to create imaginary worlds? John Parrington answers no, and considers how we came to be so different, even from our nearest primate relatives. In this book, he argues that a 'mind shift' occurred during our evolution, in which tool use and especially the invention of language transformed our brains, which not only became larger, but subtly altered in their structure and function, making them more 'plastic' and open to external influences. Words could be used for inner dialogue too, leading to the emergence of a sense of self, of conscious awareness, as a product of brain biology and social interaction. An outpouring of art, music, literature, science, and technology has been the result-but also suffering, delusions, and despair when this symphonic brain activity goes wrong. Parrington considers the evidence for this language- and culture-driven view of human consciousness, and its implications for our mental health. Book jacket.
Personalized Medicine
"Personalized Medicine investigates the recent movement for patients' involvement in how they are treated, diagnosed, and medicated; a movement that accompanies the increasingly popular idea that people should be proactive, well-informed participants in their own healthcare. While it is often the case that participatory practices in medicine are celebrated as instances of patient empowerment or, alternatively, are dismissed as cases of patient exploitation, Barbara Prainsack challenges these views to illustrate how personalized medicine can give rise to a technology-focused individualism, yet also present new opportunities to strengthen solidarity. Facing the future, this book reveals how medicine informed by digital, quantified, and computable information is already changing the personalization movement, providing a contemporary twist on how medical symptoms or ailments are shared and discussed in society"--Provided by publisher.
Genetic Suspects
As DNA forensic profiling and databasing become established as key technologies in the toolbox of the forensic sciences, their expanding use raises important issues that promise to touch everyone's lives. In an authoritative global investigation of a diverse range of countries, including those at the forefront of these technologies' development and use, this book identifies and provides critical reflection upon the many issues of privacy; distributive justice; DNA information system ownership; biosurveillance; function creep; the reliability of collection, storage and analysis of DNA profiles; the possibility of transferring medical DNA information to forensics databases; and democratic involvement and transparency in governance, an emergent key theme. This book is timely and significant in providing the essential background and discussion of the ethical, legal and societal dimensions for academics, practitioners, public interest and criminal justice organisations, and students of the life sciences, law, politics, and sociology.
Biobanks
In recent years, a number of large population-based biobanks – genetic databases that combine genetic information derived from blood samples with personal data about environment, medical history, lifestyle or genealogy – have been set up in order to study the interface between disease, and genetic and environmental factors. Unsurprisingly, these studies have sparked a good deal of controversy and the ethical and social implications have been widely debated. Biobanks: Governance in Comparative Perspective is the first book to explore the political and governance implications of biobanks in Europe, the United States, Asia, and Australia. This book explores: the interrelated conditions needed for a biobank to be created and to exist the rise of the new bio-economy the redefinition of citizenship accompanying national biobank developments This groundbreaking book makes clear that biobanks are a phenomenon that cannot be disconnected from considerations of power, politics, and the reshaping of current practices in governance. It will be a valuable read for scholars and students of genetics, bioethics, risk, public health and the sociology of health and illness.
The Bloomsbury Companion to Jewish Studies
The Bloomsbury Companion to Jewish Studies is a comprehensive reference guide, providing an overview of Jewish Studies as it has developed as an academic sub-discipline. This volume surveys the development and current state of research in the broad field of Jewish Studies - focusing on central themes, methodologies, and varieties of source materials available. It includes 11 core essays from internationally-renowned scholars and teachers that provide an important and useful overview of Jewish history and the development of Judaism, while exploring central issues in Jewish Studies that cut across historical periods and offer important opportunities to track significant themes throughout the diversity of Jewish experiences. In addition to a bibliography to help orient students and researchers, the volume includes a series of indispensable research tools, including a chronology, maps, and a glossary of key terms and concepts. This is the essential reference guide for anyone working in or exploring the rich and dynamic field of Jewish Studies.
Alzheimer’s and Parkinson’s Diseases
This book represents the third in a series of International Conferences related to Alzheimer's (AD) and Parkinson's (PD) diseases. The first one took place in Eilat, Israel, in 1985; and the second one in Kyoto, Japan, in 1989. This book contains the full text of oral and poster presentations from the Third International Conference on Alzheimer's and Parkinson's Diseases: Recent Developments, held in Chicago, Illinois, U.S.A. on November 1-6, 1993. The Chicago Conference was attended by 270 participants. The Scientific Program was divided into nine oral sessions, a keynote presentation, and a poster session. The conference culminated in a Round Table Discussion involving all of the participants in the conference. The four and one-half day meeting served as an excellent medium for surveying the current status of clinical and preclinical developments in AD and PD. There were 59 oral presentations and 93 posters. This book incorporates a majority of both.
