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Crossing Over
Crossing Over provides a unique view of patients, families, and their caregivers in the face of incurable illness. Twenty richly-detailed narratives bring vividly to life the experiences of dying and bereavement, weaving together emotions, physical symptoms, spiritual concerns, and the stresses of family life, as well as the professional and personal challenges of providing hospice and palliative care. Drawing on a variety of qualitative research methods, including participant-observation, interviews, and journal keeping, the narratives depict the sights, sounds, tastes, and smells of daily life in patients' homes and in the palliative care unit. Crossing Over moves far beyond conventional c...
Environmental Health Sciences Decision Making
Environmental health decision making can be a complex undertaking, as there is the need to navigate and find balance among three core elements: science, policy, and the needs of the American public. Policy makers often grapple with how to make appropriate decisions when the research is uncertain. The challenge for the policy maker is to make the right decision with the best available data in a transparent process. The Environmental Health Sciences Decision Making workshop, the first in a series, was convened to inform the Roundtable on Environmental Health Sciences, Research, and Medicine on emerging issues in risk management, "weight of evidence," and ethics that influence environmental health decision making. The workshop, summarized in this volume, included an overview of the principles underlying decision making, the role of evidence and challenges for vulnerable populations, and ethical issues of conflict of interest, scientific integrity, and transparency. The workshop engaged science interest groups, industry, government, and the academic sector.
The Oxford Handbook of Research Ethics
The development of new pharmaceutical products and behavioral interventions aimed at improving people's health, as well as research that assesses the efficacy and cost-effectiveness of public policies, such as policies designed to improve children's education or reduce poverty, depends on research conducted with human participants. It is imperative that research with human subjects is conducted in accordance with sound ethical principles and regulatory requirements. Featuring 45 original essays by leading research ethicists, The Oxford Handbook of Research Ethics offers a critical overview of the ethics of human subjects research within multiple disciplines and fields, including biomedicine, public health, psychiatry, sociology, political science, and public policy.
The Poisoned City
Winner of The Hillman Prize for Book Journalism - 2019 When the people of Flint, Michigan, turned on their faucets in April 2014, the water pouring out was poisoned with lead and other toxins. Through a series of disastrous decisions, the state government had switched the city’s water supply to a source that corroded Flint’s aging lead pipes. Complaints about the foul-smelling water were dismissed: the residents of Flint, mostly poor and African American, were not seen as credible, even in matters of their own lives. It took eighteen months of activism by city residents and a band of dogged outsiders to force the state to admit that the water was poisonous. By that time, twelve people ha...
Urban Emergency (Mis)Management and the Crisis of Neoliberalism
Urban Emergency (Mis)Management and the Crisis of Neoliberalism: Flint, MI in Context examines the malfeasance and mismanagement that poisoned a city’s water. The authors emphasize the structural forces that engendered the water crisis, and, especially, the long history of racial oppression, racist government policies, and everyday forms of inequality, that shape the life chances for Flint’s residents.
Appropriating Technology
From the vernacular engineering of Latino car design to environmental analysis among rural women to the production of indigenous herbal cures-groups outside the centers of scientific power persistently defy the notion that they are merely passive recipients of technological products and scientific knowledge. This is the first study of how such "outsiders" reinvent consumer products-often in ways that embody critique, resistance, or outright revolt.Contributors: Richard M. Benjamin, Miami U; Hank Bromley, SUNY, Buffalo; Massimiano Bucchi, U of Trento, Italy; Carmen M. Concepcin, U of Puerto Rico; Virginia Eubanks, Rensselaer Polytechnic Institute; Lisa Gitelman, Catholic U; David Albert Mhadi...
Flint Fights Back
An account of the Flint water crisis shows that Flint's struggle for safe and affordable water is part of a broader struggle for democracy. When Flint, Michigan, changed its source of municipal water from Lake Huron to the Flint River, Flint residents were repeatedly assured that the water was of the highest quality. At the switchover ceremony, the mayor and other officials performed a celebratory toast, declaring “Here's to Flint!” and downing glasses of freshly treated water. But as we now know, the water coming out of residents' taps harbored a variety of contaminants, including high levels of lead. In Flint Fights Back, Benjamin Pauli examines the water crisis and the political activ...
Toxic Exposures
The increase in environmentally induced diseases and the loosening of regulation and safety measures have inspired a massive challenge to established ways of looking at health and the environment. Communities with disease clusters, women facing a growing breast cancer incidence rate, and people of color concerned about the asthma epidemic have become critical of biomedical models that emphasize the role of genetic makeup and individual lifestyle practices. Likewise, scientists have lost patience with their colleagues' and government's failure to adequately address environmental health issues and to safeguard research from corporate manipulation. Focusing specifically on breast cancer, asthma...
Street Science
When environmental health problems arise in a community, policymakers must be able to reconcile the first-hand experience of local residents with recommendations by scientists. In this highly original look at environmental health policymaking, Jason Corburn shows the ways that local knowledge can be combined with professional techniques to achieve better solutions for environmental health problems. He traces the efforts of a low-income community in Brooklyn to deal with environmental health problems in its midst and offers a framework for understanding "street science"—decision making that draws on community knowledge and contributes to environmental justice. Like many other low-income urb...
When Smoke Ran Like Water
This text shows that we have the scientific tools to reveal the connection between environment and disease in a way never before possible, and even to predict which chemicals pose the greatest risk. We no longer need to wait for actual human harm as the only proof of harmfulness. Davis describes how the science of environmental epidemiology arose and how environmental toxins affect a broad spectrum of human health, including breast cancer, the health and development of the lungs and even male reproductive capacity. The book shows readers the full picture of how the environment is affecting their health, what they can do about it and why standard approaches to public health need to change.
