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The explosive true story of fraud, embezzlement, and government betrayal. In 2000, the US Centers for Disease Control (CDC) carried out a secret mission to bury, skew, and manipulate data in six vaccine safety studies, in a coordinated effort to control the message that “vaccines do not cause autism.” They did so via secret meetings and backtesting health-care data. The CDC invested tens of millions of dollars in a foreign health-care data analytics startup run by Danish scientist Poul Thorsen, a move to ensure that no link ever surfaced. But fate had other ideas. The agency soon learned it couldn’t control Thorsen. In 2011, the US Justice Department indicted him for the theft of more ...
Is there any justification for the common practice of allocating expensive medical resources to rescue a few from rare diseases, when those resources could be used to treat devastating diseases that affect the many? Does the use of Prozac and other anti-depressants make us inauthentic beings? Is it immoral and irrational to have children? What is the force of examples and counterexamples in bioethics? What are the relevance of moral intuition and the role of empirical evidence in bioethical argument? What notion of “function” underlies accounts of the distinction between normality and disease and between therapy and enhancement? Is there an inherent conflict between research aimed at therapy and research aimed at gaining knowledge, such that the very notion of “therapeutic research” is an oxymoron? The twenty-one chapters in this volume strive, through the use of high quality argument and analysis, to get a good deal clearer concerning a range of issues in bioethics, and a range of issues about bioethics. The essays are provocative, indeed, some quite radical and disturbing, as they call into question many common methodological and substantive assumptions in bioethics.
For readers concerned about LGBTQ rights and the history of U.S. citizenship policies, get the book that Booklist says is "insightful" and "an accessible human story with a happy ending." The January 2018 headline story in the Los Angeles Times was riveting. Andrew from the United States and Elad Dvash-Banks from Israel married in Canada in 2010 when gay couples could not marry in these countries. The couple conceived fraternal twins, Aiden and Ethan, with a Canadian surrogate by means of egg and sperm donation. The two boys were born just four minutes apart. Aiden was conceived with a donated egg and Andrew's sperm cell, and Ethan was conceived with a donated egg (from the same woman) and E...
Today autism has become highly visible. Once you begin to look for it, you realize it is everywhere. Why? We all know the answer or think we do: there is an autism epidemic. And if it is an epidemic, then we know what must be done: lots of money must be thrown at it, detection centers must be established and explanations sought, so that the number of new cases can be brought down and the epidemic brought under control. But can it really be so simple? This major new book offers a very different interpretation. The authors argue that the recent rise in autism should be understood an “aftershock” of the real earthquake, which was the deinstitutionalization of mental retardation in the mid-1...
Information about the symptoms, treatment, and research on Autism spectrum disorders including Autism and Asperger syndrome.
A thoughtful evaluation of the vaccine debate, its history, and its consequences. Since 1990, the number of mandated vaccines has increased dramatically. Today, a fully vaccinated child will have received nearly three dozen vaccinations between birth and age six. Along with the increase in number has come a growing wave of concern among parents about the unintended side effects of vaccines. In Vaccine, Mark A. Largent explains the history of the debate and identifies issues that parents, pediatricians, politicians, and public health officials must address. Nearly 40% of American parents report that they delay or refuse a recommended vaccine for their children. Despite assurances from every m...
Autism spectrum disorders (ASD) constitute a major public health problem, affecting one in every 150 children and their families. Unfortunately, there is little understanding of the causes of ASD, and, despite their broad societal impact, many people believe that the overall research program for autism is incomplete, particularly as it relates to the role of environmental factors. The Institute of Medicine's Forum on Neuroscience and Nervous System Disorders, in response to a request from the U.S. Secretary of Health and Human Services, hosted a workshop called "Autism and the Environment: Challenges and Opportunities for Research." The focus was on improving the understanding of the ways in...
Why the social character of scientific knowledge makes it trustworthy Are doctors right when they tell us vaccines are safe? Should we take climate experts at their word when they warn us about the perils of global warming? Why should we trust science when so many of our political leaders don't? Naomi Oreskes offers a bold and compelling defense of science, revealing why the social character of scientific knowledge is its greatest strength—and the greatest reason we can trust it. Tracing the history and philosophy of science from the late nineteenth century to today, this timely and provocative book features a new preface by Oreskes and critical responses by climate experts Ottmar Edenhofer and Martin Kowarsch, political scientist Jon Krosnick, philosopher of science Marc Lange, and science historian Susan Lindee, as well as a foreword by political theorist Stephen Macedo.
How the love and labor of parents have changed our understanding of autism Autism has attracted a great deal of attention in recent years, thanks to dramatically increasing rates of diagnosis, extensive organizational mobilization, journalistic coverage, biomedical research, and clinical innovation. Understanding Autism, a social history of the expanding diagnostic category of this contested illness, takes a close look at the role of emotion—specifically, of parental love—in the intense and passionate work of biomedical communities investigating autism. Chloe Silverman tracks developments in autism theory and practice over the past half-century and shows how an understanding of autism ha...