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Practical advice on dealing with the condition.
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"On reading an earlier version of this biography, King remarked that it was 'an outstandingly good and at times riveting example of historical research' and commented on the author's 'unprecedented access' to archival sources, and 'unusually frank interviews' with informants."--BOOK JACKET.
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This volume represents a substantially revised and updated 2nd edition of a reference handbook on major structural components of soft connective tissues and a whole slew of heritable diseases of soft connective tissues. The number of clearly identifiable and distinct disorders has grown somewhat since the 1st edition in 2014, e.g., Ehlers-Danlos syndrome has now 13 entities. A brand new syndrome, Meester Loeys syndrome carrying the name of Bart Loeys was added as a companion to Loeys-Dietz syndrome. Numerous variations of cutis laxa and joint mobility disorders have been discovered taking advantage of recent advancements in genetic analysis. We have acquired better understanding of pathogene...