You may have to Search all our reviewed books and magazines, click the sign up button below to create a free account.
A practical guide to reform of the regulatory environment for access to government held data for research.
The emergence of digital platforms and the new application economy are transforming healthcare and creating new opportunities and risks for all stakeholders in the medical ecosystem. Many of these developments rely heavily on data and AI algorithms to prevent, diagnose, treat, and monitor diseases and other health conditions. A broad range of medical, ethical and legal knowledge is now required to navigate this highly complex and fast-changing space. This collection brings together scholars from medicine and law, but also ethics, management, philosophy, and computer science, to examine current and future technological, policy and regulatory issues. In particular, the book addresses the challenge of integrating data protection and privacy concerns into the design of emerging healthcare products and services. With a number of comparative case studies, the book offers a high-level, global, and interdisciplinary perspective on the normative and policy dilemmas raised by the proliferation of information technologies in a healthcare context.
Personhood, in liberal philosophical and legal traditions, has long been grounded in the idea of autonomy and the right to legal capacity. However, in this book, Julia Duffy questions these assumptions and shows how such beliefs exclude and undermine the rights of adults with cognitive disability. Instead, she reinterprets the right to legal capacity through the principle of the interdependence and indivisibility of human rights. In doing so, she compellingly argues that dignity and not autonomy ought to be the basis of personhood. Using illustrative case studies, Duffy demonstrates that the key human rights values of autonomy, dignity and equality can only be achieved by fulfilling a range of interdependent human rights. With this innovative book challenging common assumptions about human rights and personhood, Duffy leads the way in ensuring civil, economic, political, social, and cultural inclusion for adults with cognitive disabilities.
This unique book demonstrates the utility of big data approaches in human geography and planning. Offering a carefully curated selection of case studies, it reveals how researchers are accessing big data, what this data looks like and how such data can offer new and important insights and knowledge.
Featuring contributions from leading scholars of health privacy law, this important volume offers insightful reflection on issues such as confidentiality, privacy, and data protection, as well as analysis in how a range of jurisdictions—including the US, the UK, Europe, South Africa, and Australia—navigate a rapidly developing biomedical environment. While the collection of personal health information offers the potential to drive research and innovation, it also generates complex legal and ethical questions in how this information is used to ensure the rights and interests of individuals and communities are respected. But in many ways laws have struggled to keep pace with technological ...
Examines the law governing consent to medical treatment for trans youth in Australia, England and Wales.
As increasing quantities of health and biological information are generated, the need for us all to consider the human impacts of its ubiquity becomes more urgent than ever. This book explains the ethical imperative to take seriously the potential impacts on our identities of encountering bioinformation about ourselves.
This volume addresses issues related to the threats to human health from exposure to environmental pollutants in the Pacific Region, including how to reduce the production of such pollutants and remove or destroy them when they are produced. It specifically explores how to monitor levels of exposure in human populations and how to evaluate the health consequences of these exposures. Chapters explore the relationships between air quality and asthma, environmental contamination and breast cancer, mercury and neurobehavioral problems, and present information on new technologies for hazardous substance remediation. NOTE: Annals volumes are available for sale as individual books or as a journal. For information on institutional journal subscriptions, please visit www.blackwellpublishing.com/nyas. ACADEMY MEMBERS: Please contact the New York Academy of Sciences directly to place your order (www.nyas.org). Members of the New York Academy of Science receive full-text access to the Annals online and discounts on print volumes. Please visit www.nyas.org/membership/main.asp for more information about becoming a member.
Precision Public Health is a new and rapidly evolving field, that examines the application of new technologies to public health policy and practice. It draws on a broad range of disciplines including genomics, spatial data, data linkage, epidemiology, health informatics, big data, predictive analytics and communications. The hope is that these new technologies will strengthen preventive health, improve access to health care, and reach disadvantaged populations in all areas of the world. But what are the downsides and what are the risks, and how can we ensure the benefits flow to those population groups most in need, rather than simply to those individuals who can afford to pay? This is the first collection of theoretical frameworks, analyses of empirical data, and case studies to be assembled on this topic, published to stimulate debate and promote collaborative work.
Brendan Kennelly's Book of Judas, a 400-page epic poem in twelve parts, became the number one bestselling book in Ireland. As well as receiving rapturous reviews, Brendan Kennelly won the Sunday Independent/Irish Life Award for the book and earned the ultimate accolade of 'Kerryman of the Year'. Not merely lost but irredeemable, Kennelly's bitterly articulate Judas speaks, dreams and murmurs - of past and present, history and myth, good and evil, of men, women and children, and of course money - until we realise that the unspeakable perpetrator of the apparently unthinkable, in penetrating the icy reaches of his own world, becomes a sly, many-voiced critic of ours. The full-sized Book of Judas is no longer available, usurped by The Little Book of Judas, a distillation of that literary monster, purged to its traitorous essence.