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The Ethics of Research Biobanking
  • Language: en
  • Pages: 361

The Ethics of Research Biobanking

Biobanking, i.e. storage of biological samples or data emerging from such samples for diagnostic, therapeutic or research purposes, has been going on for decades. However, it is only since the mid 1990s that these activities have become the subject of considerable public attention, concern and debate. This shift in climate is due to several factors. The purpose of this book is to investigate some of the ethical, legal and social challenges raised by research biobanking in its different modern forms and formats. The issues raised by research biobanking in its modern form can be divided into four main clusters: how biological materials are entered into the bank; research biobanks as institutions; under what conditions researchers can access materials in the bank, and problems concerning ownership of biological materials and of intellectual property arising from such materials; and how the information is collected and stored, e.g. access-rights, disclosure, confidentiality, data security and data protection.

  • Language: en
  • Pages: 172

"Who Owns Our Genes?"

  • Categories: Law

Engelsk tekst. 162 s., hf., 2000 (Nord 2000 ; 11)

Bioethics Education in a Global Perspective
  • Language: en
  • Pages: 221

Bioethics Education in a Global Perspective

  • Type: Book
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  • Published: 2014-09-25
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  • Publisher: Springer

This book critically analyses experiences with bioethics education in various countries across the world and identifies common challenges and interests. It presents ethics teaching experiences in nine different countries and the basic question of the goals of bioethics education. It addresses bioethics education in resource-poor countries, as the conditions and facilities are widely different and set limits and provide challenges to bioethics educators. Further, the question of how bioethics education can be improved is explored by the contributors. Despite the volume of journal publications agreement on bioethics education is rather limited. There are only few examples of core curricula, demonstrating consensus on the contents, goals, methods and assessment of teaching programs. We need ask: How can agreement on the best modalities of bioethics education be promoted?.

Partiality and Justice in Nursing Care
  • Language: en
  • Pages: 139

Partiality and Justice in Nursing Care

Partiality and Justice in Nursing Care examines the conflicting normative claims of partiality and impartiality in nursing care, looking in depth at how to reconcile reasonable concerns for one particular patient with equally important concerns for the maximisation of health-related welfare for all with relevant nursing-care needs, in a resource-limited setting. Drawing on moral philosophy, this book explores how discussions of partiality and impartiality in moral philosophy can have relevance to the professional context of clinical nursing care as well as in nursing ethics in general. It develops a framework for normative nursing ethics that incorporates a notion of permissible partiality, ...

Personalized Medicine in the Making
  • Language: en
  • Pages: 334

Personalized Medicine in the Making

This book offers a multidisciplinary look at the much-debated concept of “personalized medicine”. By combining a humanistic and a scientific approach, the book builds up a multidimensional way to understand the limits and potentialities of a personalized approach in medicine and healthcare. The book reflects on personalized medicine and complex diseases, the relationship between personalized medicine and the new bio-technologies, personalized medicine and personalized nutrition, and on some ethical, political, economic, and social implications of personalized medicine. This volume is of interest to researchers from several disciplines including philosophy, bio-medicine, and the social sciences. Chapter 16, “The Impact of Fantasy” is available open access under a Creative Commons Attribution 4.0 International License via link.springer.com.

Biomedical Research
  • Language: en
  • Pages: 208

Biomedical Research

This publication, the fifth in the Ethical Eye series, contains contributions from a multidisciplinary group of authors from different countries in Europe which examine a range of ethical issues arising from the use of biomedical research. Topics discussed include: the problems of obtaining consent, standards for the selection and recruitment of participants for research, the use of placebos, clinical trials of new medicines or experimental treatments for cancer sufferers, industry-sponsored clinical trials, the internationalisation of medical research, and gender aspects. The publication looks at various international and European standards governing this field including the Helsinki Declaration of the World Medical Association, EU DIrective 2001/20 on pharmaceutical research, and the Council of Europe's Convention on Human Rights and Biomedicine.

PGD and Embryo Selection
  • Language: en
  • Pages: 158

PGD and Embryo Selection

None

Women, Biomedical Research and Art
  • Language: en
  • Pages: 540

Women, Biomedical Research and Art

Die Studie widmet sich intersektionalen Verletztbarkeiten, sozio-geografischen und rassistischen Ungerechtigkeiten sowie dem Traumapotenzial von Reproduktionsmedizin, Menschenhandel und Schwarzmarkt-Organhandel. Mittels eines empirischen, kritisch-diskursanalytischen, künstlerischen und philosophisch-theoretischen Zugangs entwickelt die interdisziplinäre Studie praktische kreative Werkzeuge für eine Pädagogik, die Würde und Integrität betont und die Menschenrechte im Alltag der betroffenen Bevölkerung unterstützt.

Disasters: Core Concepts and Ethical Theories
  • Language: en
  • Pages: 245

Disasters: Core Concepts and Ethical Theories

  • Type: Book
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  • Published: 2018-10-16
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  • Publisher: Springer

This Open Access Book is the first to examine disasters from a multidisciplinary perspective. Justification of actions in the face of disasters requires recourse both to conceptual analysis and ethical traditions. Part 1 of the book contains chapters on how disasters are conceptualized in different academic disciplines relevant to disasters. Part 2 has chapters on how ethical issues that arise in relation to disasters can be addressed from a number of fundamental normative approaches in moral and political philosophy. This book sets the stage for more focused normative debates given that no one book can be completely comprehensive. Providing analysis of core concepts, and with real-world relevance, this book should be of interest to disaster scholars and researchers, those working in ethics and political philosophy, as well as policy makers, humanitarian actors and intergovernmental organizations..

Global Education in Bioethics
  • Language: en
  • Pages: 198

Global Education in Bioethics

  • Type: Book
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  • Published: 2018-06-14
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  • Publisher: Springer

This book presents and elaborates on how the teaching of global ethics in healthcare contributes to furthering ideals of cosmopolitanism: solidarity, equality, respect for differences and concern with what human beings, and specifically patients have in common, regardless of where they live and who they are. Global problems such as pandemic diseases, disasters, lack of care and medication, homelessness and displacement call for global responses. The new area of global bioethics is providing answers by arguing that ethical discourse should first of all criticize the structures of violence and injustice that underlie many threats to global health. Education of health professionals should artic...