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When Jenny Lexhed and her husband have their first child, Lucas, they are living the dream. They’re happily married, they’ve just bought a house, the company they built together from the ground up is starting to blossom. But with the arrival of their son, a feeling of anxiety slips into their life. What starts as a feeling becomes a conviction. Lucas is not like other children. Everything seems to indicate, and psychiatric evaluation concludes, that their son is severely autistic. Will he ever be able to communicate? Jenny vows to do whatever she can to help Lucas connect with his parents and others and live an independent life. Tossed between hope and despair, she begins a frantic effor...
While autism is gaining increasing attention as an important subject of theological inquiry, the maternal experience of caring for a child with autism has had less attention. Traversing issues of gender, embodiment, disability and motherhood, this book explores the distinctness of mothering within the context of autism, examining how theology currently responds to the challenges this lived experience presents. Weaving together an honest reflection on her own experience with analysis of contemporary theological works on disability and motherhood, the book reflects on mothering, and especially mothering of autistic children, as a unique site of struggle and resistance.
Eltern eines Kindes mit Autismus verwenden einen großen Teil ihrer Energie, Zeit, Aufmerksamkeit und finanziellen Möglichkeiten für das Kind, sodass Geschwister oft an den Rand der Familie gedrängt werden und in ihrem sozialen Umfeld zusätzliche Schwierigkeiten entstehen. Eine frühzeitige Intervention kann alle Beteiligten für die Bedürfnisse der Geschwisterkinder sensibilisieren und ermöglicht es, vorbeugende und korrigierende Maßnahmen zu etablieren. Dieses Buch schlägt Angehörigen und beruflich mit autistischen sowie nicht-autistischen Kindern in Beziehung stehenden Personen in der Praxis erprobte Methoden für den Umgang mit autismusspezifischen Besonderheiten auf Geschwisterebene vor. Es zeigt auf, wie Geschwister emotional gestärkt werden können und wie es gelingt, dass sie sich als gleichwertige Familienmitglieder wahrgenommen fühlen. Für Fachleute und Studierende komplementiert das Buch symptombezogenes Fachwissen, indem es die Einsicht vermittelt, wie weitgreifend Autismus das soziale Umfeld beeinflusst.
In jeder Gruppe gibt es Kinder, die die Fachkräfte durch ihr Verhalten, wie z.B. großen Bewegungsdrang, Aggression oder Abgrenzung von anderen Kindern, stärker herausfordern als andere. Wie kann man sie in den pädagogischen Alltag einbinden und förderliche Rahmenbedingungen für ihre Entwicklung schaffen, ohne dass diese Herausforderung eine Überforderung wird? Von der Darstellung der jeweiligen Verhaltensmuster bei Kindern mit auffällig aggressivem Verhalten, ADHS und Autismus-Spektrum-Störung ausgehend, stellt die Autorin sehr praxisbezogen die nötigen entwicklungsfördernden Rahmenbedingungen dar. Es werden konkrete und leicht umsetzbare Möglichkeiten des Umgangs mit herausforderndem Verhalten aufgezeigt. Dieses Wissen hilft letztlich nicht nur dem Kind. Aktives, konzeptgeleitetes Verhalten reduziert auch die Arbeitsbelastung der Fachkräfte, die sich als erfolgreich und wirkungsvoll in ihrer Arbeit erleben können. Jetzt in 3., überarbeiteter Auflage!
Dravet syndrome is a rare and severe type of epilepsy. “Severe myoclonic epilepsy in infancy” was first described in 1978 by Charlotte Dravet, who observed common features: onset in the first year of life, fever sensitivity, multiple seizure types, often including myoclonic seizures, and cognitive deterioration. Subsequent descriptions contributed to delineating a newly recognised epilepsy syndrome. Renzo Guerrini contributed to the knowledge of the genetic basis and response to anti epileptic drugs of Dravet syndrome. New molecules have emerged, and studies on cognitive development have qualified the impairment. Families’ associations have also contributed to a better knowledge of the...
Discover strengths-based strategies to help your child with autism build life skills starting today It can be a challenge to manage life as a special needs parent and feel like you are doing all you can to support your child’s growth and development. Positive Parenting for Autism offers proven techniques for helping your child with autism develop the foundational skills they need to thrive and live a fulfilling life. Using scientifically supported strategies based in applied behavior analysis (ABA), this practical guide provides concrete tools for developing personalized behavior change plans aimed at both increasing your child’s positive behaviors and decreasing unwanted or problem beha...
The incredibly moving and inspiring story about a quest to finally be heard. In Underestimated: An Autism Miracle, Generation Rescue’s cofounder J.B. Handley and his teenage son Jamison tell the remarkable story of Jamison’s journey to find a method of communication that allowed him to show the world that he was a brilliant, wise, generous, and complex individual who had been misunderstood and underestimated by everyone in his life. Jamison’s emergence at the age of seventeen from his self-described “prison of silence” took place over a profoundly emotional and dramatic twelve-month period that is retold from his father’s perspective. The book reads like a spy thriller while allo...
Aims to help children and teenagers understand what it means to have a diagnosis of Asperger syndrome, high functioning autism or pervasive developmental disorder.
“This is a book about autism. Specifically, it is about my autism, which is both like and unlike other people’s autism. But just as much, it is a story about how I emerged from the darkness of it into the beauty of it.” In this elegant and thought-provoking memoir, Dawn Prince-Hughes traces her personal growth from undiagnosed autism to the moment when, as a young woman, she entered the Seattle Zoo and immediately became fascinated with the gorillas. Having suffered from a lifelong inability to relate to people in a meaningful way, Dawn was surprised to find herself irresistibly drawn to these great primates. By observing them and, later, working with them, she was finally able to emerge from her solitude and connect to living beings in a way she had never previously experienced. Songs of the Gorilla Nation is more than a story of autism, it is a paean to all that is important in life. Dawn Prince-Hughes’s evocative story will undoubtedly have a lasting impact, forcing us, like the author herself, to rediscover and assess our own understanding of human emotion.