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This volume grows out of the belief that diversity needs recognition and support from a favourable social environment. More precisely, the different members of diverse societies need recognition and support. This monograph is intended to provide a comparative perspective on the challenges faced in selected European countries (Croatia, Germany, Poland, Slovenia and the UK) with regard to equal access to healthcare and ways of handling them. The authors of the chapters comprising this volume, each within their specialty and in their own way, attempt to identify the different forms and dimensions in which we can be different and the barriers to our flourishing in, and with our differences.
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Although rare diseases have captured public attention in recent decades, the lived experiences of people affected by these conditions remain on the periphery of medical anthropological inquiry. Focusing on Poland, Finland, and Sweden, and foregrounding notions of “rare” or “chronic” disease as an embedded category, this book critically analyzes entanglements between people and families with rare diseases and care practices that involve local healthcare policies, practitioners, and treatment modalities. Drawing on locally grounded case studies, Entanglements of Rare Diseases in the Baltic Sea Region constitutes a unique and important contribution to both global medicine and social science scholarship.