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What the hell happened to my brain?
Kate Swaffer was just 49 years old when she was diagnosed with a form of younger onset dementia. In this book, she offers an all-too-rare first-hand insight into that experience, sounding a clarion call for change in how we ensure a better quality of life for people with dementia. Kate describes vividly her experiences of living with dementia, exploring the effects of memory difficulties, loss of independence, leaving long-term employment, the impact on her teenage sons, and the enormous impact of the dementia diagnosis on her sense of self. Never shying away from difficult issues, she tackles head-on stigma, inadequacies in care and support, and the media's role in perpetuating myths about ...
Living with Dementia
There are many resources available about the cognitive changes and impairments associated with dementia, including Alzheimer's. Little has been written, however, about LIVING with, what for many will be, a long-term condition. This handbook provides information and insights provided bypeople living with dementia and their care partners to help family and friends better understand living with early and moderate symptoms of dementia, and how to best support someone you care about.
For This I Am Grateful
I remember going home to an empty house to try to digest my doctor's news, "You have vascular dementia." I thought to myself, I'm only 55 and I'm already a widow, the worst thing that could ever happen to me. But during my career working in Dementia Care, my co-workers and I had always felt that getting any type of dementia diagnosis would be the worst news a person could receive. Having witnessed the progression in so many people, I knew being a widow was nothing compared to what I was going to have to face. I soon discovered those past experiences would, in fact, help me forge through the coming losses.The diagnosis itself was not the worst of it, finding no help or resources was. I had to...
Living Better with Dementia
What do national dementia strategies, constantly evolving policy and ongoing funding difficulties mean for people living well with dementia? Adopting a broad and inclusive approach, Shibley Rahman presents a thorough critical analysis of existing dementia policy, and tackles head-on current and controversial topics at the forefront of public and political debate, such as diagnosis in primary care, access to services for marginalised groups, stigma and discrimination, integrated care, personal health budgets, personalised medicine and the use of GPS tracking. Drawing on a wealth of diverse research, and including voices from all reaches of the globe, he identifies current policy challenges for living well with dementia, and highlights pockets of innovation and good practice to inform practical solutions for living better with dementia in the future. A unique and cohesive account of where dementia care practice and policy needs to head, and why, and how this can be achieved, this is crucial reading for dementia care professionals, service commissioners, public health officials and policy makers, as well as academics and students in these fields.
Dancing with Dementia
Christine Bryden was a top civil servant and single mother of three children when she was diagnosed with dementia at the age of 46. Dancing with Dementia is a vivid account of her experiences of living with dementia, exploring the effects of memory problems, loss of independence, difficulties in communication and the exhaustion of coping with simple tasks. She describes how, with the support of her husband Paul, she continues to lead an active life nevertheless, and explains how professionals and carers can help. This book is a thoughtful exploration of how dementia challenges our ideas of personal identity and of the process of self-discovery it can bring about.
Dementia Rehabilitation
Rehabilitation helps individuals maintain and optimize independence. Historically, people with dementia have received little rehabilitation and the focus has been on care to replace lost function. Dementia Rehabilitation is a resource for health and social professionals, service planners, policy makers, and academics. The book makes a compelling case for rehabilitation for people with dementia, including the views of people with dementia and the research evidence. For each area of function, the research evidence and relevant theory is summarized, followed by practical information on clinical assessment, and delivery of therapies.
Essentials of Dementia
To provide high quality dementia care, professionals need to be both knowledgeable about dementia and skilled in the provision of care. This book is an introductory reference guide that will help students, professionals and practitioners develop their skills and expertise to better respond to the needs of people with dementia. It sets out information and advice on essential topics, research and evidence-based practice within dementia care in a clear, sensible way. Based on the standard course structure for higher and further dementia education, this wide-ranging textbook covers topics including dementia diagnosis, person-centred care and law, ethics and safeguarding. The new go-to book for the dementia curriculum, it is an invaluable tool for anyone wishing to improve the required core skills and values needed to care for those affected by dementia.
On Vanishing
A New York Times Book Review Editors’ Choice This “beautifully unconventional” book on dementia “reframes our understanding” of Alzheimer’s and aging “with sensitivity and accuracy” (New York Times). Personal stories weave with meditations on history, philosophy, and more in this moving collection of essays for dementia patients and their families. An estimated 50 million people in the world suffer from dementia. Diseases such as Alzheimer’s erase parts of one’s memory but are also often said to erase the self. People don’t simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye....
Living Well with Dementia
This unique guide provides a much needed overview of dementia care. With a strong focus on the importance of patients and families, it explores the multifaceted meaning behind patient wellbeing and its vital significance in the context of national policy.Adopting a positive, evidence-based approach, the book dispels the bleak outlook on dementia ma
Dementia and Place
Giving voice to the lived experiences of people with dementia across the globe, this text highlights the challenges presented as dementia care shifts to a community setting. Contributors address the social aspects of environment and, using a unique 'neighbourhood-centred’ perspective, provide an innovative guide for policy and practice.
