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Improving Palliative Care for Cancer
In our society's aggressive pursuit of cures for cancer, we have neglected symptom control and comfort care. Less than one percent of the National Cancer Institute's budget is spent on any aspect of palliative care research or education, despite the half million people who die of cancer each year and the larger number living with cancer and its symptoms. Improving Palliative Care for Cancer examines the barriersâ€"scientific, policy, and socialâ€"that keep those in need from getting good palliative care. It goes on to recommend public- and private-sector actions that would lead to the development of more effective palliative interventions; better information about currently used interventions; and greater knowledge about, and access to, palliative care for all those with cancer who would benefit from it.
"Please, Do Not Make Us Suffer Any More-"
With support from the Open Society Institute International Palliative Care Initiative, Human Rights Watch released a groundbreaking report on the lack of access to pain relief medicines for millions of patients worldwide. The report, "Please Don't Make Us Suffer Anymore": Access to Pain Treatment as a Human Right, finds that countries can significantly improve access to pain medications by addressing the causes of their poor availability, which include the following: *Failure to put in place functioning supply and distribution systems *Absence of government policies to ensure medicine availability *Insufficient instruction for health care workers *Excessively strict drug-control regulations *Fear of legal sanctions among healthcare workers. "Please Don't Make Us Suffer Anymore" notes that international law requires states to make narcotic drugs available for the treatment of pain while preventing abuse, but that the strong international focus on preventing abuse of such drugs has led many countries to neglect that obligation. The full report is available in PDF format. French, Russian, and Spanish versions are available on the HRW website.
Palliative Care
Palliative Care is the first book to provide a comprehensive understanding of the new field that is transforming the way Americans deal with serious illness. Diane E. Meier, M.D., one of the field's leaders and a recipient of a MacArthur Foundation "genius award" in 2009, opens the volume with a sweeping overview of the field. In her essay, Dr. Meier examines the roots of palliative care, explores the key legal and ethical issues, discusses the development of palliative care, and presents ideas on policies that can improve access to palliative care. Dr. Meier's essay is followed by reprints of twenty-five of the most important articles in the field. They range from classic pieces by some of ...
The Oxford Textbook of Palliative Social Work
"It is so important to advocate for things that may not always seem possible. Getting to work with patients/families at the end of their life is the ultimate honor." - Lauren G Markham, MSW, LCSW, APHSW-C "In this work, one witnesses both depths of human suffering and heights of human transcendence that can inspire both awe and fear. At those times, I have found that surrendering my need to be "an expert" and instead, allow myself to simply be a "human" is the wisest action." - Kerry Irish, LCSW, OSW-C, FAOSW"--
Ethnography as Christian Theology and Ethics
This book is a primary resource in the new and growing field of Christian Ethnography. In response to a variety of critical intellectual currents (post-colonial, post-modern, and post-liberal), scholars in Christian theology and ethics are increasingly taking up the tools of ethnography as a means to ask fundamental moral questions and to make more compelling and credible moral claims. Privileging particularity, rather than the more traditional effort to achieve universal or at least generalizable norms in making claims regarding the Christian life, echoes the most fundamental insight of the Christian tradition - that God is known most fully in Jesus of Nazareth. Echoing this 'scandal of particularity' at the heart of the Christian tradition, theologians and ethicists involved in ethnographic research draw on the particular to seek out answers to core questions of their discipline: who God is and how we become the people we are, how to conceptualize moral agency in relation to God and the world, and how to flesh out the content of conceptual categories such as justice that help direct us in our daily decisions and guiding institutions.
Longevity and Quality of Life
Nations around the world are experiencing a spectacular increase in longevity. Society as a whole is being challenged by issues arising from this revolution in longevity. Although the specter of the loneliness and existential suffering of older citizens is such that some people under the age of 65 find it difficult to conceive of a long-term future, persons over 85 have proven that aging does not necessarily preclude a healthy and productive life. Extraordinary progress in both curative and preventive medicine justifies optimism about the quality of life and state of well-being that can be enjoyed even in great old age. We should look to professionals in diverse fields to develop creative so...
Transforming the Culture of Dying
Transforming the Culture of Dying assesses the establishment of the Project on Death in America and evaluates its the contributions to the development of the palliative care field and end of life care in American society.
Ethical Issues in Neurology
Written by an eminent authority from the American Academy of Neurology's Committee on Ethics, Law, and Humanities, this book is an excellent text for all clinicians interested in ethical decision-making. The book features outstanding presentations on dying and palliative care, physician-assisted suicide and voluntary active euthanasia, medical futility, and the relationship between ethics and the law. New chapters in this edition discuss how clinicians resolve ethical dilemmas in practice and explore ethical issues in neuroscience research. Other highlights include updated material on palliative sedation, advance directives, ICU withdrawal of life-sustaining therapy, gene therapy, the very-low-birth-weight premature infant, the developmentally disabled patient, informed consent, organizational ethics, brain death controversies, and fMRI and PET studies relating to persistent vegetative state.
