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The Patient's Wish to Die
It presents the best available knowledge and research methodologies about patients' wishes at the end-of-life, together with a series of ethical views and a discussion about the clinical implications for palliative care.
Complex Ethics Consultations
Clinical ethicists encounter the most emotionally eviscerating medical cases possible. They struggle to facilitate resolutions founded on good reasoning embedded in compassionate care. This book fills the considerable gap between current texts and the continuing educational needs of those actually facing complex ethics consultations in hospital settings. 28 richly detailed cases explore the ethical reasoning, professional issues, and the emotional aspects of these impossibly difficult consultations. The cases are grouped together by theme to aid teaching, discussion and professional growth. The cases inform any reader who has a keen interest in the choices made in real-life medical dilemmas as well as the emotional cost to those who work to improve the situations. On a more advanced level, this book should be read by ethics committee members who participate in ethics consultations, individual ethics consultants, clinicians who seek education about complex clinical ethics cases, and bioethics students.
On Crime, Society, and Responsibility in the Work of Nicola Lacey
Few contemporary scholars have done more in their work to develop the idea of responsibility than Nicola Lacey. She ranks alongside thinkers and writers such as HLA Hart and Antony Honoré in developing approaches to understanding responsibility. Like these authors, the influence of her work has spread beyond academia to change the perception of responsibility amongst practitioners. Both Hart and Honoré have during their lifetime had volumes dedicated to their work. This book does the same for Nicola Lacey, marking her ongoing influence and accomplishments in the common law world through a collection of essays by leading international scholars reflecting and interrogating her contribution t...
Narrating Illness: Prospects and Constraints
This volume was first published by Inter-Disciplinary Press in 2016. Telling the story of illness emerges from a landscape of pain, grief and loss, but its therapeutic value is indubitable. This volume grapples with the potentials and limitations of such narratives as diverse cultural perceptions and realities are granted the voice to probe into those stories from literary and textual material, as well as empirical, ethnographic, historical, and personal bases. Some of the chapters draw upon the capacity of storytelling to heal bodies and souls, whereas others provide an important corrective to this overwhelmingly optimistic portrayal by focusing on the limits of storytelling and narrative to address physical and psychic trauma. Despite the different approaches, what ties these chapters together is a more focused textual and contextual analysis of the intersection between forms of storytelling and sharing the experience of illness as studied and witnessed and sometimes even lived by the authors of the volume.
Assisted Suicide and the European Convention on Human Rights
Locating assisted suicide within the broader medical end-of-life context and drawing on the empirical data available from the increasing number of permissive jurisdictions, this book provides a novel examination of the human rights implications of the prohibition on assisted suicide in England and Wales and beyond. Assisted suicide is a contentious topic and one which has been the subject of judicial and academic debate internationally. The central objective of the book is to approach the question of the ban’s compatibility with the European Convention on Human Rights afresh; freed from the constraints of the existing case law and its erroneous approach to the legal issues and selective re...
Contemporary European Perspectives on the Ethics of End of Life Care
This book examines the ethics of end of life care, focusing on the kinds of decisions that are commonly made in clinical practice. Specific attention is paid to the intensification of treatment for terminal symptoms, particularly pain relief, and the withdrawal and withholding of care, particularly life-saving or life-prolonging medical care. The book is structured into three sections. The first section contains essays examining end of life care from the perspective of moral theory and theology. The second sets out various conceptual terms and distinctions relevant to decision-making at the end of life. The third section contains chapters that focus on substantive ethical issues. This format not only provides for a comprehensive analysis of the ethical issues that arise in the context of end of life care but allows readers to effectively trace the philosophical, theological and conceptual underpinnings that inform their specific interests. This work will be of interest to scholars working in the area as well as clinicians, specialists and healthcare professionals who encounter these issues in the course of their practice.
Voices of Illness: Negotiating Meaning and Identity
This book is a scholarly collection of interdisciplinary perspectives and practices that examine the positive potential of attending to the voices and stories of those who live and work with illness in real world settings. Its international contributors offer case studies and research projects illustrating how illness can disrupt, highlight and transform themes in personal narratives, forcing the creation of new biographies. As exercises in narrative development and autonomy, the evolving content and expression of illness stories are crucial to our understanding of the lived experience of those confronting life changes. The international contributors to this volume demonstrate the importance of hearing, understanding and effectively liberating voices impacted by illness and change. Contributors include Tineke Abma, Peter Bray, Verusca Calabria, Agnes Elling, Deborah Freedman, Alexandra Fidyk, Justyna Jajszczok, Naomi Krüger, Annie McGregor, Pam Morrison, Miranda Quinney, Yomna Saber, Elena Sharratt, Victorria Simpson-Gervin, Hans T. Sternudd, Mirjam Stuij, Anja Tramper, Alison Ward and Jane Youell.
Praxis der Achtsamkeit
Der Spruch "yes, we care" zeigt: Gesellschaftlich gibt es ein großes Interesse an Achtsamkeit, Sorge und Verantwortung. Dennoch lässt die philosophische Ethik diese scheinbar privaten Themen meist unberücksichtigt. Das Buch eröffnet neue Perspektiven, indem es die in verschiedenen europäischen Ländern entwickelte Ethik der Achtsamkeit und Sorge - "Ethics of Care" - transdisziplinär präsentiert. Im Zentrum stehen die Fragen, wie Versorgung gelingend zu gestalten ist und wie der Umgang mit menschlicher Verletzbarkeit und Abhängigkeit unser politisches Zusammenleben bestimmt. Mit Beiträgen unter anderem von Marian Barnes, Sophie Bourgault, Mieke Grypdonck, Helen Kohlen, Sandra Laugier, Christoph Rehmann- Sutter, Andrew Sayer, Christina Schües, Hilal Sezgin und Helena Sensöta.
Codes of Ethics and Ethical Guidelines
This book investigates how ethics generally precedes legal regulation, and looks at how changes in codes of ethics represent an unparalleled window into the research, innovation, and emerging technologies they seek to regulate. It provides case studies from the fields of engineering, science, medicine and social science showing how professional codes of ethics often predate regulation and help shape the ethical use of emerging technologies and professional practice. Changes in professional ethics are the crystallization of ongoing conversation in scientific and professional fields about how justice, privacy, safety and human rights should be realized in practice where the law is currently silent. This book is a significant addition to this area of practical and professional ethics and is of particular interest to practitioners, scholars, and students interested in the areas of practical and applied ethics.
Sterbenarrative
Vom eigenen und fremden Sterben zu erzählen, ist populärer denn je. Oft sind es unheilbar Erkrankte, die erzählend von ihrem nahen Lebensende berichten und es auf diese Weise gestalten. Doch auch Hinterbliebene und professionelle Begleiterinnen und Begleiter erzählen vom Sterben. Die Lebensendforschung hat die Bedeutung des Erzählens am Lebensende seit Langem erkannt. Dennoch sind die Eigentümlichkeiten von Sterbenarrativen bislang nur punktuell in den Blick gekommen. Der vorliegende Band lotet das Erzählen am und vom Lebensende aus unterschiedlichen wissenschaftlichen, ethischen und praktischen Perspektiven aus. Was zeichnet dieses Erzählen aus? Was unterscheidet Sterbeerzählungen von breiter angelegten biographischen Narrationen und insbesondere von Krankheitserzählungen? Ist die Rede von Sterbenarrativen geeignet, die vielfältigen kontextuell bestimmten Formen des Erzählens vom Sterben auf erzählgrammatischer Ebene zu bündeln?
