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Data Paradoxes
Why healthcare cannot—and should not—become data-driven, despite the many promises of intensified data sourcing. In contemporary healthcare, everybody seems to want more data, of higher quality, on more people, and to use this data for a wider range of purposes. In theory, such pervasive data collection should lead to a healthcare system in which data can quickly, efficiently, and unambiguously be interpreted and provide better care for patients, more efficient administration, enhanced options for research, and accelerated economic growth. In practice, however, data are difficult to interpret and the many purposes often undermine one another. In this book, anthropologist and STS scholar ...
Exchanging Human Bodily Material: Rethinking Bodies and Markets
This book addresses the debate usually tagged as being about ’markets in human body parts’ which is antagonistically divided into pro-market and anti-market positions. The author provides a set of propositions about how to approach this and shows a way out of the concrete impasse of it. Assumptions about markets and bodies that characterize this debate are analyzed and described while the author argues that these assumptions are in fact constitutive for exchanges of human bodily material – but in unacknowledged ways. It is concluded that what we need is a different analytical approach to better understand the mechanisms at play when organizations exchange organs, tissues and cells for use in transplantation and fertility medicine.
Explorations in Baltic Medical History, 1850-2015
Examines medical history in northern Europe from 1850 to 2015 and sheds new light on the circulation of medical knowledge in that region
The Palgrave Handbook of the Anthropology of Technology
This Handbook offers an overview of the thriving and diverse field of anthropological studies of technology. It features 39 original chapters, each reviewing the state of the art of current research and enlivening the field of study through ethnographic analysis of human-technology interfaces, forms of social organisation, technological practices and/or systems of belief and meaning in different parts of the world. The Handbook is organised around some of the most important characteristics of anthropological studies of technology today: the diverse knowledge practices that technologies involve and on which they depend; the communities, collectives, and categories that emerge around technolog...
Healthcare Activism
Healthcare has undergone major changes in personalization, marketization, and digitalization in recent decades. Through conceptual and empirical studies from a variety of healthcare contexts, this book explores the role of activists and civil society in defining and defending the collective good in healthcare and its changing landscape.---
Data Paradoxes
Why healthcare cannot—and should not—become data-driven, despite the many promises of intensified data sourcing. In contemporary healthcare, everybody seems to want more data, of higher quality, on more people, and to use this data for a wider range of purposes. In theory, such pervasive data collection should lead to a healthcare system in which data can quickly, efficiently, and unambiguously be interpreted and provide better care for patients, more efficient administration, enhanced options for research, and accelerated economic growth. In practice, however, data are difficult to interpret and the many purposes often undermine one another. In this book, anthropologist and STS scholar ...
Genetic Databases
Genetic Databases offers a timely analysis of the underlying tensions, contradictions and limitations of the current regulatory frameworks for, and policy debates about, genetic databases. Drawing on original empirical research and theoretical debates in the fields of sociology, anthropology and legal studies, the contributors to this book challenge the prevailing orthodoxy of informed consent and explore the relationship between personal privacy and the public good. They also consider the multiple meanings attached to human tissue and the role of public consultations and commercial involvement in the creation and use of genetic databases. The authors argue that policy and regulatory frameworks produce a representation of participation that is often at odds with the experiences and understandings of those taking part. The findings present a serious challenge for public policy to provide mechanisms to safeguard the welfare of individuals participating in genetic databases.
Personalized Medicine in the Making
This book offers a multidisciplinary look at the much-debated concept of “personalized medicine”. By combining a humanistic and a scientific approach, the book builds up a multidimensional way to understand the limits and potentialities of a personalized approach in medicine and healthcare. The book reflects on personalized medicine and complex diseases, the relationship between personalized medicine and the new bio-technologies, personalized medicine and personalized nutrition, and on some ethical, political, economic, and social implications of personalized medicine. This volume is of interest to researchers from several disciplines including philosophy, bio-medicine, and the social sciences. Chapter 16, “The Impact of Fantasy” is available open access under a Creative Commons Attribution 4.0 International License via link.springer.com.
Cryopolitics
The social, political, and cultural consequences of attempts to cheat death by freezing life. As the planet warms and the polar ice caps melt, naturally occurring cold is a resource of growing scarcity. At the same time, energy-intensive cooling technologies are widely used as a means of preservation. Technologies of cryopreservation support global food chains, seed and blood banks, reproductive medicine, and even the preservation of cores of glacial ice used to study climate change. In many cases, these practices of freezing life are an attempt to cheat death. Cryopreservation has contributed to the transformation of markets, regimes of governance and ethics, and the very relationship betwe...
Life on Ice
Preface: frozen spirits -- Introduction: within cold blood -- The technoscience of life at low temperature -- Latent life in biomedicine's ice age -- Temporalities of salvage -- "As yet unknown": life for the future -- "Before it's too late": life from the past -- Collecting, maintaining, reusing, and returning -- Managing the cold chain: making life mobile -- When futures arrive: lives after time -- Epilogue: thawing spirits
