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Spastic Diplegia--Bilateral Cerebral Palsy
"A must-read for professionals, parents, and the individual with CP."-Deborah Gaebler-Spira, MDAn empowering and evidence-based guide for living a full life with spastic diplegia-bilateral cerebral palsy."This detailed and practical book on spastic diplegia, written by a parent in conjunction with medical practitioners at Gillette, is simply brilliant and fills a huge gap."-Lori Poliski, parentCerebral palsy (CP) is the most common cause of childhood-onset lifelong physical disability. Approximately one-third of those with CP have the subtype spastic diplegia-also known as bilateral spastic CP, or simply bilateral CP. An estimated 6 million worldwide have spastic diplegia. Until now, there h...
Pure Grit
"A must-read" --Julie Dussliere, Chief of Paralympic Sport, U.S. Olympic & Paralympic Committee Nineteen people from across the globe, ranging in age from twenty to seventy-plus, tell their stories of living and thriving in diverse fields -- in sport, the arts, medicine, business and more. With refreshing frankness, they share their successes along with their struggles -- grit is the one characteristic they all have in common. These are not stories of people overcoming disability -- they're stories of people accommodating disability while pursuing their dreams. Pure Grit shines a light on boundless possibility whatever the individual challenge. "Pure Grit highlights the lived experience of r...
Understanding Cerebral Palsy
A great starting point for parents and professionals when they first encounter cerebral palsy, this book provides essential information on causes, types, symptoms and treatments as well as practical tips on everyday considerations such as communication and diet. This positive handbook will help readers more fully understand cerebral palsy.
Cerebral Palsy
When a child has a health problem, parents want answers. But when a child has cerebral palsy, the answers don't come quickly. A diagnosis of this complex group of chronic conditions affecting movement and coordination is difficult to make and is typically delayed until the child is eighteen months old. Although the condition may be mild or severe, even general predictions about long-term prognosis seldom come before the child's second birthday. Written by a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children, this authoritative resource provides parents and families with vital information that can help them cope with uncertainty. Thoroughl...
Trapped
Living in the Belgian Congo with her husband in the 1960s, Fran’s mother became pregnant with a daughter. However, right after she gave birth in the hospital, she felt strange. Unbeknownst to anyone, another daughter was on the way, but before anybody responded, an hour had passed. Because of the delay, Fran was born with cerebral palsy. Growing up with her siblings in Africa, Fran always felt different. When everyone else was playing and having fun, she would watch and wish she could join in. After the family moved to Scotland and Fran grew older, her hurt turned into anger, self-hatred, and suicidal depression. Then one day, someone looked at her and saw a woman to love, and that was the start of her journey to self-acceptance. Fran has written the painful truth about her life to help readers understand how disabled adults really feel. In her revealing account, she shows just how hard it is to maintain the appearance of a “normal” life. More importantly, out of her million and one mistakes have come lessons in real acceptance, peace, and joy, which she would like to share with her readers.
Hand Therapy in Children with Cerebral Palsy: A Practical Approach for Parents, Therapists, and Other Healthcare Professionals Handling Children with
The book, " Hand therapy in children with cerebral palsy", is a concise practical book for parents, practising paediatric therapists, and other healthcare professionals. The book is an informative resource on the practical aspects of improving hand function in children with the spastic type of cerebral palsy including, monoplegia, hemiplegia, diplegia, and spastic quadriplegia. The book deals in detail with the typical development, evaluation, and identification of abnormal patterns of hand function in children with spastic cerebral palsy. The concepts of therapeutic intervention and handling of the child have been well explained and presented with pictures wherever necessary. This book is c...
The Boy Who Could Run But Not Walk
In this groundbreaking book, Dr. Karen Pape tells the story of how some children with early brain damage astounded everyone around them. The brain injury they suffered at or near birth had led to motor problems such as the awkward gait we associate with cerebral palsy. Yet they were able to run, kick a soccer ball, tap dance, and play tennis. This was not supposed to happen. It ran counter to the prevailing belief that the brain is hardwired and fixed. When Dr. Pape first shared her remarkable findings, she ran into fierce opposition from mainstream medicine. Yet this courageous neonatologist didn't back down. In her clinical practice, Pape helped many young brain-damaged children to signifi...
The Identification and Treatment of Gait Problems in Cerebral Palsy
The only book to deal specifically with the treatment of gait problems in cerebral palsy, this comprehensive, multi-disciplinary volume will be invaluable for all those working in the field of cerebral palsy and gait (neurologists, therapists, physiatrists, orthopaedic and neurosurgeons, and bioengineers). The book is divided into two parts. The first is designed to help the reader evaluate and understand a child with cerebral palsy. It deals with neurological control, musculoskeletal growth, and normal gait, as well as cerebral injury, growth deformities and gait pathology in children with cerebral palsy. The second section is a comprehensive overview of management. It emphasizes the most f...
The Cerebral Palsy Tool Kit
The Cerebral Palsy Tool Kit was created to help you sort through the initial emotions in response to your child or loved one receiving a diagnosis of CP and to answer your questions and concerns related to CP. It will guide you through the initial diagnosis period, direct you to other helpful resources and provide information to you about the different approaches to treating and managing CP.
Gross Motor Function Measure (GMFM-66 & GMFM-88) User's Manual
The third edition of the Gross Motor Function Measure (GMFM-66 & GMFM-88) User’s Manual has retained the information contained in the original 2002 and 2013 publications which included the conceptual background to the development of the GMFM, and the administration and scoring guidelines for people to be able to administer this clinical and research assessment tool appropriately. This includes information on the development and validation of two abbreviated methods of estimating GMFM-66 scores using the GMFM-66- Item sets (GMFM-66- IS) and the GMFM-66- B&C (Basal & Ceiling) and a chapter providing a longitudinal case illustration of how the measure and the short forms of the GMFM can be applied and interpreted in clinical practice. The new edition includes information and an Appendix on the updated version of the Gross Motor Ability Estimator scoring program (GMAE-3), which is available through the GMFM App+ (see the CanChild website at (https://www.canchild.ca/en/shop/38-the-gross-motor-function-measure-app).
