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For the Sake of the Children
For the Sake of the Children examines the social organization of responsibility by asking who takes responsibility for critically ill newborns. Drawing on medical records and interviews with parents and medical staff, the authors take us into two neonatal intensive care units, showing us the traumas of extreme medical measures and the sufferings of infants. The accounts are by turns heroic and disturbing as we see people trying to take charge of these infants' care, thinking about long-term plans, redefining their roles as adults and parents, and coping with sometimes awful contingencies. Rather than treating responsibility as an ethical issue, the authors focus on how responsibility is socially produced and sustained. The authors ask: How do staff members encourage parents to take responsibility, but keep them from interfering in medical matters, and how do parents encourage staff vigilance when they are novices attempting to supervise the experts? The authors conclude that it is not sufficient simply to be responsible individuals. Instead, we must learn how to be responsible in an organizational world, and organizations must learn how to support responsible individuals.
The First Year Out
Wild parties, late nights, and lots of sex, drugs, and alcohol. Many assume these are the things that define an American teenager’s first year after high school. But the reality is really quite different. As Tim Clydesdale reports in The First Year Out, teenagers generally manage the increased responsibilities of everyday life immediately after graduation effectively. But, like many good things, this comes at a cost. Tracking the daily lives of fifty young people making the transition to life after high school, Clydesdale reveals how teens settle into manageable patterns of substance use and sexual activity; how they meet the requirements of postsecondary education; and how they cope with ...
Entanglements of Rare Diseases in the Baltic Sea Region
Drawing on ethnographic studies of the lived experiences of people with rare diseases, this volume critically examines rare, chronic diseases in the context of care, kinship, and technologies, providing in-depth analyses of local worlds that usually remain at the peripheries of medical anthropological inquiry.
The Making of Pro-life Activists
How do people become activists for causes they care deeply about? Many people with similar backgrounds, for instance, fervently believe that abortion should be illegal, but only some of them join the pro-life movement. By delving into the lives and beliefs of activists and nonactivists alike, Ziad W. Munson is able to lucidly examine the differences between them. Through extensive interviews and detailed studies of pro-life organizations across the nation, Munson makes the startling discovery that many activists join up before they develop strong beliefs about abortion—in fact, some are even pro-choice prior to their mobilization. Therefore, Munson concludes, commitment to an issue is often a consequence rather than a cause of activism. The Making of Pro-life Activists provides a compelling new model of how people become activists while also offering a penetrating analysis of the complex relationship between religion, politics, and the pro-life movement. Policy makers, activists on both sides of the issue, and anyone seeking to understand how social movements take shape will find this book essential.
From Marriage to the Market
Publisher description
Faith in Action
Over the past fifteen years, associations throughout the U.S. have organized citizens around issues of equality and social justice, often through local churches. But in contrast to President Bush's vision of faith-based activism, in which groups deliver social services to the needy, these associations do something greater. Drawing on institutions of faith, they reshape public policies that neglect the disadvantaged. To find out how this faith-based form of community organizing succeeds, Richard L. Wood spent several years working with two local groups in Oakland, California—the faith-based Pacific Institute for Community Organization and the race-based Center for Third World Organizing. Comparing their activist techniques and achievements, Wood argues that the alternative cultures and strategies of these two groups give them radically different access to community ties and social capital. Creative and insightful, Faith in Action shows how community activism and religious organizations can help build a more just and democratic future for all Americans.
Lesser Harms
Research physicians face intractable dilemmas when they consider introducing new medical procedures. Innovations carry the promise of preventing or curing life-threatening diseases, but they can also lead to injury or even death. How have clinical scientists made high-stakes decisions about undertaking human tests of new medical treatments? In Lesser Harms, Sydney Halpern explores this issue as she examines vaccine trials in America during the early and mid-twentieth century. Today's scientists follow federal guidelines for research on human subjects developed during the 1960s and 1970s. But long before these government regulations, medical investigators observed informal rules when conducti...
Behind Closed Doors
Drwaing on extensive archival sources, Laura Stark reconstructs the daily lives of scientists, lawyers, administrators, and research subjects working - and 'warring' - on the campus of the National Institutes of Health, where they first wrote the rules for the treatment of human subjects.
Surrogate Motherhood and the Politics of Reproduction
In an analysis of legislative responses to surrogacy in New York and California, the author explores how discourses about gender, family, race, genetics, rights, and choice have shaped policies aimed at this issue. She examines the views of legislators, women's organizations, religious groups, the media, and others.
Managing Madness in the Community
While mental illness and mental health care are increasingly recognized and accepted in today’s society, awareness of the most severely mentally ill—as well as those who care for them—is still dominated by stereotypes. Managing Madness in the Community dispels the myth. Readers will see how treatment options often depend on the social status, race, and gender of both clients and carers; how ideas in the field of mental health care—conflicting priorities and approaches—actually affect what happens on the ground; and how, amid the competing demands of clients and families, government agencies, bureaucrats and advocates, the fragmented American mental health system really works—or d...
