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Dementia across cultural borders
Introduction: Today’s multicultural society has resulted in major changes, with healthcare undergoing significant modifications. Healthcare workers and patients are increasingly confronted with “cultural” backgrounds other than their own. The world’s population is ageing, and the number of people with dementia is growing, resulting in a growing number of older people with a foreign background whose care needs have increased at different rates. Migration does not only mean moving from one place to another; it also involves the transition of an individual’s lifestyle, life views, social and economic adjustments that may lead to certain changes. These transitions from the “old” to...
Entangled Narratives
As people are living longer on average than ever before, the number of those with dementia will increase. Because many will live a considerable time at home with their diagnosis, we need to know more about the ways people can adapt to and learn to live with dementia in their everyday lives. Lars-Christer Hyd n argues in this book that to do so will involve re-imagining what dementia really is and what it can mean to the afflicted and their loved ones. One of the most important everyday opportunities for sharing experiences is the simple act of storytelling. But when someone close to you gradually loses the ability to tell stories and cherish the shared history you have together, this is seen...
Diversity, Inclusion and Citizenship in Scandinavia
Diversity, inclusion and citizenship are highly contested concepts. This book sheds light on how the traditionally homogeneous welfare-states of Scandinavia struggle to develop as democratic societies in the globalisation era. In Denmark, Norway and Sweden, migration from all parts of the world continues to challenge the idea of social citizenship—highly endorsed in the Scandinavian tradition. The volume brings new perspectives on immigration and integration strategies employed by the three countries, and their consequences for social and political relations. Presenting in-depth analyses, based on up-to-date empirical data, the 19 authors scrutinise a number of dilemmas related to diversit...
Social Research Methods in Dementia Studies
Traditionally, the most preferred social research methods in dementia studies have been interviews, focus groups and non-participant observations. Most of these methods have been used for a long time by researchers in other social research fields, but their application to the field of dementia studies is a relatively new phenomenon. A ground-breaking book, Social Research Methods in Dementia Studies shows researchers how to adapt their methods of data collection to address the individual needs of someone who is living with dementia. With an editorial team that includes Ann Johnson, a trained nurse and person living with dementia, this enlightening volume mainly draws its contents from two in...
Living With Dementia
Traditionally, dementia has been defined primarily in terms of loss: loss of cognitive and communicative competencies, loss of identity, loss of personal relationships. People living with dementia have been portrayed as increasingly dependent on others, with their loved ones seen more as care givers than as spouses, children and relatives. However, in the last two decades this view of the person living with dementia as an 'empty vessel' has been increasingly challenged, and the focus has shifted from one of care to one of helping people to live with dementia. With contributions from an international range of expert authors, Living with Dementia strongly advocates this new perspective through...
Characterising Needs in Health Care Priority Setting
The focus of this thesis is needs in the context of health care priority setting. The notion of needs has a strong standing in health care policy; however, how the idea should be understood more specifically and how it should guide decisions about priority setting remain contentious issues. The aim of this thesis is to explore how needs should be characterised in health care priority setting. This matter is approached by, first, exploring and developing the conceptual structure of health care needs, and second, discussing and suggesting solutions to normative questions that arise when needs are characterised as a distributive principle. In the first article, the conceptual structure of needs...
Selbstsorge bei Demenz
Dieser Band erkundet Möglichkeiten der Selbstsorge bei Demenz. Die Beiträge untersuchen alltägliche Dimensionen des Umgangs mit dieser Erkrankung. Sie haben das Ziel, Lebenslagen von Betroffenen und von ihren Angehörigen zu verbessern. Dafür nehmen sie unterschiedliche Perspektiven und Schwerpunkte ein. Alle Beiträge sind jedoch einem Forschungs- und Praxiskontext verpflichtet, der das Person-Sein und die Würde von Menschen mit Demenz betont. Der Band spricht sich grundlegend dafür aus, von Demenz betroffene Menschen nicht nur als Sorge- oder Pflegebedürftige wahrzunehmen, sondern sie auch als Personen anzuerkennen, die ihr Leben und ihr Umfeld aktiv (mit)gestalten.
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