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Part detective story, part exposé and part travelogue, this book investigates one of the signature biotech stories of our time and, in doing so, opens a window onto the world of genome science. Fortun examines how deCODE Genetics in Iceland became one of the wealthiest, and most scandalous, companies of its kind.
Messy. Clumsy. Volatile. Exciting. These words are not often associated with the sciences, which for most people still connote exactitude, elegance, reliability, and a rather plodding certainty. But the real story is something quite different. The sciences are less about the ability to know and to control than they are about the unleashing of new forces, new capacities for changing the world. The sciences as practiced exist not in some pristine world of “objectivity,” but in what Mike Fortun and Herb Bernstein call “the muddled middle.” This book explores the way science makes sense of the world and how the world makes sense of science. It is also about politics and culture--how thes...
This book provides an inventory of modes of inquiry for ethnographic research and presents fieldwork as an act of relational invention. It advances contemporary debates in ethnography by arguing that the empirical practice of anthropology is and has always been an inventive activity. Bringing together contributions from scholars across the world, the volume offers an expansive vision of the resourcefulness that anthropologists unfold in their empirical investigations by compiling inventive social and material techniques, or field devices, for anthropological inquiry. The chapters seek to inspire both novel and experienced practitioners of ethnography to venture into the many possibilities of fieldwork, to demonstrate the essential creative and inventive practices neglected in traditional accounts of ethnography, and to invite anthropologists to confidently engage in inventive fieldwork practices.
Ordinary Genomes is an ethnography of genomics, a global scientific enterprise, as it is understood and practiced in the Netherlands. Karen-Sue Taussig’s analysis of the Dutch case illustrates how scientific knowledge and culture are entwined: Genetics may transform society, but society also transforms genetics. Taussig traces the experiences of Dutch people as they encounter genetics in research labs, clinics, the media, and everyday life. Through vivid descriptions of specific diagnostic processes, she illuminates the open and evolving nature of genetic categories, the ways that abnormal genetic diagnoses are normalized, and the ways that race, ethnicity, gender, and religion inform diag...
For more than two decades, anthropologists have wrestled with new digital technologies and their impacts on how their data are collected, managed, and ultimately presented. Anthropological Data in the Digital Age compiles a range of academics in anthropology and the information sciences, archivists, and librarians to offer in-depth discussions of the issues raised by digital scholarship. The volume covers the technical aspects of data management—retrieval, metadata, dissemination, presentation, and preservation—while at once engaging with case studies written by cultural anthropologists and archaeologists returning from the field to grapple with the implications of producing data digitally. Concluding with thoughts on the new considerations and ethics of digital data, Anthropological Data in the Digital Age is a multi-faceted meditation on anthropological practice in a technologically mediated world.
This collection of anthropology of science essays explores the new forms of capital, markets, ethical, legal, and intellectual property concerns associated with new forms of research in the life sciences.
Traveling with Sugar reframes the rising diabetes epidemic as part of a five-hundred-year-old global history of sweetness and power. Amid eerie injuries, changing bodies, amputated limbs, and untimely deaths, many people across the Caribbean and Central America simply call the affliction “sugar”—or, as some say in Belize, “traveling with sugar.” A decade in the making, this book unfolds as a series of crónicas—a word meaning both slow-moving story and slow-moving disease. It profiles the careful work of those “still fighting it” as they grapple with unequal material infrastructures and unsettling dilemmas. Facing a new incarnation of blood sugar, these individuals speak back to science and policy misrecognitions that have prematurely cast their lost limbs and deaths as normal. Their families’ arts of maintenance and repair illuminate ongoing struggles to survive and remake larger systems of food, land, technology, and medicine.
Late Editions 8 is the final volume in the annual series devoted to documenting the diverse social and cultural transitions of the fin-de-siècle just past into the twenty-first century. Through the innovative use of conversations and interviews, this series has ranged over many topics in many places, including corporations, media, science and technology, government, political culture, journalism, and social movements, always offering access to the points of view and experiences of people engaged in crucial processes of change. The book begins with a fascinating, at times poignant, look back at the inception and progress of the series, in which the contributors reflect on how the shifting co...
Case studies exploring how experts' encounters with environmental justice are changing technical and scientific practice. Over the course of nearly thirty years, the environmental justice movement has changed the politics of environmental activism and influenced environmental policy. In the process, it has turned the attention of environmental activists and regulatory agencies to issues of pollution, toxics, and human health as they affect ordinary people, especially people of color. This book argues that the environmental justice movement has also begun to transform science and engineering. The chapters present case studies of technical experts' encounters with environmental justice activis...