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The Cambridge Handbook of Health Research Regulation
The definitive reference guide to designing scientifically sound and ethically robust medical research, considering legal, ethical and practical issues.
Law and Legacy in Medical Jurisprudence
Introduction and investigation of the concept - and utility - of legacy in the field of medical jurisprudence.
Novel Beings
Novel Beings is a forward-looking exploration into the divide between proactive and reactive regulatory approaches to the cross-section of biotechnology and artificial intelligence (AI) research. Addressing an innovative area of academic study, Novel Beings questions how this research, which has the potential to create new forms of morally valuable life, could be regulated.
Regulatory Stewardship of Health Research
This timely book examines the interaction of health research and regulation with law through empirical analysis and the application of key anthropological concepts to reveal the inner workings of human health research. Through ground-breaking empirical inquiry, Regulatory Stewardship of Health Research explores how research ethics committees (RECs) work in practice to both protect research participants and promote ethical research. This thought-provoking book provides a new perspective on the regulation of health research by demonstrating how RECs and other regulatory actors seek to fulfil these two functions by performing a role of ‘regulatory stewardship’.
Embodied Narratives
As increasing quantities of health and biological information are generated, the need for us all to consider the human impacts of its ubiquity becomes more urgent than ever. This book explains the ethical imperative to take seriously the potential impacts on our identities of encountering bioinformation about ourselves.
Technology, Innovation and Healthcare
This timely book emphasizes the importance of regulation in enabling and channelling innovation at a time when technology is increasingly embedded in healthcare. It considers the adequacy of current regulatory approaches, identifying apparent gaps, risks and liabilities, and discusses how these might be collectively addressed. The authors present possible solutions that balance the protection and promotion of public trust in healthcare against enabling technological progress and disruptive innovation.
Figure
This open access book shows how figures, figuring, and configuration are used to understand complex, contemporary problems. Figures are images, numbers, diagrams, data and datasets, turns-of-phrase, and representations. Contributors reflect on the history of figures as they have transformed disciplines and fields of study, and how methods of figuring and configuring have been integral to practices of description, computation, creation, criticism and political action. They do this by following figures across fields of social science, medicine, art, literature, media, politics, philosophy, history, anthropology, and science and technology studies. Readers will encounter figures as various as Je Suis Charlie, #MeToo, social media personae, gardeners, asthmatic children, systems configuration management and cloud computing – all demonstrate the methodological utility and contemporary relevance of thinking with figures. This book serves as a critical guide to a world of figures and a creative invitation to “go figure!”
Mason and Mccall Smith's Law and Medical Ethics
Trusted for over 40 years for its authoritative account of medical law, this text provides the right balance between in-depth legal coverage and analysis of ethical issues.This classic textbook focuses on medical law and its relationship with medical practice and modern ethics. It provides thorough coverage of all topics found on medical law courses, and in-depth analysis of recent court decisions and legislation, encouraging students to thinkcritically about this area of study. - Covers the whole field of modern ethical medical practice, making the book suitable for use on all undergraduate and postgraduate medicallaw courses- Clearly sets a diversity of views in ethical debates, and offers...
Medical Data Privacy Handbook
This handbook covers Electronic Medical Record (EMR) systems, which enable the storage, management, and sharing of massive amounts of demographic, diagnosis, medication, and genomic information. It presents privacy-preserving methods for medical data, ranging from laboratory test results to doctors’ comments. The reuse of EMR data can greatly benefit medical science and practice, but must be performed in a privacy-preserving way according to data sharing policies and regulations. Written by world-renowned leaders in this field, each chapter offers a survey of a research direction or a solution to problems in established and emerging research areas. The authors explore scenarios and techniq...
Data Protection and Privacy: (In)visibilities and Infrastructures
This book features peer reviewed contributions from across the disciplines on themes relating to protection of data and to privacy protection. The authors explore fundamental and legal questions, investigate case studies and consider concepts and tools such as privacy by design, the risks of surveillance and fostering trust. Readers may trace both technological and legal evolution as chapters examine current developments in ICT such as cloud computing and the Internet of Things. Written during the process of the fundamental revision of revision of EU data protection law (the 1995 Data Protection Directive), this volume is highly topical. Since the European Parliament has adopted the General ...
