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Genetic Testing
A complete review of the issues with specific recommendations and guidelines. With over 1,000 tests commercially available, genetic testing is revolutionizing medicine. Health care professionals diagnosing and treating patients today must consider genetic factors, the risks and limitations of genetic testing, and the relevant law. Genetic Testing: Care, Consent, and Liability offers the only complete, practical treatment of the genetic, clinical, ethical, and legal issue surrounding genetic testing. The authors present protocols, policies, and models of care that are currently in use, and explain the legal framework for genetic testing and counseling that has developed in North America, part...
Informed Consent in Predictive Genetic Testing
This important book proposes revising the current informed consent protocol for predictive genetic testing to reflect the trend toward patient-centered medicine. Emphasizing the predictive aspect of testing, the author analyzes the state of informed consent procedure in terms of three components: comprehension of risk assessment, disclosure to select appropriate treatment, and voluntariness. The book's revised model revisits these cornerstones, restructuring the consent process to allow for expanded comprehension time, enhanced patient safety, greater patient involvement and autonomy, and reduced chance of coercion by family or others. A comparison of the current and revised versions and cas...
When the Past Isn't Prologue -- It's the Whole Book
Review of the book: Genetic Testing: Care, Consent and Liability, Edited by Neil F Sharpe & Ronald F Carter, John Wiley & Sons, 2006. 594 pp, hardcover. In Nature Genetics, vol.38:6, June 2006, p.603.
In Control
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Biotechnology and Genetic Engineering
Provides an overview, chronology of events, glossary and annotated bibliography on biotechnology and genetic engineering.
Early Warning
This book presents twenty-nine case studies that identify the most important ethical issues likely to emerge from new technologies of genetic testing and develops a series of guidelines based on the case studies. The authors believe that guideline formation is dependent on case analysis and that any statement of general guidelines must follow from concrete, practical discussion of specific situations. For these reasons, the guidelines presented are rooted in the case discussions and follow from the resolution of the cases. By providing the clinical origins and rationale behind each of its recommendations, the book aims to provide guidance for thinking through the ethical issues as well as a starting point for development of additional guidelines.
