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Taking Advance Directives Seriously
In the quarter century since the landmark Karen Ann Quinlan case, an ethical, legal, and societal consensus supporting patients' rights to refuse life-sustaining treatment has become a cornerstone of bioethics. Patients now legally can write advance directives to govern their treatment decisions at a time of future incapacity, yet in clinical practice their wishes often are ignored. Examining the tension between incompetent patients' prior wishes and their current best interests as well as other challenges to advance directives, Robert S. Olick offers a comprehensive argument for favoring advance instructions during the dying process. He clarifies widespread confusion about the moral and leg...
The Stored Tissue Issue
This book provides a thorough, well-balanced analysis of common research practices with banked tissues, DNA, and genetic data. Describing many examples of beneficial tissue research, the authors focus on problematic research practices, controversial cases, and federal and institutional policies that limit the informed choices of patients and research participants. They offer a series of recommendations to help overcome these problems.
The Stored Tissue Issue
Genetics research with stored human tissues provides many benefits and holds much promise. Yet how this critical research is conducted sometimes raises serious ethical, legal, and social concerns, and it is difficult to balance the promise of biomedical research with our time-honored commitments to individual choice in such fundamental matters as control over personal health information and the disposition of our bodily tissues. Weir and Olick provide a thorough analysis of this critical phase in the era of genomic medicine. While strongly supportive of the biomedical research enterprise, they develop a critique of many common research practices with banked tissues, DNA, and genetic data. No...
The Oxford Handbook of Research Ethics
The development of new pharmaceutical products and behavioral interventions aimed at improving people's health, as well as research that assesses the efficacy and cost-effectiveness of public policies, such as policies designed to improve children's education or reduce poverty, depends on research conducted with human participants. It is imperative that research with human subjects is conducted in accordance with sound ethical principles and regulatory requirements. Featuring 45 original essays by leading research ethicists, The Oxford Handbook of Research Ethics offers a critical overview of the ethics of human subjects research within multiple disciplines and fields, including biomedicine, public health, psychiatry, sociology, political science, and public policy.
Life on Ice
Preface: frozen spirits -- Introduction: within cold blood -- The technoscience of life at low temperature -- Latent life in biomedicine's ice age -- Temporalities of salvage -- "As yet unknown": life for the future -- "Before it's too late": life from the past -- Collecting, maintaining, reusing, and returning -- Managing the cold chain: making life mobile -- When futures arrive: lives after time -- Epilogue: thawing spirits
The Disability Bioethics Reader
The Disability Bioethics Reader is the first introduction to the field of bioethics presented through the lens of critical disability studies and the philosophy of disability. Introductory and advanced textbooks in bioethics focus almost entirely on issues that disproportionately affect disabled people and that centrally deal with becoming or being disabled. However, such textbooks typically omit critical philosophical reflection on disability. Directly addressing this omission, this volume includes 36 chapters, most appearing here for the first time, that cover key areas pertaining to disability bioethics, such as: state-of-the-field analyses of modern medicine, bioethics, and disability th...
Employment, Disability, and the Americans with Disabilities Act
The Americans with Disabilities Act was heralded by its congressional sponsors as an emancipation proclamation for people with disabilities and as the most important civil rights legislation passed in a generation. This book offers an assessment of what has actually occurred since the ADA's enactment in 1990. In empirically based articles, contributors from the fields of law, health policy, government, and business reveal the unsoundness of charges from the right that the ADA will bankrupt industry, and assumptions on the left that the ADA will prove ineffective in helping people with disabilities enter and remain in the workforce.
Public Bioethics
""Public Bioethics collects the most influential essays and articles of James F. Childress, a leading figure in the field of contemporary bioethics. These essays, including new, previously unpublished material, cohere around the idea of "public bioethics," which involves analyzing and assessing public policies in biomedicine, health care, and public health, often through public deliberative bodies. The volume is divided into four sections. The first concentrates on the principle of respect for autonomy and paternalistic policies and practices. The second explores the tension among bioethics, public policy, and religious convictions. It pays particular attention to the role of religious convi...
Death in the Clinic
Some reflections on whether death is bad / David J. Mayo -- Defining death / James L. Bernat -- Against the right to die / J. David Velleman -- The skull at the banquet / David Barnard -- Influence of mental illness on decision making at the end of life / Linda Ganzini and Elizabeth R. Goy -- Creative adaptation in aging and dying / Celia Berdes and Linda Emanuel -- Rage, rage against the dying light / John Paris, Michael D. Schreiber, and Robert Fogerty -- Training on newly deceased patients / Mark R. Wicclair.
