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There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. Written by leading researchers, clinicians from relevant disciplines, family members, and advocates, this practical guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information in a single volume. Thoroughly updated and expanded, this edition includes chapters addressing the unique challenges facing children with HIV/AIDS and their families, care in home and ICU settings, difficult decision-making processes, and the importance of communication with the child and family, as well as complete...
This book addresses a variety of ethical issues that arise in the care of oncology patients. Many volumes have been written on medical ethics in the past 30 years. However, few have focused on ethical issues specific to the care of cancer patients. This book brings together such a focused examination. The contributors are experienced clinicians, ethicists, medical humanists, and medical educators. The issues raised have direct relevance to the care of oncology patients in treatment as well as research settings. The chapters address issues that are central to contemporary medical practice and medical ethics inquiry. Any practicing clinician will be well aware of the problems of communication ...
The death of a child horrifies. We recoil at its mention. Images of dead or dying children impose themselves on our attention in ways that challenge us to change. Yet the topic of dying children is studiously avoided. When we do take notice, we paint children as victims, innocent of both blame and agency, passive in the face of suffering. Children die secluded in homes and hospitals, allowing society to carry on as though it were not happening. Befriending the North Wind is about the moral lives of children and their agency in decisions about death. Our failure to be honest and open about the death of children hinders us from addressing their needs and confronting the sources of their suffer...
It is important to reaffirm the reality of the learning disabilities (LD) phenomenon as a condition that imposes genuine constraints on a student's ability to function, and not as some chimerical entity defined by an ever-changing political situation. Perceptual, memory, attention, linguistic, social, cognitive and neuropsychological factors are an integral part of LD. By mapping out in great detail and with much new data the acquired knowledge on learning disabilities, both empirical and theoretical, this book unravels many mysteries. This book is a landmark in learning disabilities studies, and it lays down solid foundations for future research and practical intervention in the field.
This volume has been developed as a direct result of a conference sponsored by the International Academy for Research in Learning Disabilities, held at the University of California at Los Angeles. The text provides a review and critique of current research in the areas of intelligence, social cognition, achievement, and subtyping as they relate to learning disabilities. In addition, the concept that social behavior is an aspect of intelligence and the relationship between language and reading are discussed in detail by noted experts.
This book introduces psychosocial studies of idol worship in Chinese societies. It reviews how idol worship is perceived in Chinese culture, history, and philosophy as well as how it differs from the concept of celebrity worship that is more dominant in Western literature. Using a pioneering hexagonal model of idol worship, this book explains how idol worship is affected by various demographic and dispositional variables as well as the cognitive and social functions of idols and idol worship. Finally, it discusses idol worship from a contemporary Chinese perspective, including emotional, interpersonal, and social learning aspects, and ends with a discussion of moral development perspective.
This major new work updates and significantly expands The Hastings Center's 1987 Guidelines on the Termination of Life-Sustaining Treatment and Care of the Dying. Like its predecessor, this second edition will shape the ethical and legal framework for decision-making on treatment and end-of-life care in the United States. This groundbreaking work incorporates 25 years of research and innovation in clinical care, law, and policy. It is written for physicians, nurses, and other health care professionals and is structured for easy reference in difficult clinical situations. It supports the work of clinical ethicists, ethics committee members, health lawyers, clinical educators, scholars, and policymakers. It includes extensive practical recommendations. Health care reform places a new set of challenges on decision-making and care near the end of life. The Hastings Center Guidelines are an essential resource.
Reconstructive facial surgery after a car crash so alters Manhattan model Charlotte that, within the fashion world, where one's look is oneself, she is unrecognizable. Seeking a new image, Charlotte engages in an Internet experiment that may both save and damn her. As her story eerily converges with that of a plain, unhappy teenager - another Charlotte - it raises tantalizing questions about identity and reality in contemporary Western culture. Jennifer Egan's bold, innovative novel, demonstrating her virtuosity at weaving a spellbinding, ambitious tale with language that dazzles, captures the spirit of our times and offers an unsettling glimpse of the future.
Pediatric palliative care is a field of significant growth as health care systems recognize the benefits of palliative care in areas such as neonatal intensive care, pediatric ICU, and chronic pediatric illnesses. Pediatric Palliative Care, the fourth volume in the HPNA Palliative Nursing Manuals series, highlights key issues related to the field. Chapters address pediatric hospice, symptom management, pediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in pediatric palliative care. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice. Plentiful tables and patient teaching points make these volumes useful resources for nurses.