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Faces of rain
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Patient engagement in healthcare: a preliminary set of measures to evaluate patient engagement in the European Reference Networks
Aim: The European Reference Networks (ERNs) provide clinicians and patients the opportunity to collaborate at EU level to improve diagnosis, care and treatment for people living with rare and complex conditions. However, building a partnership culture to systematically involve patients in ERN activities and decision-making structures is challenging, partly because the role of patient representatives and the value of this collaboration are not always understood. The objective of this project was to develop an evaluation framework to assess the impact of patient engagement in the ERNs and to provide evidence on the value of patient-clinician partnership. Methods: The evaluation was developed b...
The Edinburgh Companion to Women in Publishing, 1900–2020
Women's creative labour in publishing has often been overlooked. This book draws on dynamic new work in feminist book history and publishing studies to offer the first comparative collection exploring women's diverse, deeply embedded work in modern publishing. Highlighting the value of networks, collaboration, and archives, the companion sets out new ways of reading women's contributions to the production and circulation of global print cultures. With an international, intergenerational set of contributors using diverse methodologies, essays explore women working in publishing transatlantically, on the continent, and beyond the Anglosphere. The book combines new work on high-profile women publishers and editors alongside analysis of women's work as translators, illustrators, booksellers, advertisers, patrons, and publisher's readers; complemented by new oral histories and interviews with leading women in publishing today. The first collection of its kind, the companion helps establish and shape a thriving new research field.
Un día de octubre en Santiago
The author, who was Miguel Enríquez's spouse, relates the experiences of resisting the Pinochet dictatorship after the Chilean coup d'état (Sept. 11, 1973), the attack on their home, the assassination of Enríquez, and her own capture and exile.
119 de nosotros
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Nadar a oscuras
En esta breve y densa novela, contrastan la visi?n de una ni?a con la de una anciana que rememora su vida. A la ciudad minera y pobre de antes, se enfrenta la moderna, devastada por industrias que la atraviesan como una cicatriz, enrarecen su aire y la cubren con un manto de olor a podredumbre y desaliento. La ni?a es conducida por otros ni?os a explorar unas cavernas cerca del mar, donde se re?nen y realizan una serie de ritos que los vinculan con el poder y la muerte, en una suerte de construcci?n de identidad de grupo propia y atemorizante. Dos historias paralelas que finalmente se vinculan y se cierran en la b?squeda y encuentro de un sentido a cada existencia.
