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Palliative Care in Pediatric Oncology
This textbook is the first to focus on comprehensive interdisciplinary care approaches aimed at enhancing the wellbeing of children with cancer and their families throughout the illness experience. Among the topics addressed are the epidemiology of pediatric cancer distress, including physical, emotional, social, and spiritual dimensions; the role of the interdisciplinary team; communication and advance care planning; symptom prevention and management; care at the end of life; family bereavement care; and approaches to ease clinician distress. The contributing authors are true experts and provide guidance based on the highest available level of evidence in the field. The book has not only an interdisciplinary but also an international perspective; it will appeal globally to all clinicians caring for children with cancer, including physicians, nurses, psychosocial clinicians, and chaplains, among others.
Befriending the North Wind
The death of a child horrifies. We recoil at its mention. Images of dead or dying children impose themselves on our attention in ways that challenge us to change. Yet the topic of dying children is studiously avoided. When we do take notice, we paint children as victims, innocent of both blame and agency, passive in the face of suffering. Children die secluded in homes and hospitals, allowing society to carry on as though it were not happening. Befriending the North Wind is about the moral lives of children and their agency in decisions about death. Our failure to be honest and open about the death of children hinders us from addressing their needs and confronting the sources of their suffer...
Textbook of Interdisciplinary Pediatric Palliative Care E-Book
The Textbook of Interdisciplinary Pediatric Palliative Care, by Drs. Joanne Wolfe, Pamela Hinds, and Barbara Sourkes, aims to inform interdisciplinary teams about palliative care of children with life-threatening illness. It addresses critical domains such as language and communication, symptoms and quality of life, and the spectrum of life-threatening illnesses in great depth. This comprehensive product takes a first-of-its-kind team approach to the unique needs of critically ill children. It shows how a collaborative, interdisciplinary care strategy benefits patients and their families. If you deal with the complex care of critically ill children, this reference provides a uniquely integra...
The Book of My Son Reuben
"I wish I had not had to write this book because then my lovely son Reuben would still be alive," says David Cohen. "He was adorable, formidably intelligent, a loving son, a loving brother. He died far too young. He had the bad luck to have two grandparents who had addictive personalities. His efforts to resist the lure of drugs failed. And so did I." The Book of My Son Reuben is a personal account of how psychologist David Cohen coped – and did not cope – with the death of his son, Reuben. Offering a unique perspective on the experience of parental loss, it offers a personal and analytical exploration of sorrow and guilt, and of what research tells us about trauma and grief. Illustrated...
Lives in Limbo
"Over two million of the nation's eleven million undocumented immigrants have lived in the United States since childhood. Due to a broken immigration system, they grow up to uncertain futures. In Lives in Limbo, Roberto G. Gonzales introduces us to two groups: the college-goers, like Ricardo, whose good grades and strong network of community support propelled him into higher education, only to land in a factory job a few years after graduation, and the early-exiters, like Gabriel, who failed to make meaningful connections in high school and started navigating dead-end jobs, immigration checkpoints, and a world narrowly circumscribed by legal limitations. This ethnography asks why highly educated undocumented youth ultimately share similar work and life outcomes with their less-educated peers, even as higher education is touted as the path to integration and success in America. Gonzales bookends his study with discussions of how the prospect of immigration reform, especially the Deferred Action for Childhood Arrivals (DACA) program, could impact the lives of these young Americans"--Provided by publisher.
When Your Child Is Sick
'Warm, wise and practical' Cressida Cowell, MBE An invaluable reference for parents of sick or hospitalised children by an experienced and eminent psychologist. To many parents, it is hard to imagine a more upsetting reality than one where their child is hospitalised, severely sick, or terminally ill. In When Your Child is Sick, psychologist Joanna Breyer distils decades of experience working with sick children and their families into a comprehensive guide for navigating the uncharted and frightening terrain. She provides expert advice to guide them through the hospital setting, at-home care, and long-term outcomes. Breyer's actionable techniques and direct advice will help parents feel more...
Always a Sibling
A practical, compassionate guide to sibling loss, with research, stories, and strategies for “forgotten mourners” as they move through the stages of grief towards finding meaning. After her brother was killed by a suicide bomber in Afghanistan, Annie Sklaver Orenstein was heartbroken and unmoored. Standing in the grief section of her local bookstore, she searched for guides on how to work through her grief as a mourning sibling—and found nothing. More than 4 million American adults each year will lose a sibling, yet there isn't a modern resource guide available that speaks directly to this type of grief that at times can be overshadowed by grieving parents and spouses and made even mor...
Understanding Death and Dying
Understanding Death and Dying teaches students about death, dying, bereavement, and afterlife beliefs by asking them to apply this content to their lives and to the world around them. Students see differing cultural experiences discussed in context with key theories and research. The text’s pedagogy delivers relevant multi- and cross-cultural applications and connections across topics. This helps students evaluate their personal assumptions and appreciate how the content applies to their own current and future roles as individuals, family members, work colleagues, and as part of a community. The text simultaneously challenges learners to consider their own perspectives and to think critically about the parallels between their own lives and different cultures. Included with this title: The password-protected Instructor Resource Site (formally known as SAGE Edge) offers access to all text-specific resources, including a test bank and editable, chapter-specific PowerPoint® slides.
Living, Dying, Death, and Bereavement (Volume Two)
This two-volume book offers extensive interviews with persons who have made significant contributions to thanatology, the study of dying, death, loss, and grief. The book’s in-depth conversations provide compelling life stories of interest to clinicians, researchers, and educated lay persons, and to specialists interested in oral history as a means of gaining rich understandings of persons’ lives. Several disciplines that contribute to thanatology are represented in this book, such as psychology, religious studies, art, literature, history, social work, nursing, theology, education, psychiatry, sociology, philosophy, and anthropology. The book is unique; no other text offers such a compr...
Healing the World's Children
In 1990, the UN Convention on the Rights of the Child declared that children's "survival, protection, growth and development in good health and with proper nutrition is the essential foundation of human development." Drawing from many disciplines - history, anthropology, demography, art history, disability studies, and sociology - and across a broad geography, Healing the World's Children sheds light on the medical, political, and cultural dimensions of the efforts to preserve and protect the lives of our most vulnerable citizens.
