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This book examines how Indigenous Peoples around the world are demanding greater data sovereignty, and challenging the ways in which governments have historically used Indigenous data to develop policies and programs. In the digital age, governments are increasingly dependent on data and data analytics to inform their policies and decision-making. However, Indigenous Peoples have often been the unwilling targets of policy interventions and have had little say over the collection, use and application of data about them, their lands and cultures. At the heart of Indigenous Peoples’ demands for change are the enduring aspirations of self-determination over their institutions, resources, knowl...
As the global ‘data revolution’ accelerates, how can the data rights and interests of indigenous peoples be secured? Premised on the United Nations Declaration on the Rights of Indigenous Peoples, this book argues that indigenous peoples have inherent and inalienable rights relating to the collection, ownership and application of data about them, and about their lifeways and territories. As the first book to focus on indigenous data sovereignty, it asks: what does data sovereignty mean for indigenous peoples, and how is it being used in their pursuit of self-determination? The varied group of mostly indigenous contributors theorise and conceptualise this fast-emerging field and present c...
Clinical research ethics consultation has emerged in the last 15 years as a service to those involved in the conduct of clinical research who face challenging issues for which more than one course of action may be justified. To respond to a growing field and need for opportunities to share knowledge and experience, the Clinical Research Ethics Consultation Collaborative, established in 2014, holds monthly webinars for its 90 members to present their most challenging cases to each other and engage in substantive discussion. Every year, the group selects the four most interesting cases with accompanying commentaries for publication in the American Journal of Bioethics. This timely book brings ...
Next Generation Evidence serves as a prequel to Show Me the Evidence: Obama's Fight for Rigor and Results in Social Policy by Ron Haskins and Greg Margolis. While Show Me the Evidence highlighted the importance of prioritizing funding for programs with evidence, Next Generation Evidence looks at how we can build the pipeline of evidence-producing programs. Evidence is remarkably powerful; it helps us understand the needs of communities, make decisions in times of change and scarcity, and build and do more of what works. However, practitioners face a number of structural and practical hurdles to building and using evidence. Traditional evaluation and research methods are often not timely, aff...
From the global geopolitical arena to the smart city, control over knowledge—particularly over data and intellectual property—has become a key battleground for the exercise of economic and political power. For companies and governments alike, control over knowledge—what scholar Susan Strange calls the knowledge structure—has become a goal unto itself. The rising dominance of the knowledge structure is leading to a massive redistribution of power, including from individuals to companies and states. Strong intellectual property rights have concentrated economic benefits in a smaller number of hands, while the “internet of things” is reshaping basic notions of property, ownership, a...
A free ebook version of this title is available through Luminos, University of California Press’s Open Access publishing program. Visit www.luminosoa.org to learn more. This is the first book devoted entirely to summarizing the body of community-engaged research on environmental justice, how we can conduct more of it, and how we can do it better. It shows how community-engaged research makes unique contributions to environmental justice for Black, Indigenous, people of color, and low-income communities by centering local knowledge, building truth from the ground up, producing actionable data that can influence decisions, and transforming researchers’ relationships to communities for equi...
The first intersectional history of the Black and Native American struggle for freedom in our country that also reframes our understanding of who was Indigenous in early America Beginning with pre-Revolutionary America and moving into the movement for Black lives and contemporary Indigenous activism, Afro-Indigenous historian Kyle T. Mays argues that the foundations of the US are rooted in antiblackness and settler colonialism, and that these parallel oppressions continue into the present. He explores how Black and Indigenous peoples have always resisted and struggled for freedom, sometimes together, and sometimes apart. Whether to end African enslavement and Indigenous removal or eradicate ...
In the midst of the fourth industrial revolution, big data is weighed in gold, placing enormous power in the hands of data scientists – the modern AI alchemists. But great power comes with greater responsibility. This book seeks to shape, in a practical, diverse, and inclusive way, the ethical compass of those entrusted with big data. Being practical, this book provides seven real-world case studies dealing with big data abuse. These cases span a range of topics from the statistical manipulation of research in the Cornell food lab through the Facebook user data abuse done by Cambridge Analytica to the abuse of farm animals by AI in a chapter co-authored by renowned philosophers Peter Singer and Yip Fai Tse. Diverse and inclusive, given the global nature of this revolution, this book provides case-by-case commentary on the cases by scholars representing non-Western ethical approaches (Buddhist, Jewish, Indigenous, and African) as well as Western approaches (consequentialism, deontology, and virtue). We hope this book will be a lighthouse for those debating ethical dilemmas in this challenging and ever-evolving field.
The collection of essays outlines how feminists employ a variety of online platforms, practices, and tools to create spaces of solidarity and to articulate a critical politics that refuses popular forms of individual, consumerist, white feminist empowerment in favor of collective, tangible action. Including scholars and activists from a wide range of disciplinary perspectives, these essays help to catalog the ways in which feminists are organizing online to mobilize different feminist, queer, trans, disability, reproductive justice, and racial equality movements. Together, these perspectives offer a comprehensive overview of how feminists are employing the tools of the internet for political change. Grounded in intersectional feminism––a perspective that attends to the interrelatedness of power and oppression based on race, class, gender, ability, sexuality, and other identities––this book gathers provocations, analyses, creative explorations, theorizations, and case studies of networked feminist activist practices. In doing so, this collection archives important work already done within feminist digital cultures and acts as a vital blueprint for future feminist action.
A compelling argument that the extractive practices of today’s tech giants are the continuation of colonialism—and a crucial guide to collective resistance. Large technology companies like Meta, Amazon, and Alphabet have unprecedented access to our daily lives, collecting information when we check our email, count our steps, shop online, and commute to and from work. Current events are concerning—both the changing owners (and names) of billion-dollar tech companies and regulatory concerns about artificial intelligence underscore the sweeping nature of Big Tech’s surveillance and the influence such companies hold over the people who use their apps and platforms. As trusted tech expert...