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Ethical Research is a new and important book focusing on the centrality of the Declaration of Helsinki to the protection of human subjects involved in human experimentation. The text illuminates the history, nature, scope, context, and controversies that challenge modern research ethics. The editors and authors are international experts in their fields of study and each approaches the subject in a scholarly and accessible dialogue.
This book reports the results of a major study carried out in eight different European countries to look at health policy dilemmas through the eyes of the patient. Drawing on literature reviews, focus groups and a survey of 1,000 people in each of the eight countries, the book addresses how patients no longer see themselves as passive recipients of care: increasingly they expect to be involved in all decisions that affect them.
The little-known stories of the people responsible for what we know today as modern medical ethics. In Making Modern Medical Ethics, Robert Baker tells the counter history of the birth of bioethics, bringing to the fore the stories of the dissenters and whistleblowers who challenged the establishment. Drawing on his earlier work on moral revolutions and the history of medical ethics, Robert Baker traces the history of modern medical ethics and its bioethical turn to the moral insurrections incited by the many unsung dissenters and whistleblowers: African American civil rights leaders, Jewish Americans harboring Holocaust memories, feminists, women, and Anglo-American physicians and healthcar...
"A ground breaking set of case studies about how [health care] coverage decisions are made" Robert A. Berenson M.D. Senior Fellow at the Urban Institute, Washington D.C. and former Director of the Center for Health Plans and Providers of the Medicare program Developed countries are facing rapidly rising health care costs and one of the major factors driving health care cost growth is the continual development and diffusion of new, generally more expensive, health care technologies. This book contains: * A description of the institutions, procedures and criteria used by eight countries for assessing technologies for public insurance coverage * An analysis of the role of interest groups, and o...
The postgenomic condition: an introduction -- The information of life or the life of information? -- Inclusion: can genomics be antiracist? -- Who represents the human genome? What is the human genome? -- Genomics for the people or the rise of the machines? -- Genomics for the 98 percent? -- The genomic open 2.0: the public v. the public -- Life on Third: knowledge and justice after the genome -- Epilogue
Presuming readers start with no background in philosophy, this enhanced introduction to bioethics first provides balanced, philosophically based coverage of moral reasoning, moral theories, and the law. It then leads the newly equipped reader to explore a range of important ethical issues in health care and biomedical research. Engaging Bioethics, Second Edition is designed for undergraduates throughout the humanities and social sciences as well as for healthcare professionals-in-training, including students in medical school, pre-medicine, nursing, public health, and those studying to assist physicians in various capacities. Along with coverage of standard bioethical issues—such as vaccin...
There has been a rapid increase in the pace and scope of international collaborative research in developing countries in recent years. This study argues that whilst ethical regulation of biomedical research in Africa and other developing countries has attracted global attention, legal liability issues, such as the application of common law rules and the development of legally enforceable regulations, have been neglected. It examines some of the major research scandals in Africa and suggests a new ethical framework against which clinical trials could be conducted. The development of research guidelines in Uganda, Tanzania, Malawi and Nigeria are also examined as well as the role of ethics com...
The risk of athletes sustaining concussion while participating in professional team sports raises two serious concerns both nationally and internationally. First, concussion in sport carries a public health risk, given that injured athletes may have to deal with significant long-term medical complications, with some of the worst cases resulting in Chronic Traumatic Encephalopathy (CTE). Secondly, sports governing bodies are now exposed to the risk of financial and reputational damage as a consequence of legal proceedings being filed against them. A good example of this, among many other recent examples, is the case of the United States of America’s National Football League (NFL), the governing body for American football, which, in 2015, committed to pay US$ 1 billion to settle the class action filed by its former professional players. This book examines how to most efficiently reduce these public health and legal risks, and proposes a harmonised solution across sports and legal systems.
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