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Living and Dying with Dementia
Improvements in health care in the 21st century mean people are living longer, but with the paradox that chronic illness is increasingly prevalent. Dementia, a term used to describe various different brain disorders that involve a loss of brain function that is usually progressive and eventually severe, is a condition associated with an ageing population and is becoming increasingly common. Worldwide there are approximately 25 million people with dementia, expected to rise to 63 million by 2030, and 114 million by 2050. Inevitably, people living with dementia will die, but their needs at the end of life are not well known. This book describes what might be achieved if the values and best pra...
Understanding Care Homes
This book draws together a range of research and development initiatives that emphasise the importance of partnership working, and of enabling older people and their families to maintain the highest quality of life. The book investigates how research and development can be undertaken to provide better care for the resident and their family.
Participatory Research in Palliative Care
Participatory Research in Palliative Care discusses participatory research methods within the discipline of palliative care. Providing an overview of the action research methods, it uses exemplars from studies within palliative care, as well as discusses the prominent issues currently faced in this methodology from a global perspective.
Exploring End of Life Experience
The groundbreaking contribution made by this unique book draws on the experiences recorded by five people who are facing death – Jenny Diski, Philip Gould, Christopher Hitchens, Michael Mayne and Cory Taylor. Analysing the key themes that emerge from a psychodynamic perspective, the book describes how the memoirists respond to the first shock of receiving a terminal diagnosis, how they meet the challenge of continuing an active life when the illusion of an open-ended future has gone, and finally, how they struggle with accepting death as it overtakes them. The author argues that the ability to accept personal death is the key to resolving the paradox of our need to survive at all costs, wh...
Participatory Research in Palliative Care: Actions and reflections
Participatory research is a relatively new method of researching practice especially within palliative care. It differs from other methodologies in that there is an expectation of action within the research process. The values that underpin participatory research are collaboration, empowerment, and reflection. In the current climate of collaboration and working with people in healthcare, participatory research methods are gaining increasing interest when there is a desire to bring about change. Organisational change is becoming an important focus as we look at ways of not only reducing costs but at the same time improving quality of care. While palliative care puts the patient and family at ...
Narrating Illness: Prospects and Constraints
This volume grapples with the potentials and limitations of illness narratives as diverse cultural perceptions probe into those stories from literary, textual, empirical, ethnographic, historical, and personal bases.
Between Remembering and Forgetting
A much-needed resource for reflection on the nature of dementia, particularly its spiritual dimension, And The implications for Churches and other faith groups.
Palliative Care for Older People
The ageing of society is becoming a major public health issue, posing challenges to social and health care structures in many countries. This book demonstrates the added value of palliative care which, although traditionally focused on cancer and the very end of life, can play a role in strengthening and complementing the care of older people. The book outlines the current state of worldwide policy work, research, and innovations in the field of public health and palliative care for older people and concludes with recommendations for policy and decision makers, at international and national level.
Participatory Research in Palliative Care
'Participatory Research in Palliative Care' discusses participatory research methods within the discipline of palliative care. Providing an overview of the action research methods, it uses exemplars from studies within palliative care as well as discusses the prominent issues currently faced in this methodology from a global perspective.
