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Indigenous Data Sovereignty and Policy
This book examines how Indigenous Peoples around the world are demanding greater data sovereignty, and challenging the ways in which governments have historically used Indigenous data to develop policies and programs. In the digital age, governments are increasingly dependent on data and data analytics to inform their policies and decision-making. However, Indigenous Peoples have often been the unwilling targets of policy interventions and have had little say over the collection, use and application of data about them, their lands and cultures. At the heart of Indigenous Peoples’ demands for change are the enduring aspirations of self-determination over their institutions, resources, knowl...
Indigenous Data Sovereignty
As the global ‘data revolution’ accelerates, how can the data rights and interests of indigenous peoples be secured? Premised on the United Nations Declaration on the Rights of Indigenous Peoples, this book argues that indigenous peoples have inherent and inalienable rights relating to the collection, ownership and application of data about them, and about their lifeways and territories. As the first book to focus on indigenous data sovereignty, it asks: what does data sovereignty mean for indigenous peoples, and how is it being used in their pursuit of self-determination? The varied group of mostly indigenous contributors theorise and conceptualise this fast-emerging field and present c...
Good Data
Moving away from the strong body of critique of pervasive ?bad data? practices by both governments and private actors in the globalized digital economy, this book aims to paint an alternative, more optimistic but still pragmatic picture of the datafied future. The authors examine and propose ?good data? practices, values and principles from an interdisciplinary, international perspective. From ideas of data sovereignty and justice, to manifestos for change and calls for activism, this collection opens a multifaceted conversation on the kinds of futures we want to see, and presents concrete steps on how we can start realizing good data in practice.
The New Knowledge
From the global geopolitical arena to the smart city, control over knowledge—particularly over data and intellectual property—has become a key battleground for the exercise of economic and political power. For companies and governments alike, control over knowledge—what scholar Susan Strange calls the knowledge structure—has become a goal unto itself. The rising dominance of the knowledge structure is leading to a massive redistribution of power, including from individuals to companies and states. Strong intellectual property rights have concentrated economic benefits in a smaller number of hands, while the “internet of things” is reshaping basic notions of property, ownership, a...
The Handbook of Teaching Qualitative and Mixed Research Methods
The Handbook of Teaching Qualitative and Mixed Research Methods: A Step-by-Step Guide for Instructors presents diverse pedagogical approaches to teaching 71 qualitative and mixed methods. These tried-and-true methods are widely applicable to those teaching and those being trained in qualitative and mixed-methods research. The methods for data collection cover ethics, sampling, interviewing, recording observations of behavior, Indigenous and decolonizing methods and methodologies as well as visual and participatory methods. Methods for analyzing data include coding and finding themes, exploratory and inductive analysis, linguistic analysis, mixed-methods analysis, and comparative analysis. Ea...
Tabula Raza
Duana Fullwiley has penned an intimate chronicle of laboratory life in the genomic age. She presents many of the influential scientists at the forefront of genetics who have redefined how we practice medicine and law and understand ancestry in an era of big data and waning privacy. Exceedingly relatable and human, the scientists in these pages often struggle for visibility, teeter on the tightrope of inclusion, and work tirelessly to imprint the future. As they actively imagine a more equal and just world, they often find themselves ensnared in reproducing timeworn conceits of race and racism that can seed the same health disparities they hope to resolve. Nothing dynamic can live for long as a blank slate, an innocent tabula rasa. But how the blank slate of the once-raceless human genome became one of racial differences, in various forms of what Fullwiley calls the tabula raza, has a very specific and familiar history—one that has cycled through the ages in unexpected ways.
Paradoxes of Digital Disengagement
Life is increasingly governed and mediated through digital and smart technologies, platforms, big data and algorithms. However, the reasons, practices and impact of how the digital is used by different institutions are often deeply linked to social oppression and injustice. Similarly, the ability to resist these digital impositions is based on inequality and privilege. Challenging the ways in which we are increasingly dependent on the digital, this book raises a set of provocative and urgent questions: in a world of compulsory digitality is there an opt out button? Where, when, how, why and to whom is it available? Answering these questions has become even more relevant since the COVID-19 pa...
Real World AI Ethics for Data Scientists
In the midst of the fourth industrial revolution, big data is weighed in gold, placing enormous power in the hands of data scientists – the modern AI alchemists. But great power comes with greater responsibility. This book seeks to shape, in a practical, diverse, and inclusive way, the ethical compass of those entrusted with big data. Being practical, this book provides seven real-world case studies dealing with big data abuse. These cases span a range of topics from the statistical manipulation of research in the Cornell food lab through the Facebook user data abuse done by Cambridge Analytica to the abuse of farm animals by AI in a chapter co-authored by renowned philosophers Peter Singer and Yip Fai Tse. Diverse and inclusive, given the global nature of this revolution, this book provides case-by-case commentary on the cases by scholars representing non-Western ethical approaches (Buddhist, Jewish, Indigenous, and African) as well as Western approaches (consequentialism, deontology, and virtue). We hope this book will be a lighthouse for those debating ethical dilemmas in this challenging and ever-evolving field.
Creativity in Research
Provides concrete guidance, grounded in scientific literature, for researchers to build creative confidence in their work.
