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Confronting Hereditary Breast and Ovarian Cancer
"Be informed. Be empowered. Be well." If you are concerned that the cancer in your family is hereditary, you face difficult choices. Should you have a blood test that may reveal whether you have a high likelihood of disease? Do you preemptively treat a disease that may never develop? How do you make decisions now that will affect the rest of your life? This helpful, informative guide answers your questions as you confront hereditary breast and ovarian cancer. Developed by Facing Our Risk of Cancer Empowered (FORCE), the nation’s only nonprofit organization dedicated to supporting families affected by hereditary breast and ovarian cancer, this book stands alone among breast and ovarian canc...
Living with Hereditary Cancer Risk
"This book provides a comprehensive overview of hereditary cancer for a general audience, with coverage of the genetic tests available for detecting risk for heritable cancers as well as options for medical and surgical treatment"--
Understanding Disparities in Access to Genomic Medicine
Genomic medicine is defined as the routine use of genomic information about an individual as part of his or her clinical care as well as the health outcomes and policy implications of that clinical use. It is one approach that has the potential to improve the quality of health care by allowing practitioners to tailor prevention, diagnostic, and treatment strategies to individual patients. In recent years, research breakthroughs, technological advances, and the decreasing cost of DNA sequencing have led to the wider adoption of genomic medicine. However, as with the introduction of new technologies into health care, there are concerns that genetic and genomic testing and services will not rea...
The Story Within
“A compelling collection of essays that address the experiences of many who have genetically based illnesses.” —Library Journal The contributors to The Story Within share powerful experiences of living with genetic disorders. Their stories illustrate the complexities involved in making decisions about genetic diseases: whether to be tested, who to tell, whether to have children, and whether and how to treat children medically, if treatment is available. More broadly, they consider how genetic information shapes the ways we see ourselves, the world, and our actions within it. People affected by genetic disease respond to such choices in varied ways. These writers reflect that breadth of...
The Body Papers
Winner of The Restless Books Prize for New Immigrant Writing “Grace Talusan writes eloquently about the most unsayable things: the deep gravitational pull of family, the complexity of navigating identity as an immigrant, and the ways we move forward even as we carry our traumas with us. Equal parts compassion and confession, The Body Papers is a stunning work by a powerful new writer who—like the best memoirists—transcends the personal to speak on a universal level.” —Celeste Ng, author of Everything I Never Told You and Little Fires Everywhere Born in the Philippines, young Grace Talusan moves with her family to a New England suburb in the 1970s. At school, she confronts racism as...
Putting a Name to It
Outlines how the social dimensions of medical diagnosis can deepen our understanding of health. Diagnosis is central to medicine. It creates order, explains illness, identifies treatments, and predicts outcomes. In Putting a Name to It, Annemarie Jutel presents medical diagnosis as more than a mere clinical tool, but as a social phenomenon with the potential to deepen our understanding of health, illness, and disease. Jutel outlines how the sociology of diagnosis should function by situating it within the broader discipline, laying out the directions it should explore, and discussing how the classification of illness and the framing of diagnosis relate to social status and order. This second...
The Biosecurity Individual
Discoveries in biomedicine and biotechnology, especially in diagnostics, have made prevention and (self)surveillance increasingly important in the context of health practices. Frederike Offizier offers a cultural critique of the intersection between health, security and identity, and explores how the focus on risk and security changes our understanding of health and transforms our relationship to our bodies. Analyzing a wide variety of texts, from life writing to fiction, she offers a critical intervention on how this shift in the medical gaze produces new paradigms of difference and new biomedically facilitated identities: biosecurity individuals.
To Test or Not To Test
Tests are a standard part of modern medicine. We willingly screen our blood, urine, vision, and hearing, and submit to a host of other exams with names so complicated that we can only refer to them by their initials: PET, ECG, CT, and MRI. Genetic tests of our risks for disease are the latest trend in medicine, touted as an approach to informed and targeted treatment. They offer hope for some, but also raise medical, ethical, and psychological concerns for many including when genetic information is worth having. To Test or Not to Test arms readers with questions that should be considered before they pursue genetic screening. Am I at higher risk for a disorder? Can genetic testing give me use...
