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Perspectives on Palliative Care for Children and Young People
Advances in medical science and technology are saving the lives of more children worldwide than ever. Some survive and live out a normal life expectancy, others have a life-limiting/life-threatening diagnosis where death may come early, and still others will live on well past projected life trajectories into adulthood. With so many different care pathways, children, parents and communities often find themselves facing challenges for which neither they nor their healthcare systems are prepared. This book opens a global discussion of these issues. Extending Rita Pfund's text Palliative Care Nursing of Children and Young People, it invites paediatric palliative care professionals, parents and children from around the globe to share their knowledge and experience. This book is of vital interest to palliative care professionals, parents, policy makers and academics. It is an important move towards ensuring that all children and their families, regardless of geographical location, gender, ethnicity or socio-economic class have equal and guaranteed access to comprehensive paediatric palliative care services.
Pediatric Palliative Care: Global Perspectives
The first of its kind, this book describes pediatric palliative care in more than 23 countries. Each region in the world is covered and countries included are both resource poor and rich. Authors are multidisciplinary and regarded nationally and internationally in their field. Clinicians, advocates, policymakers, funders, and researchers will learn how programs were developed and implemented in each country. Authors describe children for whom pediatric palliative care is needed and provided for in their country. When applicable, a brief history of pediatric palliative care is included noting especially policy changes and legislative acts. For example, the chapter on Poland describes how pedi...
Palliative Care Nursing of Children and Young People
"Children's palliative care is an evolving specialty and as such our knowledge base cannot remain static. This book constantly challenges the reader to critically analyze their own practices and beliefs within an evidence-based framework and as such makes a valuable contribution to the growing body of knowledge on this important subject." - Susan Fowler-Kerry, in the Foreword. This book caters for readers from different working environments and levels of experience. It is ideal for paediatric nurses with no specialist palliative care knowledge, and also for palliative care nurses with no specialist paediatric experience. Other healthcare professionals and therapists working with children, yo...
Light to those in Darkness
Now widely recognised within palliative care, the concept of ‘total pain’ is an intensely theological one at heart. In Light to those in Darkness clinician and theologian Dr Charlie Bell holds up the concept to theological scrutiny. Bell reflects on the ways that the doctrine of ‘the communion of saints’, might be used to help the church understand how it can address “total pain” within individuals, and collective trauma within the wider community. As such the book offers both an important theological reflection for those in pastoral care roles and a broader challenge to the church to become a place of solidarity and accompaniment.
Befriending the North Wind
The death of a child horrifies. We recoil at its mention. Images of dead or dying children impose themselves on our attention in ways that challenge us to change. Yet the topic of dying children is studiously avoided. When we do take notice, we paint children as victims, innocent of both blame and agency, passive in the face of suffering. Children die secluded in homes and hospitals, allowing society to carry on as though it were not happening. Befriending the North Wind is about the moral lives of children and their agency in decisions about death. Our failure to be honest and open about the death of children hinders us from addressing their needs and confronting the sources of their suffer...
Handbook of Research on Activating Middle Executives’ Agency to Lead and Manage During Times of Crisis
The role of lead executives is demanding under normal circumstances, but more so during times of institutional crisis. The existence of ongoing internal organizational crises plus crises triggered by external events and shocks requires that leaders and managers be equipped with the tools to manage such crises. Therefore, further study is required that considers the difficulties of leading various organizations as well as best practices for future management. The Handbook of Research on Activating Middle Executives’ Agency to Lead and Manage During Times of Crisis is a comprehensive reference source that offers practical applications, tools, and skills to equip middle leaders to meaningfull...
Oxford Textbook of Palliative Care for Children
The importance of palliative care for children facing life threatening illness and their families is now widely acknowledged as an essential part of care, which should be available to all children and families, throughout the child's illness and at the end of life. The new edition of the Oxford Textbook of Palliative Care for Children brings together the most up to date information, current knowledge, evidence, and developments of clinical practice in the field. The book is structured into four sections. 'Foundations of Care' describes core issues, the foundations on which paediatric palliative care is based. 'Child and Family Care' looks at different aspects of psychological, social, and cu...
Ethical and Philosophical Aspects of Nursing Children and Young People
Nurses and healthcare professionals are constantly faced with ethical and philosophical dilemmas when working with children in everyday practice. Ethical and Philosophical Aspects of Nursing Children and Young People is a comprehensive text on the ethics and philosophy behind paediatric nursing that reflects the contemporary issues encountered while working with children and young people. The title provides a philosophical and historical analysis of the subject, looking at a review of sociological and political theories concerning the nature of childhood, and providing a critical analysis of contemporary notions about childhood. It then goes on to look at moral theories and their application...
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