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Practical Autonomy and Bioethics
This book develops a unique account of autonomy in which its attribution to agents is dependent in part on their relationships with others and not merely upon their mental states. This is then applied to bioethical issues—e.g., informed consent and patient confidentiality—in which autonomy plays a central role.
Insider Trading
The cadaver industry in Britain and the United States, its processes and profits Except for organ transplantation little is known about the variety of stuff extracted from corpses and repurposed for medicine. A single body might be disassembled to provide hundreds of products for the millions of medical treatments performed each year. Cadaver skin can be used in wound dressings, corneas used to restore sight. Parts may even be used for aesthetic enhancement, such as liquefied skin injections to smooth wrinkles. This book is a history of the nameless corpses from which cadaver stuff is extracted and the entities involved in removing, processing, and distributing it. Pfeffer goes behind the mortuary door to reveal the technical, imaginative, and sometimes underhanded practices that have facilitated the global industry of transforming human fragments into branded convenience products. The dead have no need of cash, but money changes hands at every link of the supply chain. This book refocuses attention away from individual altruism and onto professional and corporate ethics.
Human Subjects Research Regulation
The current framework for the regulation of human subjects research emerged largely in reaction to the horrors of Nazi human experiment, revealed at the Nuremburg trials, and the Tuskegee syphilis study, conducted by US government researchers from 1932 to 1972. This framework combining elements of paternalism with efforts to preserve individual autonomy, has remained fundamentally unchanged for decades Yet, as this book documents, it has significant flaws-including its potential to burden important research, overprotect some subjects and inadequately protect others, generate inconsistent results, and lag behind developments in how research is conducted. Invigorated by the US government's fir...
Innovation and the Pharmaceutical Industry
Innovation and the Pharmaceutical Industry: Critical Reflections on the Virtues of Profit examines the central role of profit in the development of pharmaceuticals, medical devices, and health care generally. Recent efforts to understand this role have often underestimated and even dismissed its importance, arguing for its replacement by other means and mechanisms. However, as the essays in this volume attest, it would be impossible to account adequately for the range of pharmaceuticals and medical devices that have become part of everyday medicine without recognizing that the depth and scope of innovations are tied not simply to altruism, a concern for the common good, or the pursuit of kno...
Beyond Classical Liberalism
This volume brings together diverse sets of standpoints on liberalism in an era of growing skepticism and distrust regarding liberal institutions. The essays in the volume: • Relate concerns for liberal institutions with classical themes in perfectionist politics, such as the priority of the common good in decision-making or the role of comprehensive doctrines. • Analyse how perfectionist intuitions about the political life affect our concepts of public reason or public justification. • Outline various moral duties we have toward other persons that underlie the liberal institutions or notions of rights functioning across the contemporary political landscape. • Explore various aspects of pluralism from within influential religious or philosophical traditions, applying insights from those traditions to issues in contemporary politics. The comprehensive volume will be of great interest to scholars, students, and researchers of politics, especially those in political philosophy and political theory.
Evidence Contestation
This book examines the practices of contesting evidence in democratically constituted knowledge societies. It provides a multifaceted view of the processes and conditions of evidence criticism and how they determine the dynamics of de- and re-stabilization of evidence. Evidence is an essential resource for establishing claims of validity, resolving conflicts, and legitimizing decisions. In recent times, however, evidence is being contested with increasing frequency. Such contestations vary in form and severity – from questioning the interpretation of data or the methodological soundness of studies to accusations of evidence fabrication. The contributors to this volume explore which actors,...
Encyclopedia of Epidemiology
Presents information from the field of epidemiology in a less technical, more accessible format. Covers major topics in epidemiology, from risk ratios to case-control studies to mediating and moderating variables, and more. Relevant topics from related fields such as biostatistics and health economics are also included.
Ethics Lost in Modernity
Ethics Lost in Modernity: Reflections on Wittgenstein and Bioethics turns to the philosopher Ludwig Wittgenstein as a guide to understand the immense success—yet great danger—of bioethics. Matthew Vest traces the story of bioethics since its inception in the late 1960s as a way to uncover a number of hidden assumptions within modern ethics that relies upon scientific theorizing as the fundamental way of thinking. Autonomy and utilitarianism, in particular, are two nearly unquestioned goals of scientific theorizing that are easily accessible, but at what cost? Vest argues that such an ethics enacts a thin moral calculation that runs the risk of enslaving ethics to scientism. Far from the depth of religious ethos and practices of virtue, modern ethics is lost amidst thin ethical theories, enacting a language game that instrumentalizes ethics in service of technological, bureaucratic, and professional end goals. He proposes that true moral living is far from anti–science, but rather is envisioned best when ethics and science are balanced with keen insights from ancient sacred cosmology.
Global Bioethics
Medical care and biomedical research are rapidly becoming global. Ethical questions that once arose only in the narrow context of the physician-patient relationship in relatively prosperous societies are now being raised across societies, cultures, and continents. For example, what should be the "standard of care" for clinical trials of medical innovations in poorer countries? Are researchers obligated to compare new therapies or drugs with the best known ones available, or can they use as a benchmark the actual treatments (or lack of treatments) available to poor people? Should pharmaceutical companies seeking to lower the costs of new drug trials be allowed to enrol citizens of less develo...
The Censor's Hand
An argument that the system of boards that license human-subject research is so fundamentally misconceived that it inevitably does more harm than good. Medical and social progress depend on research with human subjects. When that research is done in institutions getting federal money, it is regulated (often minutely) by federally required and supervised bureaucracies called “institutional review boards” (IRBs). Do—can—these IRBs do more harm than good? In The Censor's Hand, Schneider addresses this crucial but long-unasked question. Schneider answers the question by consulting a critical but ignored experience—the law's learning about regulation—and by amassing empirical evidence...
