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Wandering the Wards provides a detailed and unflinching ethnographic examination of life within the contemporary hospital. It reveals the institutional and ward cultures that inform the organisation and delivery of everyday care for one of the largest populations within them: people living with dementia who require urgent unscheduled hospital care. Drawing on five years of research embedded in acute wards in the UK, the authors follow people living with dementia through their admission, shadowing hospital staff as they interact with them during and across shifts. In a major contribution to the tradition of hospital ethnography, this book provides a valuable analysis of the organisation and delivery of routine care and everyday interactions at the bedside, which reveal the powerful continuities and durability of ward cultures of care and their impacts on people living with dementia. *Shortlisted for the Foundation for the Sociology of Health and Illness Book Prize 2021*
This essential textbook on dementia care introduces the knowledge that nurses need, including the evidence base for practice and the guidance to transfer this newly acquired knowledge into everyday practice. Each of the 25 chapters are written by experts in the field of dementia care and are grounded in thoroughly researched, up-to-date evidence, have a direct bearing to nurse practice, and use case studies to give examples of application of the evidence to practice. It begins by introducing dementia as a diagnosis, a syndrome, and a set of diseases, signs and symptoms. It then deals with various principles that underpin dementia care, including person-centred care, behaviours that challenge, risk management, and understanding relationships affected by dementia. Finally, it assesses dementia care across a range of care settings, such as primary care, care homes, domiciliary care, acute hospital, and hospice services.
This book centers on negotiations around cultural, governmental, and individual constructions of COVID-19. It considers how the coronavirus pandemic has been negotiated in different cultures and countries, with the final part of the volume focusing on South Asia and Pakistan in particular. The chapters include auto-ethnographic accounts and ethnographic explorations that reflect upon experiences of living with the pandemic and its implications for all areas of life. The book explicates people’s dealings with COVID-19 at various levels, situates the spread of rumors, conspiracy theories, and new social rituals within micro- and/or macro-contexts, and describes the interplay between the virus and various institutionalized forms of inequalities and structural vulnerabilities. Bringing together a variety of perspectives, the volume relates to the past, describes the Covidian present, and offers futuristic implications. It enlists distinct imaginaries based on current understandings of an extraordinary challenge that holds significant importance for our human future.
Focusing on the world of Norwegian Opioid Substitution Treatment (OST) in the aftermath of significant reforms, this book casts a critical light on the intersections between medicine and law, and the ideologies infusing the notions of "individual choice" and "patient involvement" in the field of addiction globally. With ethnographic attention to the encounters between patients, clinicians, and bureaucrats, the volume shows that OST sustains the realities it is meant to address. The chapters follow one particular patient through complex clinical and legal battles as they fight to achieve a better quality of life. The study provides ethnographic insight that captures the individual, experiential aspects of addiction treatment, and how these experiences find a register within different domains of treatment and policy, including the familial, social, legal, and clinical. Offering a rare view of addiction treatment in a Scandinavian welfare state, this book will be of interest to scholars of medical and legal anthropology and sociology, and others with an interest in drug policy and addiction treatment.
This book examines the intersectionality and stratified lived experience of rural poor and urban middle-class childless women in Bangladesh. Childless women in Bangladesh, an over-populated country where fertility control is the primary focus of health policy, are all but non-existent. Papreen Nahar offers an alarming account of stigma, abuse, ostracism and violence against these women, sharing their experiences of marginalisation in a culture that idealises motherhood. In such a reality, the experience of childlessness, particularly for women, can be much more severe than what is defined as ‘infertility’ in the biomedical sense. As childlessness is a complex interaction between biology,...
Living with Diabetes and Uncertainty in Cairo offers an ethnographic exploration of the interactions of two different understandings of type-2 diabetes: one related to the notion of ḍaghṭ, translated as “pressure” or “stress,” and another related primarily to obesity. The book is set in Egypt but draws links to a diabetes clinic in Denmark and a multinational medical company, as well as engaging with international diabetes research and guidelines. It tells a story of uncertainty, not only among people in Cairo, but also within medical research, and considers what uncertainty may generate in both bodies and societies at large. The chapters provide valuable insight into the lives of those in Cairo who are diagnosed with type-2 diabetes, and explore how those lives are linked to global movements. The book ultimately reflects on the question of what is overlooked and why in prevention strategies and treatments of type-2 diabetes in Egypt. It will be of particular interest to scholars of anthropology, global and public health, and the Middle East and North Africa.
This book is open access and will be available on www.bloomsburycollections.com. Based on ethnographic research within hospitals across England and Wales over a four-year period, this book provides a detailed and unflinching examination of the world of the hospital ward and the everyday cultures of ward life; the organisation, routines and patterns of bedside care within it; and its consequences for patients and staff. Katie Featherstone and Andy Northcott offer a major new addition to the tradition of hospital ethnography. Featherstone and Northcott explore a key contemporary transformation in our hospitals, the experiences, impacts, and consequences, of an increasing significant population of people living with dementia who require unscheduled acute hospital care. This book (supported by the National Institute for Health Research) contributes to our understandings of cultures of care, the practical recognition and attribution of dementia, understandings of ageing and the erosion of the person and the body, and the classification of the mind and behaviour within the contemporary institution.
Set against the rapid aging of the world's population, Human Rights and the Care of Older People explores the potential for the rule against torture and ill-treatment in international human rights law to better protect older people from care-related mistreatment. The book's analysis is broadly relevant but is prompted by the widespread reports of older people's suffering due to lack of access to care and coercion in respect of care needs. This includes the deprivation of liberty for 'care'. While recognizing that a new United Nations Convention on the rights of older people is on the horizon, the book argues that there is a pressing need for older people and all human rights actors to use an...
This book explores the experiences of Muslims in the United States as they interact with the health care system during serious illness and end-of-life care. It shifts "actively dying" from a medical phrase used to describe patients who are expected to pass away soon or who exhibit signs of impending death, to a theoretical framework to analyze how end-of-life care, particularly within a hospital, shapes the ways that patients, families, and providers understand Islam and think of themselves as Muslim. Using the dying body as the main object of analysis, the volume shows that religious identities of Muslim patients, loved ones, and caregivers are not only created when living, but also through the physical process of dying and through death. Based on ethnographic and qualitative research carried out mainly in the Washington, D.C. region, this volume will be of interest to scholars in anthropology, sociology, public health, gerontology, and religious studies.