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The General Data Protection Regulation in Plain Language
The General Data Protection Regulation in Plain Language is a guide for anyone interested in the much-discussed rules of the GDPR. In this legislation, which came into force in 2018, the European Union meticulously describes what you can and cannot do with data about other people. Violating these rules can lead to a fine of up to 20 million euros. This book sets out the most important obligations of individuals and organisations that process data about others. These include taking technical security measures, carrying out an impact assessment and registering all data-processing procedures within an organisation. It also discusses the rights of citizens whose data are processed, such as the right to be forgotten, the right to information and the right to data portability.
The Handbook of Privacy Studies
'The Handbook of Privacy Studies' is the first book in the world that brings together several disciplinary perspectives on privacy, such as the legal, ethical, medical, informatics and anthropological perspective. Privacy is in the news almost every day: mass surveillance by intelligence agencies, the use of social media data for commercial profit and political microtargeting, password hacks and identity theft, new data protection regimes, questionable reuse of medical data, and concerns about how algorithms shape the way we think and decide. This book offers interdisciplinary background information about these developments and how to understand and properly evaluate them. The book is set up for use in interdisciplinary educational programmes. Each chapter provides a structured analysis of the role of privacy within that discipline, its characteristics, themes and debates, as well as current challenges. Disciplinary approaches are presented in such a way that students and researchers from every scientific background can follow the argumentation and enrich their own understanding of privacy issues.
Group Privacy
The goal of the book is to present the latest research on the new challenges of data technologies. It will offer an overview of the social, ethical and legal problems posed by group profiling, big data and predictive analysis and of the different approaches and methods that can be used to address them. In doing so, it will help the reader to gain a better grasp of the ethical and legal conundrums posed by group profiling. The volume first maps the current and emerging uses of new data technologies and clarifies the promises and dangers of group profiling in real life situations. It then balances this with an analysis of how far the current legal paradigm grants group rights to privacy and data protection, and discusses possible routes to addressing these problems. Finally, an afterword gathers the conclusions reached by the different authors and discuss future perspectives on regulating new data technologies.
Privacy as Virtue
Privacy as Virtue discusses whether a rights-based approach to privacy regulation still suffices to address the challenges triggered by new data processing techniques, such as Big Data and mass surveillance. A rights-based approach generally grants subjective rights to individuals to protect their personal interests. However, large-scale data processing techniques often transcend the individual and their interests. Virtue ethics is used to reflect on this problem and open up new ways of thinking. A virtuous agent not only respects the rights and interests of others, but also has a broader duty to act in the most careful, just, and temperate way. This applies to citizens, to companies such as...
Data Protection and Privacy: (In)visibilities and Infrastructures
This book features peer reviewed contributions from across the disciplines on themes relating to protection of data and to privacy protection. The authors explore fundamental and legal questions, investigate case studies and consider concepts and tools such as privacy by design, the risks of surveillance and fostering trust. Readers may trace both technological and legal evolution as chapters examine current developments in ICT such as cloud computing and the Internet of Things. Written during the process of the fundamental revision of revision of EU data protection law (the 1995 Data Protection Directive), this volume is highly topical. Since the European Parliament has adopted the General ...
Protecting Genetic Privacy in Biobanking Through Data Protection Law
Hallinan argues that the substantive framework presented by the GDPR offers an admirable base-line level of protection for the range of genetic privacy rights engaged by biobanking.
Exploring the Boundaries of Big Data
In the investigation Exploring the Boundaries of Big Data The Netherlands Scientific Council for Government Policy (WRR) offers building blocks for developing a regulatory approach to Big Data.
Health Data Privacy under the GDPR
The growth of data-collecting goods and services, such as ehealth and mhealth apps, smart watches, mobile fitness and dieting apps, electronic skin and ingestible tech, combined with recent technological developments such as increased capacity of data storage, artificial intelligence and smart algorithms, has spawned a big data revolution that has reshaped how we understand and approach health data. Recently the COVID-19 pandemic has foregrounded a variety of data privacy issues. The collection, storage, sharing and analysis of health- related data raises major legal and ethical questions relating to privacy, data protection, profiling, discrimination, surveillance, personal autonomy and dig...
Private Selves
Data protection has become such an important area for law – and for society at large – that it is important to understand exactly what we are doing when we regulate privacy and personal data. This study analyses European privacy rights focusing especially on the GDPR, and asks what kind of legal personhood is presupposed in privacy regulation today. Looking at the law from a deconstructive angle, the philosophical foundations of this highly topical field of law are uncovered. By analysing key legal cases in detail, this study shows in a comprehensive manner that personhood is constructed in individualised ways. With its clear focus on issues relating to European Union law and how its future development will impact wider issues of privacy, data protection, and individual rights, the book will be of interest to those trying to understand current trends in EU law.
Rethinking Informed Consent in Bioethics
Informed consent is a central topic in contemporary biomedical ethics. Yet attempts to set defensible and feasible standards for consenting have led to persistent difficulties. In Rethinking Informed Consent in Bioethics, first published in 2007, Neil Manson and Onora O'Neill set debates about informed consent in medicine and research in a fresh light. They show why informed consent cannot be fully specific or fully explicit, and why more specific consent is not always ethically better. They argue that consent needs distinctive communicative transactions, by which other obligations, prohibitions, and rights can be waived or set aside in controlled and specific ways. Their book offers a coherent, wide-ranging and practical account of the role of consent in biomedicine which will be valuable to readers working in a range of areas in bioethics, medicine and law.
