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How Genes Matter
Understanding the significance of genetic factors for our lives requires an analysis that goes beyond biological aspects. It is especially necessary to take into account how human beings relate to others and to themselves. Who we are is a result of social action and the ways in which human beings constitute themselves as subjects. Seen from this perspective, genetic medicine is a social practice that shapes how we think about us, how we conduct our behaviour and how we care for our children. This book scrutinises practices by which individuals become knowledgeable about their genes and constitute them as responsible decision makers.
Analogia
“…post-modern thought allowed the emergence of the question of Metaphysics again. This also makes possible a rethinking of the science-theology relation in a new light. The aim of this volume is precisely to shed a glimpse of this new light upon this ongoing conversation, by now involving Orthodox Theology in it. The possible contribution of Orthodox Theology to this discussion, in the context of the Christian Greek-Western world, can be path-breaking…” (From the Note of the Senior Editor) Contents: 1. Patristic Views On The Nature And Status Of Scientific Knowledge, JEAN-CLAUDE LARCHET, 2. The Dialogue between Orthodox Theology and Science as Explication of the Human Condition, ALEX...
Disclosure Dilemmas
There exists today a fast growing availability of personal genetic information. Its prognostic impact and value for an individual or family member's health is sometimes unclear, whilst at other times it is clear-cut. The issue of whether to disclose genetic information does however have wide ranging implications. Avoiding the rhetoric of 'genetic exceptionalism', and drawing on an expanded field of bioethical, sociological and anthropological research, this book sets a new agenda for discussing the ethics surrounding the disclosure of prognostic genetic information. A hermeneutical approach reconsiders the ethics of disclosure in a variety of contexts in which genetic information is generate...
GIEE 2011: Gender and Interdisciplinary Education for Engineers
Attracting more young people, particularly women, in Engineering and Technology (ET) is a major concern in Europe today. Their participation in engineering occupations appears to be a key-issue for European economic and technical development, as well as a central achievement towards gender equality and social justice. Increasing young people’s interest in the sciences and mathematics and underlining the importance of Engineering and Technology developments in shaping our collective future is an ongoing project in the education sector. This book presents various analyses and ideas for possible solutions. Aujourd’hui, attirer plus de jeunes et en particulier des jeunes femmes dans les formations d’ingénieurs est un souci majeur en Europe. C’est une clé pour aller vers l’égalité des sexes et favoriser le développement économique, scientifi que et technologique de l’Europe. Accroitre l’intérêt des jeunes pour les sciences et la technologie est essentiel pour notre futur collectif et constitue un défi majeur pour l’éducation. Ce livre présente des analyses et des idées pour de possibles solutions.
Assessing Life
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Testing Baby
Within forty-eight hours after birth, the heel of every baby in the United States has been pricked and the blood sent for compulsory screening to detect or rule out a large number of disorders. Newborn screening is expanding rapidly, fueled by the prospect of saving lives. Yet many lives are also changed by it in ways not yet recognized. Testing Baby is the first book to draw on parents’ experiences with newborn screening in order to examine its far-reaching sociological consequences. Rachel Grob’s cautionary tale also explores the powerful ways that parents’ narratives have shaped this emotionally charged policy arena. Newborn screening occurs almost always without parents’ consent and often without their knowledge or understanding, yet it has the power to alter such things as family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents’ interests are understood and solicited in policy debates.
History of Human Genetics
Written by 30 authors from all over the world, this book provides a unique overview of exciting discoveries and surprising developments in human genetics over the last 50 years. The individual contributions, based on seven international workshops on the history of human genetics, cover a diverse range of topics, including the early years of the discipline, gene mapping and diagnostics. Further, they discuss the status quo of human genetics in different countries and highlight the value of genetic counseling as an important subfield of medical genetics.
Democratic Transgressions of Law
Drawing on comparative and interdisciplinary research in the regulation of science and technology, this book offers a critical examination of participatory governance in legal procedure and an inquiry in the institutional and procedural possibilities of democratic participation in law.
Reconstructing biotechnologies
The main subject of this publication is the co-creation of society and biotechnology. The authors do not treat society and biotechnology as separate domains, instead they consider technologies as socially constructed. The main focus of this publication is on agro-biotechnologies and the contributors present perspectives for reconstruction both from and in 'the North' and 'the South'. Reconstructing biotechnologies offers a range of critical social analyses confronting the actuality of biotechnology with the potentialities of its social reconstruction. In doing that, the book develops and merges literature from four different disciplines, namely (i) critical theory and its analyses of technol...
The PKU Paradox
How did a disease of marginal public health significance acquire paradigmatic status in public health and genetics? In a lifetime of practice, most physicians will never encounter a single case of PKU. Yet every physician in the industrialized world learns about the disease in medical school and, since the early 1960s, the newborn heel stick test for PKU has been mandatory in many countries. Diane B. Paul and Jeffrey P. Brosco’s beautifully written book explains this paradox. PKU (phenylketonuria) is a genetic disorder that causes severe cognitive impairment if it is not detected and treated with a strict and difficult diet. Programs to detect PKU and start treatment early are deservedly c...
