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Voices of the Chronically Ill
This book describes what it is like to embody chaos and liminality in living with a physical chronic illness and how these experiences are related to the loss and remaking of one’s sense of self. It also encourages readers to listen closely to the figurative language people use in trying to articulate the unspeakable. Focusing upon a wide array of narrative fragments gathered from first-person literary work and research, the author portrays how a conglomerate of sensations, feelings, and thoughts are embodied in the illness experience. The voices present in this text speak of vulnerability, suffering, and brokenness, yet also, endurance and fortitude. The ethics of philosopher Emmanuel Levinas provide the grounds for offering care lovingly. This book makes a significant contribution to helping students, practitioners and carers understand the chaos that is inherent, yet so often silenced, in the illness experience. This text could also be of interest to laypeople who are curious about how subjective illness is experienced, and to those who are ill who may be seeking affirmation for what they are experiencing.
In the Shadow of Illness
A revealing account of how families adapt to living with a chronically ill child What is it like to live with a child who has a chronic, life-threatening disease? What impact does the illness have on well siblings in the family? Myra Bluebond-Langner suggests that understanding the impact of the illness lies not in identifying deficiencies in the lives of those affected, but in appreciating how family members carry on with their lives in the face of the disease's intrusion. The Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those ...
The Chronically Ill
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Life Disrupted
Twenty-seven-year-old Laurie Edwards is one of 125 million Americans who have a chronic illness, in her case a rare genetic respiratory disease. Because of medical advances in the treatment of serious childhood diseases, 600,000 chronically ill teens enter adulthood every year who decades ago would not have survived-they and people diagnosed in adulthood face the same challenges of college, career, and starting a family as others in their twenties and thirties, but with the added circumstance of having chronic illness. Life Disrupted is a personal and unflinching guide to living well with a chronic illness: managing your own health care without letting it take over your life, dealing with di...
Life with Chronic Illness
Many healthcare professionals are focusing their concerns on controlling symptoms and minimizing physical distress while failing to deal with the social and psychological factors related to living with long-term chronic illness. Ariela Royer makes an important contribution to the study of health and illness behavior by showing the various strategies chronically ill people use to manage their symptoms and overcome the consequences of their particular illness, so they can live the most normal life possible and maintain their self-esteem. In spite of a popular belief linking chronic illness mainly to aging, most chronic problems extend across the life span. One of every seven men and one of eve...
Chronicity Enquiries: Making Sense of Chronic Illness
This volume was first published by Inter-Disciplinary Press in 2013. Chronic illness, together with people experiencing or treating it, became almost mute to predominant biomedical narration pervasive in mainstream media, education, medical and pharmaceutical industry. Contributors in this book aim to represent, discuss, and preserve the vanishing voices and stories on chronic illness from dimensions beyond medicine so that we may make sense of chronicity with the diversity it deserves. The book also incorporates research articles which share important stories about chronicity. These stories, same as chronic illness in our world, should not be treated in a ‘standardised’ way. Each reader, we hope, will relate the meanings of chronicity in this book to his or her own world.
100 Questions & Answers About Chronic Illness
Whether you're a newly diagnosed patient, or are a friend or relative of someone suffering from Chronic Illness, this book offers help. The only text available to provide both the doctor's and patient's views, 100 Questions & Answers About Chronic Illness gives you authoritative, practical answers to your questions about treatment options and quality of life, and provides sources of support from both the doctor’s and patient’s viewpoints. This book is an invaluable resource for anyone coping with the physical and emotional turmoil of Chronic Illness.
How to Live Well with Chronic Pain and Illness
Comfort, understanding, and advice for those who are suffering--and those who care for them. Chronic illness creates many challenges, from career crises and relationship issues to struggles with self-blame, personal identity, and isolation. Beloved author Toni Bernhard addresses these challenges and many more, using practical examples to illustrate how mindfulness, equanimity, and compassion can help readers make peace with a life turned upside down. In her characteristic conversational style, Bernhard shows how to cope and make the most of life despite the challenges of chronic illness. Benefit from: • Mindfulness exercises to mitigate physical and emotional pain • Concrete advice for n...
Good Days, Bad Days
Describing how chronic illness affects one's self-image, friends, and family, this book shares the experiences of people with serious chronic illnesses, and shows how they find the strength to carry on.
