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Drawing upon a diverse range of archival evidence, medical treatises, religious texts, public discourses, and legal documents, this book examines the rich historical context in which controversies surrounding the medical neglect of children erupted onto the American scene. It argues that several nineteenth-century developments collided to produce the first criminal prosecutions of parents who rejected medical attendance as a tenet of their religious faith. A view of children as distinct biological beings with particularized needs for physical care had engendered both the new medical practice field of pediatrics and a vigorous child welfare movement that forced legislatures and courts to reconsider public and private responsibility for ensuring children’s physical well-being. At the same time, a number of healing religions had emerged to challenge the growing authority of medical doctors and the appropriate role of the state in the realm of child welfare. The rapid proliferation of the new healing churches, and the mixed outcomes of parents’ criminal trials, reflected ongoing uneasiness about the increasing presence of science in American life.
A groundbreaking medical and social history of a devastating hereditary neurological disorder once demonized as “the witchcraft disease” When Phebe Hedges, a woman in East Hampton, New York, walked into the sea in 1806, she made visible the historical experience of a family affected by the dreaded disorder of movement, mind, and mood her neighbors called St.Vitus's dance. Doctors later spoke of Huntington’s chorea, and today it is known as Huntington's disease. This book is the first history of Huntington’s in America. Starting with the life of Phebe Hedges, Alice Wexler uses Huntington’s as a lens to explore the changing meanings of heredity, disability, stigma, and medical knowle...
Previously published: Baltimore: Johns Hopkins University Press, 1990.