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Aim: The European Reference Networks (ERNs) provide clinicians and patients the opportunity to collaborate at EU level to improve diagnosis, care and treatment for people living with rare and complex conditions. However, building a partnership culture to systematically involve patients in ERN activities and decision-making structures is challenging, partly because the role of patient representatives and the value of this collaboration are not always understood. The objective of this project was to develop an evaluation framework to assess the impact of patient engagement in the ERNs and to provide evidence on the value of patient-clinician partnership. Methods: The evaluation was developed b...
This Research Topic includes high-quality Perspective articles and Opinion articles published in Frontiers in Health Services in 2022. The mission of the journal is to ultimately contribute to helping health systems improve both experiences and outcomes of patients, and make health systems more efficient. Perspective articles aim to present a viewpoint on a specific area within Health Services. The articles in this collection may discuss current advances and future directions and clearly present the author's perspective. Perspective articles should also provide an accurate presentation and citations of other authors’ work and may include original data as well as personal insights and opinions.
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This book contributes to bridge the gap between different scholarly communities interested in the entanglements of culture and politics in the international arena. It sheds light on existing connections in their parallel evolution with a thorough literature review, complemented by several case studies showing the fruitful character of their interdisciplinary mobilisation. Through the notions of cultural relations, intellectual cooperation and cultural diplomacy, the book draws on a soft power perspective to offer a shared, novel, and interdisciplinary theoretical framework to approach cultural institutions and organisations that have been previously examined as isolated objects: for example, cultural institutes, international organisations, literary magazines, and literary contests. The interdisciplinary nature of this volume justifies the relevance of its content for scholars working in the history of international relations, international cultural relations and intellectual history, comparative literature, sociology of literature and global literary studies.