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"Although millions of people are affected each year by brain injuries, what it is like to live with these injuries is often misunderstood. Laura Lorenz delves into the experience of acquired brain injury (ABI) survivors to reveal how they make sense of their changed circumstances - and how social policies and medical expectations can enhance, or detract from, their quality of life." "As she traces individual journeys on the road from diagnosis through rehabilitation, Lorenz evokes the reality of living with ABI. She also tackles the systemic problems undercutting the quality of current medical and social support. Moving beyond ABI, her work encourages a fresh approach to the patient-provider relationship for people with a wide range of disabilities." --Book Jacket.
This groundbreaking text makes an intervention on behalf of disability studies into the broad field of qualitative inquiry. Ronald Berger and Laura Lorenz introduce readers to a range of issues involved in doing qualitative research on disabilities by bringing together a collection of scholarly work that supplements their own contributions and covers a variety of qualitative methods: participant observation, interviewing and interview coding, focus groups, autoethnography, life history, narrative analysis, content analysis, and participatory visual methods.
This groundbreaking text makes an intervention on behalf of disability studies into the broad field of qualitative inquiry. Ronald Berger and Laura Lorenz introduce readers to a range of issues involved in doing qualitative research on disabilities by bringing together a collection of scholarly work that supplements their own contributions and covers a variety of qualitative methods: participant observation, interviewing and interview coding, focus groups, autoethnography, life history, narrative analysis, content analysis, and participatory visual methods. The chapters are framed in terms of the relevant methodological issues involved in the research, bringing in substantive findings to ill...
Disability studies has engaged with discourse analysis in key works both from the UK and the USA. While the perspectives and analyses of discourse analysis have proved well suited for exploring disability, however, its methods have not been sufficiently developed in a disability studies context. Conversely, discourse analysts have traditionally been concerned with social issues and fields in which asymmetric power relations, marginalization, and discrimination play a central role, e.g. gender, race, ethnicity, and sexual orientation, all of which share many analytical features with disability. But although efforts have been made to integrate disability into the discourse analysis and convers...
Disability studies scholars and activists have long criticized and critiqued so-termed ’charitable’ approaches to disability where the capitalization of individual disabled bodies to invoke pity are historically, socially, and politically circumscribed by paternalism. Disabled individuals have long advocated for civil and human rights in various locations throughout the globe, yet contemporary human rights discourses problematically co-opt disabled bodies as ’evidence’ of harms done under capitalism, war, and other forms of conflict, while humanitarian non-governmental organizations often use disabled bodies to generate resources for their humanitarian projects. It is the connection ...
What are the unconscious fantasies circulating in representations of disability? What role do these fantasies play in defining the condition of disability? What can these fantasies teach us about human vulnerability writ large? The Fantasy of Disability explores how popular culture texts, such as Degrassi: The Next Generation and Glee, fantasize about what life with a physical disability must be like, while at the same time exerting tremendous pressure on disabled individuals to conform their identity and behaviour to fit within the margins of these societally perpetuated archetypes. Rather than merely engaging with how disability is represented, though, this text investigates how representa...
This book provides the reader with a ground-breaking understanding of disability and social movements. By describing how disability is philosophically, historically, and theoretically positioned, Carling-Jenkins is able to then examine disability relationally through an evaluation of the contributions of groups engaged in similar human rights struggles. The book locates disability rights as a new social movement and provides an explanation for why disability has been divided rather than united in Australia. Finally, it investigates whether the recent campaign to implement a national disability insurance scheme represents a re-emergence of the movement. It will be of interest to all scholars and students of both disability studies and social movements.
This is the first book of its kind to feature interdisciplinary art history and disability studies. Moving away from the medical model of disability that is often scrutinized in art history, the book considers the social model and representations of disabled figures. Topics addressed include visible versus invisible impairments; scientific, anthropological, and vernacular images of disability; and the implications of looking/staring versus gazing. Disability and Art History explores ways in which art responds to, envisions, and at times stereotypes and pathologizes disability, and aims to contextualize disability historically, as well as in terms of medicine, literature, and visual culture.
This book is a case study which narrates the history of the National Organization of the Spanish Blind (ONCE), established in 1937 during the Spanish Civil War. Contrary to other affluent countries where most blind people live on welfare benefits, the Spanish blind enjoy full employment. Furthermore, the average income of the Spanish blind is higher than that of the sighted. Why is this so? Why the blind, and not the deaf mute, or any other group of disabled people? This book shows that ONCE answers these questions. The book explains ONCE'S origins, the shifting strategies that the organization has pursued to adapt to an ever-changing environment, its original goals and the way they have mutated and been interpreted, its conflicting relationship with an authoritarian regime, its struggle to find its place in a democratic regime, and its relations with other groups of disabled people. A historical narrative, the book lies at the intersection between disability and organization studies, history and sociology. It will be of interest to all scholars of disability studies, the sociology of work, the history of medicine and contemporary Spanish history.
Sports are ubiquitous in American society, and given their prominence in the culture, it is easy to understand how most youth in the United States face pressure to participate in organized sports. But what does this mean for the hundreds of thousands of Americans who live with one or more physical disabilities and, in particular, those in powered wheelchairs? Located at the intersection of sports and disability, this book tells the story of power soccer - the first competitive team sport specifically designed for electric wheelchair users. Beginning in France in the 1970s, today, over sixty teams compete within the United States Power Soccer Association (USPSA) and the sport is actively play...