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Involving Service Users in Health and Social Care Research
Service user involvement in research can range from the extremes of being the subject, to being the initiator or investigator, of a research study. The activity of the professional researcher can also range from being the person undertaking the research, to being a partner with, or mentor to, service users. This broad scope of levels of involvement is reflected in the contributions in this book, both in the research experiences reported and in the writing of the chapters themselves. With contributions coming from a range of service areas including learning disabilities, cancer care, older people and mental illness, chapters look at important research issues such as: strategies for working in true partnership avoiding ‘tokenism’ involving service users at all stages of the research process communication and terminology involving service users of different ages and experience training needs of professionals and service users problems surrounding ‘payment’ for service users other ethical and practical issues. This book is invaluable reading for researchers in health and social care from academic, professional and service user backgrounds.
Nursing Care of Children and Young People with Chronic Illness
Children and young people suffering from long-term conditions require continuing support and nursing care throughout their lives. Nursing Care of Children and Young People with Chronic Illness explores chronic disease management in the context of recent developments, including the National Service Framework for Children. It addresses the aetiology of chronic illness and the impact on the child’s family. It also explores holistic approaches to caring for their social, physical and psychological needs, and highlights the importance of the nurse’s role in promoting children and their parents as ‘expert patients’. Nursing Care of Children and Young People with Chronic Illness is a compre...
The Reality of Nursing Research
Focusing on the nurse researcher's dual role as practitioner and researcher, as well as research ethics and the relationship between practitioner and academic agendas, The Reality of Nursing Research helps to: locate the practical dilemmas of nursing research in historical and policy context prepare those about to embark on research for some of the issues they will face reassure researchers that they are not the only ones to encounter the complexity of real life research support the research teacher or supervisor in preparing and mentoring their students share experiences of others who have encountered similar issues and provide some practical advice on their solution. With illustrative case studies and practical advice, this book looks at the real life dilemmas faced by nurse researchers at key stages of the research process from developing a research question through to disseminating the findings. It is an essential text for nurse researchers, teachers of research, research supervisors and nurses undertaking research at diploma through to doctoral level.
Hearing (Our) Voices
Hearing (Our) Voices describes two innovative participatory action research projects - one on communication with medical professionals, the other on housing - carried out by a group of people diagnosed with schizophrenia under the guidance of Professor Barbara Schneider. Participants designed the research, conducted interviews and focus groups, participated in data analysis, and disseminated research results through a number of innovative strategies including theatre performances, a documentary film, a graphic novel, and a travelling exhibit. Emerging from these projects is the central and significant finding that people diagnosed with schizophrenia are caught between their dependence on care and their longing for independent lives. The research presented in Hearing (Our) Voices points to a way to resolve this paradox and transform lives through the inclusion of people diagnosed with schizophrenia in research, in decision-making about their own treatment and housing, and in public discourse about schizophrenia.
Involving Children and Young People in Health and Social Care Research
Divided into five parts, this practical book begins by considering what research with young people is and why we should do it, before leading the reader into how to undertake it. The book then provides practical examples of action and finishes with reflections about the whole process.
Legal Aspects of Occupational Therapy
Since publication of the original edition in 1996, this book has established itself as an essential text for occupational therapists. It offers an understanding of the law relating to their practice, but is written to be accessible for those who have no prior legal knowledge. The text provides valuable information for occupational therapists employed in health and social services, as well as the law relevant to private practitioners. The book includes chapters on all the main client groups and presents the relevant specialist law. Students and teachers of occupational therapy will find the chapters on professional registration, education, training and research of particular interest. The third edition has been substantially revised to cover significant changes in legislation since the previous version. There is also a brand new chapter on the subject of death and dying. Legal Aspects of Occupational Therapy remains a key resource for the occupational therapy student, practitioner and service manager.
Handbook of Service User Involvement in Nursing and Healthcare Research
This book fills an important niche in the market providing practical expert advice on the involvement of service users - patients, carers and the public - in nursing and healthcare research. An invaluable guide for anyone working or involved in nursing and healthcare research, this book provides a step-by-step guide to the principles and process of involvement, including understanding the rationale for involvement, designing involvement, working with service users, and evaluating what has been achieved. With illustrations, worked examples and tool sheets throughout, this evidence-based guide uses real life examples from recent research studies in health and social care research, thus relating theory to practice in a meaningful way. The Handbook of Service User Involvement in Nursing & Healthcare Research introduces a wide range of key issues, including: Why? Why should researchers involve service users? How? How can researchers and service users work together successfully and productively? Who? Who chooses to become involved in research? How are issues of representation and diversity addressed? When? At what stage should service users be involved in the research process?
Innovations in Paediatric Ambulatory Care
Ambulatory care, the provision of health services on a day service basis, is a growth area. Nowhere is this more evident than in paediatrics where minimising the disruption to the lives of children caused by illness and hospitalisation has been high on the agenda for consumer groups and service providers for two decades. This book brings together details of some innovations in paediatric ambulatory care, presenting them in a form that is readable, research-based and relevant to practice.
Evidence-based Child Health Care
An 'evidence-based' approach to health care is growing in importance, but it is difficult for students and professionals to keep up-to-date with a vast and changing knowledge base. Even more challenging is the need to apply the evidence to everyday nursing practice. This book helps the reader to do just that. Bringing together a range of contributors, it explores some of the latest research in children's nursing. A particular feature is the application of the findings presented to nursing practice.
Nursing Care of Children and Young People with Long-Term Conditions
The second edition of Nursing Care of Children and Young People with Long Term Conditions remains the only nursing-specific text on the care of paediatric patients with chronic illness. Written to meet the needs of nursing students and professionals alike, this comprehensive volume provides authoritative and up-to-date information on the context, theory, and practice of delivering holistic care to children and families in a range of health and social care settings. Contributions from a team of experienced academics, educators, and practitioners offer valuable insight into the impact of chronic illness on children and parents, the practical implications of meeting their physical, psychologica...
