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Living with Motor Neurone Disease: A complete guide is designed to guide the reader through this complex progressive neurological condition that attacks the motor neurones, or nerves, in the brain and spinal cord. This means that messages gradually stop reaching the muscles, which leads to weakness and wasting. Motor Neurone Disease can affect the everyday things that we take for granted. A diagnosis of MND can be frightening and overwhelming. Good quality information and support from people who understand MND is vital at this time. Living with Motor Neurone Disease is written by many of the most distinguished Irish experts on MND, bringing safe, reliable, practical information and reassuran...
Lily is a little girl who loves playing games and having fun with her favourite Uncle, Sam, who has Motor Neurone Disease. Sam is in a wheelchair and needs a ventilator to breathe. But to Lily, he is just fun Uncle Sam. One day they head to their favourite park, but nothing is as it should be. The swing is all tangled, the slide is covered in grime and the roundabout is broken. Using their problem solving skills and with the help of some special friends they set about making things right.All profits from the book will go to the charity, Stand Against MND. The charity was founded by Sam Perkins who was diagnosed with MND at the age of 37. SAM raises money to fund research towards a cure and treatments for MND and also funds palliative care for those affected by MND.
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‘I Found My Tribe is inspiring, humbling and a picture of what love really looks like’ Marian Keyes An invocation to all of us to love as hard as we can, and live even harder, I Found My Tribe is an urgent and uplifting letter to a husband, family, friends, the natural world and the brightness of life. Ruth’s tribe are her lively children and her filmmaker husband, Simon, who has Motor Neurone Disease and can only communicate with his eyes. Ruth’s other ‘tribe’ are the friends who gather at the cove in Greystones, Co. Wicklow, and regularly throw themselves into the freezing cold water, just for kicks. ‘The Tragic Wives’ Swimming Club’, as they jokingly call themselves, meet to cope with the extreme challenges life puts in their way, not to mention the monster waves rolling over the horizon. ‘Fitzmaurice tells her story in sparkling prose that is as sinewy as her new sea-strengthened body, and as admirable and boundless as her spirit’, Sunday Times ‘Uplifting and life-affirming’ Stylist
Winner of the Sports Book Awards 2022 The huge Sunday Times number one bestselling inspirational memoir from rugby league legend Rob Burrow on his extraordinary career, his incredible friendship with fellow Rhino Kevin Sinfield, and his battle with motor neurone disease. ‘A pocket rocket of a player and a giant of a character . . . He [was] one in a million and his story is truly inspirational’ – Clare Balding ‘I’m not giving in until my last breath’ – Rob Burrow Rob Burrow was one of the greatest rugby league players of all time. And the most inspirational. As a boy, Rob was told he was too small to play the sport. Even when he made his debut for Leeds Rhinos, people wrote him...
Neale Francis Daniher AM is a former Australian rules footballer who played with the Essendon Football Club in the Australian Football League. He was later the coach of the Melbourne Football Club between 1998 and 2007, and also held coaching positions with Essendon, Fremantle and West Coast.
In 2001 Peter Anderson was 37 and had the perfect life: very much in love and recently married with an infant daughter he adored; an intelligent and sensitive man working a job he loved as a popular secondary school teacher and a talented sportsman training for a marathon... The bubble was about to burst. Peter was diagnosed with Motor Neurone Disease (MND), a physically crippling disease that destroys nerve cells controlling muscular movement. He was told that over time his body would cease to function - yet his mind, his memory and his feelings would be untouched by the disease. His life expectancy was two years. Incredibly, eleven years on, despite Peter's body wasting away, his mind remains as it has always been: strong and vibrant, intelligent, enquiring, touched with gentle humour. Silent Body - Vibrant Mind has been written with often unimaginable physical difficulty. An unforgettable story about what matters in life.
Molecular and Cellular Therapies for Motor Neuron Diseases discusses the basics of the diseases, also covering advances in research and clinical trials. The book provides a resource for students that will help them learn the basics in a detailed manner that is required for scientists and clinicians. Users will find a comprehensive overview of the background of Amyotrophic Lateral Sclerosis (ALS/Lou Gehrig's Disease) and Spinal Muscular Atrophy (SMA), along with the current understanding of their genetics and mechanisms. In addition, the book details gene and cell therapies that have been developed and their translation to clinical trials. - Provides an overview of gene and cell therapies for amyotrophic lateral sclerosis (ALS) and other motor neuron diseases - Edited by a leading Neurosurgeon and two research scientists to promote synthesis between basic neuroscience and clinical relevance - Presents a great resource for researchers and practitioners in neuroscience, neurology, and gene and cell therapy
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