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This is a book on how home is made when care enters the lives of people as they grow old at home or in ‘homely’ institutions. Throughout the book, contributors show how home is a verb: it is something people do. Home is thus always in the making, temporal, contested, and open to negotiation and experimentation. By bringing together approaches from STS, anthropology, health humanities and health care studies, the book points to the importance of people's tinkerings and experiments with making home, as it is here that home is being made and unmade.
Dignity is fundamental to every single person’s life and history; and every interaction with another human being can potentially influence a person’s sense of identity and self-esteem. In recent years, there has been a growing awareness of the importance of ‘dignity in care’. When healthcare organisations and individuals prioritise dignity, service users, carers and staff are treated with respect, compassion and understanding, and safe, good-quality healthcare services are delivered. In contrast, when dignity and respect are neglected or violated, people experience poor-quality care and may even suffer neglect and abuse. For all these reasons, it is clearly vital that all healthcare ...
This new volume repositions narrative medicine and trauma studies in a global context with a particular focus on ethics. Trauma is a rapidly growing field of especially literary and cultural studies, and the ways in which trauma has asserted its relevance across disciplines, which intersect with narrative medicine, and how it has come to widen the scope of narrative research and medical practice constitute the principal concerns of this volume. This collection brings together contributions from established and emerging scholars coming from a wide range of academic fields within the faculty of humanities that include literary and media studies, psychology, philosophy, history, anthropology as...
Designing Homeliness: Everyday Practices of Care proposes an interdisciplinary lens to investigate home. The book situates homeliness as a continual process of creating, maintaining, and restoring meanings and experiences of home. Melisa Duque draws from her design ethnographic practice with people using smart home lighting, gardening, jigsaw puzzles, and op-shopping to present everyday examples in dialogue with theoretical discussions, revealing the role of homeliness in generating wellbeing. The research projects featured in this book were conducted in rural, regional, remote, and metropolitan areas in Australia, at familiar and unfamiliar living sites, including people’s homes, a mental health hospital unit, a residential aged care facility, and a charity shop revaluing domestic things. This book offers conceptualisations and practical tools to advance home studies while engaging with broader discussions on ageing, wellbeing, and sustainability. Led by design research and social science analysis, this book will be of value for students, researchers, and practitioners at these intersections, including design, anthropology, and human geography.
Explores the experiences of transnational migrant families from Africa, including flows into and out of South Africa, and how technology is used to maintain kinship and duties of care from afar.
Discovering how to live with dementia "I'm a stranger in a strange land," sighed the dignified gentleman Janet L. Ramsey met walking down the care-center hallway. Those words, her first glimpse of the confusion that comes with dementia, led her into a lifetime of work with older adults. If you have been diagnosed with dementia or you are accompanying someone with this illness, you may find yourself on a journey that began with a sudden diagnosis and an acute sense of panic. Or perhaps your journey started gradually, as you noticed changes in yourself or in your partner or parent. Whether sudden or gradual, the impact of a diagnosis of dementia reorganizes a family's entire life. Drawing on her own experience as a pastor, teacher, therapist, and family caregiver, as well as on interviews with eight family and professional caregivers, Janet L. Ramsey helps caregivers and those with impaired memories learn as they listen to each other. She also shows them how the Holy Spirit can awaken their imagination and understanding while they discover how to live with dementia.
This open access book presents new approaches for researching values as they are performed or materialized. Values have been an important topic in academic literature for a long time; they are at the core of institutional theories and are often connected to ideals in organisations or ways of valuing. The various values-constructs are typically highlighted to underpin discussions of identity, ethos, and the purposive institutional work of leaders and employees. However, there is a need for more research on how values link and sustain actions and institutions. Contributors in this volume map and discuss useful methodological ways in which values and values work can be investigated and how rese...
This book examines the role of disability in the right to political and social participation, an act of citizenship that many disabled people do not enjoy. The disability rights movement does not accept the use of disability to create limits on citizenship, which poses challenges for contemporary societies that will become ever greater as the science and technology of enhancing human abilities evolves. Comprised of eight chapters, three interludes, and a postscript written by leading scholars and disability rights activists, the book explores citizenship for people with disabilities from an interdisciplinary perspective using the United Nations Convention on the Rights of Persons with Disabi...
This book celebrates and captures examples of the excellent scholarship that Palgrave’s Health, Technology, and Society Series has published since 2006, and reflects on how the field has developed over this time. As a collection of readings drawn from twenty-two books, it is organized around five themes: Innovation, Responsibility, Locus of Care, Knowledge Production, and Regulation and Governance. Structured in this way, the book gives the reader a concise but nonetheless rich guide to the core issues and debates within the field. Complementing these narratives, the original authors have provided new reflection pieces on their texts and on their current work. This then is a book which in part looks back but also looks forward to emerging issues at the intersection of health, technology, and society. It uniquely encompasses and presents a range of expertise in a novel way that is both timely and accessible for students and others new to the field.
This book seeks to map out the parameters and boundaries of soulful aging and explores philosophical and theological perspectives on the way we grow older. It extends work in the behavioural and social sciences which address the diverse and contested connections of older people’s inner voices and social relationships. Building on qualitative and quantitative research in age studies and gerontology, this volume extends concepts and stories that attest to the joys, tensions, and paradoxes that mount with advancing years. From ten authors versed in writing from multi-disciplinary and inter-professional perspectives with clarity, the book conjoins and challenges behavioural thoughts-and-actions and religious/spiritual spheres of late-life human development previously presented in the context of positive and productive aging as well as healthful, wise, and successful ‘Saging’. Interdisciplinary and insightful, Soulful Aging will be a key resource for scholars and researchers of religion, theology, philosophy, psychology, gerontology, and sociology. It was originally published as a special issue of the Journal of Religion, Spirituality & Aging.