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The research ethics system was created without the help of people who know what it is like to be a research subject. This is a serious omission. Experts have overlooked ethical issues that matter to subjects. Silent Partners moves subjects to the forefront, giving them a voice in research ethics.
In the quarter century since the landmark Karen Ann Quinlan case, an ethical, legal, and societal consensus supporting patients' rights to refuse life-sustaining treatment has become a cornerstone of bioethics. Patients now legally can write advance directives to govern their treatment decisions at a time of future incapacity, yet in clinical practice their wishes often are ignored. Examining the tension between incompetent patients' prior wishes and their current best interests as well as other challenges to advance directives, Robert S. Olick offers a comprehensive argument for favoring advance instructions during the dying process. He clarifies widespread confusion about the moral and leg...
This book tells the stories of seven people with a distinct perspective on cancer. Experts on medical ethics, personal experience showed them how little they knew about the real world of serious illness. In this book, they describe cancer's teachings on ethics, medicine, and the experience of illness.
"[Cantor provides] both a cogent and provocative text and prodigious references." -- The New England Journal of Medicine "Cantor develops a careful and accessible ethic of autonomy and dignity regarding forgoing life-prolonging medical treatment... " -- Ethics "A thoughtful, informative and sensitive text... " -- European Medical Journal "Professor Cantor of Rutgers University School of Law has created a scholarly and sophisticated, yet quite accessible, legal analysis of the subject of advance directives... detailed, exhaustively referenced... " -- The Florida Bar Journal "This book is an excellent resource for anyone interested in learning about advance directives for health care." -- Doody's Health Sciences Book Review Journal "Cantor provides a very thorough, reliable, and readable guide... " -- Robert M. Veatch, Director, Kennedy Institute of Ethics, Georgetown University Cantor examines the medical, legal, and moral issues surrounding advance medical directives -- those devices aimed at controlling medical intervention during the dying process after the patient is no longer competent.
Examines how the framing of disability has serious implications for legal, medical, and policy treatments of disability.
The development of new pharmaceutical products and behavioral interventions aimed at improving people's health, as well as research that assesses the efficacy and cost-effectiveness of public policies, such as policies designed to improve children's education or reduce poverty, depends on research conducted with human participants. It is imperative that research with human subjects is conducted in accordance with sound ethical principles and regulatory requirements. Featuring 45 original essays by leading research ethicists, The Oxford Handbook of Research Ethics offers a critical overview of the ethics of human subjects research within multiple disciplines and fields, including biomedicine, public health, psychiatry, sociology, political science, and public policy.
Psychiatry presents a unique array of difficult ethical questions. A major challenge is to approach psychiatry in a way that does justice to the real ethical issues. This book show how ethics can engage more closely with the reality of psychiatric practice and how empirical methodologies from the social sciences can help foster this link.
Both communitarianism and casuistry have sought to restore ethics as a practical science—the former by incorporating various traditions into a shared definition of the common good, the latter by considering the circumstances of each situation through critical reasoning. Mark G. Kuczewski analyzes the origins and methods of these two approaches and forges from them a new unified approach. This approach takes the communitarian notion of the person as its starting point but also relies upon the narrative and analogical tools of case-based reasoning. He separates out the rhetoric that is incongruent with the Aristotelian aspirations of each method to show that the two are complementary, and th...
Provides a thematically integrated analysis and discussion of neuroethical questions about memory capacity, content, and interventions.