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A Personal Guide to Living with Progressive Memory Loss
  • Language: en
  • Pages: 162

A Personal Guide to Living with Progressive Memory Loss

Memory loss can create problems in every aspect of a person's life. The challenge of communicating thoughts and feelings can be made even harder by other people's negative perceptions of dementia. This book provides practical guidance for coping with progressive memory loss, and includes examples of real people who have faced similar challenges. These stories highlight both good and bad ways to deal with the problems that arise, and are also useful for describing the experiences of memory loss to friends and family. The authors suggest ways of maintaining physical and mental health by staying active and engaged in society. They also offer techniques for improving communication, preserving self-esteem and overcoming the stigma associated with memory loss. A Personal Guide to Living with Progressive Memory Loss offers inspiration and advice for anyone in the early stages of dementia. It also provides useful insight for family and friends who wish to offer support for a loved one affected by progressive memory loss.

Spiritual Direction in Context
  • Language: en
  • Pages: 195

Spiritual Direction in Context

"God created us to be lovers," writes Nick Wagner in his introduction to Spiritual Direction in Context. "When we love, we are in right relationship. We are acting for justice. The ministry of every spiritual director, in any context, is to serve as a guide into the depths of that love relationship." Here, in this provocative collection of essays, respected leaders in the field of spiritual direction explore the myriad of contexts in which this relationship takes place and offers practical ways to respond to them. As the popularity of spiritual direction grows, directors are facing situations that monks and nuns - for centuries the exclusive practitioners of this profession - never had to face. The essays in this book, drawn from Presence, the journal of Spiritual Directors International, look deeply at spiritual direction in a number of contexts, including the workplace, with the aging, in hospitals, with women's groups, with youth, with the homeless, and with those in mourning. Spiritual Direction in Context is the third in the SDI series.

The Man who Lost His Language
  • Language: en
  • Pages: 275

The Man who Lost His Language

When Sir John Hale suffered a stroke that left him unable to walk, write or speak, his wife, Shelia, followed every available medical trail seeking knowledge of his condition and how he might be restored to health. This book is a unique exploration of aphasia - losing the ability to use or comprehend words - as well as of the resilience of love.

Aging Together
  • Language: en
  • Pages: 255

Aging Together

  • Type: Book
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  • Published: 2011-06-01
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  • Publisher: JHU Press

Never in human history have there been so many people entering old age—roughly one-third of whom will experience some form of neurodegeneration as they age. This seismic demographic shift will force us all to rethink how we live and deal with our aging population. Susan H. McFadden and John T. McFadden propose a radical reconstruction of our societal understanding of old age. Rather than categorizing elders based on their cognitive consciousness, the McFaddens contend that the only humanistic, supportive, and realistic approach is to find new ways to honor and recognize the dignity, worth, and personhood of those journeying into dementia. Doing so, they argue, counters the common view of d...

God Never Forgets
  • Language: en
  • Pages: 136

God Never Forgets

Sensing God's presence is difficult when faced with Alzheimer's Disease among family and loved ones. This book brings faith and hope to these trying circumstances, offering the witness of the Bible and the insights of theology to show how God continues to work in people's lives even in the midst of fearful disease.

Learning to Live with Huntington's Disease
  • Language: en
  • Pages: 178

Learning to Live with Huntington's Disease

Huntington's Disease (HD) is a hereditary illness passed on via a defective gene. There is a fifty per cent chance of inheriting it from a parent and there is yet no cure. Learning to Live with Huntington's Disease is one family's poignant story of coping with the symptoms, the diagnosis and the effects of HD. This book presents the struggles and strengths of the whole family when one member loses their future to a terminal illness. Told by the sufferer and other significant family members, the individuals describe the burden of watching yourself and others for symptoms of HD, including involuntary movements, depression, clumsiness, weight loss, slurred speech and sometimes violent tendencies. The family recounts the challenge to remain united and describes how they approached issues such as whether or not to be tested for HD, how much information to disclose to relatives, whether to have children or not and guilt if one sibling inherits the illness and one does not. Both honest and positive, the author stresses the importance of re-inventing yourself and your present, prioritising relationships and retaining a sense of humour.

Telling Tales about Dementia
  • Language: en
  • Pages: 226

Telling Tales about Dementia

In this book, thirty carers from different backgrounds and circumstances share their experiences of caring for a parent, partner or friend with dementia. This unique collection of personal accounts will be an engaging read for anyone affected by dementia in a personal or professional context, including social workers, practitioners and care staff.

Hospice Care for Patients with Advanced Progressive Dementia
  • Language: en
  • Pages: 320

Hospice Care for Patients with Advanced Progressive Dementia

This volume demonstrates how hospice care leads to improved quality of life for patients with terminal dementia and their families. Much of the information is based on the successful 10-year experience of the E.N. Rogers Memorial Hospital, where the first palliative care program for the management of patients with advanced dementia was developed. The book discusses Alzheimer's and other progressive dementias and reviews the clinical problems encountered, including infections, eating difficulties, and behavioral problems. It further addresses how to implement hospice care programs for these patients and the ethical aspects involved. This volume will be of compelling importance to nurses, physicians, and social workers involved in hospice or home care of patients at the last stages of dementia.

Losing Clive to Younger Onset Dementia
  • Language: en
  • Pages: 148

Losing Clive to Younger Onset Dementia

Clive Beaumont was diagnosed with Younger Onset Dementia at age 45, when his children were aged just 3 and 4. He had become less and less able to do his job properly and had been made redundant from the Army the year before. Clive's wife, Helen, tells of how she and the rest of the family made it through the next six years until Clive died: the challenge of continually adapting to his progressive deterioration; having to address the legal implications of the illness; applying for benefit payments; finding nursing homes; and juggling her responsibilities as a wife, a mother and an employee. She also describes the successful founding and development of The Clive Project, a registered charity set up by Helen and others in a bid to establish support services for people with Younger Onset Dementia. Younger Onset Dementia is comparatively rare, but not that rare. This story is for the family and friends of people with the condition, for the people themselves, and for the professionals working with them.

Making Outreach Visible
  • Language: en
  • Pages: 251

Making Outreach Visible

Faculty professional service/outreach won’t get the respect and reward accorded other forms of scholarship until it can be documented and subjected to peer review. This companion volume to Lynton’s Making the Case for Professional Service delivers specifics for developing such a review process. The protocol calls for teams of faculty and administrators to reach consensus on goals, definitions, and logistics through guided reflection and discussion of prototype portfolios. Sixteen prototypes are included in the volume, the product of a three-year Kellogg-funded project.