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This study juxtaposes philosophical analysis and clinical experience to present an overview of the issues surrounding dementia. It conveys a strong ethical message, arguing in favour of treating people with dementia with all the dignity they deserve as human beings.
Drawing on a selection of carefully curated autobiographical and fictional portrayals of the dementia experience, this book gives voice to some of the most pressing ethical issues that commonly arise in the context of a dementing disorder, and calls attention to various forms of narrative resistance in contemporary American literature on early-onset Alzheimer’s disease (AD). Based on the premise that the current public discourse on AD is largely dominated by an anxiety and fear-promoting conception of the illness, this multilayered inquiry strives to look beyond the widespread horrors of forgetting and loss in AD, and, in doing so, attempts to give a better, more accurate, and more balanced impression of what it means to be living with such a diagnosis.
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This unique title offers a novel exploration into the world of advance directives for patients with dementia. Based on real life ethics consultations the expert author has undertaken, the cases depict fascinating and challenging moral issues arising in a variety of healthcare facilities. The dynamics of the interdisciplinary health care teams of these patients, along with the dynamics of the families who are grappling to best serve their loved ones, are outlined and assessed; and the role each player’s personal histories have on the ethical issues and their resolution in real life are explored. Following each case study, the author applies a range of concepts introduced in the beginning of the book to the relevant case study, thus integrating theory with a case-based approach. A user-friendly question-and-answer format provides a thought provoking and accessible learning experience for readers. Dementia and the Advance Directive: Lessons from the Bedside tackles complicated and realistic healthcare scenarios and offers an invaluable addition to the literature on advance directives.
This study juxtaposes philosophical analysis and clinical experience to present an overview of the issues surrounding dementia. It conveys a strong ethical message, arguing in favour of treating people with dementia with all the dignity they deserve as human beings.
This definitive account of the intersection between music, wellness, and aging explores deeper aspects of human nature and later life.
This book is open access under a CC BY 4.0 license. This is the first book-length exploration of the thoughts and experiences expressed by dementia patients in published narratives over the last thirty years. It contrasts third-person caregiver and first-person patient accounts from different languages and a range of media, focusing on the poetical and political questions these narratives raise: what images do narrators appropriate; what narrative plot do they adapt; and how do they draw on established strategies of life-writing. It also analyses how these accounts engage with the culturally dominant Alzheimer’s narrative that centres on dependence and vulnerability, and addresses how they relate to discourses of gender and aging. Linking literary scholarship to the medico-scientific understanding of dementia as a neurodegenerative condition, this book argues that, first, patients’ articulations must be made central to dementia discourse; and second, committed alleviation of caregiver burden through social support systems and altered healthcare policies requires significantly altered views about aging, dementia, and Alzheimer’s patients.
The rising prevalence of dementia in the population continues to pose a serious public health challenge in both the developed and the developing world. Previous editions of Dementia have become acknowledged as a key 'gold standard' work in this field, and have had a genuinely international approach. The third edition has been fully revised and updated to reflect the most recent advances in the rapidly developing field of dementia research, adding further important detail to this already authoritative and detailed text. New material on mild cognitive impairment has been included, and the latest developments in areas such as service development and carer research are also covered. All the chapters have been revised to include the most up-to-date research in their field. This is an essential work of reference for specialists in old age psychiatry, neurology, and health care of the elderly. It should also be a useful resource for others working with patients with dementia, including general practitioners, nurses, psychologists, and other allied health professionals.
Why our approaches to Alzheimer's and dementia are problematic and contradictory Due to rapidly aging populations, the number of people worldwide experiencing dementia is increasing, and the projections are grim. Despite billions of dollars invested in medical research, no effective treatment has been discovered for Alzheimer's disease, the most common form of dementia. The Alzheimer Conundrum exposes the predicaments embedded in current efforts to slow down or halt Alzheimer’s disease through early detection of pre-symptomatic biological changes in healthy individuals. Based on a meticulous account of the history of Alzheimer’s disease and extensive in-depth interviews, Margaret Lock highlights the limitations and the dissent associated with biomarker detection. Lock argues that basic research must continue, but should be complemented by a public health approach to prevention that is economically feasible, more humane, and much more effective globally than one exclusively focused on an increasingly harried search for a cure.
This book examines the under-researched field of communication by bilingual people with dementia of the Alzheimer's type (DAT). The aging population is increasingly affected by neurocognitive diseases such as DAT, and over the past 30 years, the growing research body concerned with monolingual DAT discourses has seen significant growth. The findings from monolingual studies and institutional settings highlight the importance of code choice for a person’s sense of autonomy, especially against the background of changing communicational abilities. Adding a new perspective, this book investigates how ten Puerto Rican speakers living with varying stages of DAT draw on their bilingual resourc...